posted
The problem with B12 is orally its very ineffective, I have yet to find one that actually get absorded and to the brain ,you need to get shots from every thing I have read. I would love to find a way to boost it orally, I tried sublingual methylcobalamin and it does nada for me. Hopefully someone will be better informed than me on this thread.
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
That is what I understand too. Lyme patients don't
absorb well so they give shots. It makes me feel
so much better. For a little while.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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I had the same pattern prior to diagnosis and treatment. For me, the low iron developed in just a couple of months. Low vitamin D levels are very common in the US -- especially for someone living in Buffalo at the end of winter, when you haven't had much sunshine!
Kim
-------------------- Wildlife biologist working in tropics since 1997; tick bites in Nicaragua in March 2007, started getting sick May 2007; diagnosed with Lyme based on serological testing in Jan 2009; treatment starting Feb 2009. Wish me luck! Posts: 116 | From Seattle | Registered: Feb 2009
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posted
For me, hydroxy B12 has helped lessen some of my cognitive problems. I noticed it right away. For right now we are doing my shots twice daily morning and afternoon.
If I miss a shot my symptoms worsen. Have also noticed if I miss the afternoon B12 shot that I need more sleep medication that night.
With 2 shots daily I usually only need 1 sleep med. If I miss a shot, I will wake up about 2 am and can't get back to sleep without taking another sleep med.
I have learned to protect sleep at all cost, so the B12 seems to be a huge factor in doing that for me.
My LLMD said we could do a trial with increased amts and see if that makes any further improvements. Hopefully eliminate sleep meds altogether.
B12 shots also do some protection work with the adverse impact in the nitrous oxide cycle thing, something do with pyruvates (sp?) or something like that. It is in Professor Marty Pall's work.
I don't yet understand Dr. Pall's theory well enough to explain, but instinct tells me there is something I need to learn in this area. I think it could be key in some symptom management for some of us.
I think Dr. Pall's work/theory has been focused mostly on Chronic Fatigue Syndrome, but seems to me it might applicable to any chronic illness, including lyme disease.
Dr. Pall (PhD) and Dr. Cheney (M.D.)believe, at least in part, that B12 helps protect the brain from damage. I think it protects against the damage to nerves in the brain caused by over-firing neurons. Not sure that I have this right so I encourage anyone interested in it to google Marty Pall PhD and nitrous oxide cycle read up on it.
Hopefully, someone who understands B12 protection of the brain can contribute and explain more for us.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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posted
I also take the Hydroxy as injections, and I think they do help with cognitive as well as energy.
Posts: 22 | From Oregon | Registered: Feb 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i wish i could do shots but, dang, every time i have one something happens. i mean every single time...
last time, i flinched and she jerked the needle and i had a big scratch and it hit the muscle, time before, the needle broke in my arm, time before that....
nope, no shots...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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