Topic: babesia duncani - how did you get rid of it?
tickbattler
Unregistered
posted
One of my boys is having a hard time with babesia duncani. He is taking Mepron and artemisinin. Dr. J told me that Mepron doesn't work well on duncani but he still uses it as a cyst buster to work on lyme and adds artemisinin to get at the duncani.
Just wonder what you took to get rid of it and how long it took?
posted
I used quinine powder from rain-tree.com with clindamycin and cryptolepsis. I took three teaspoons of the powder three times a day. It seemed to get rid of my babesia symptoms after a few months. I used high dose mepron for a long time and nothing happened with it so I can see what you're doctor is saying. You could also try adding in PC noni, apparantly that it suppose to work on babesia too.
Posts: 499 | From Indiana | Registered: Oct 2007
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lymednva
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Member # 9098
posted
I was on Biaxin, Mepron (1 tsp), and artemisinin (100 mg) twice daily for a year. When I stopped it my symptoms came back and I was worse than before.
So now I am pulsing Mepron, 2tsp, twice daily, zith, 500 mg, and art. 500mg AM, 1000 mg PM, three days a week for three weeks. I am also on Amoxicillin and Flagyl during these weeks and then get week 4 off!
I tested positive for Babs Duncani, and I've heard it's a tough one to get rid of.
I did improve the first year, just not rid of it. Now we will continue hitting it until we're pretty sure it's gone.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
I wouldn't count on mepron being a cystbuster my llmds and those he works with say it's not and it doesn't make much sense that it would be since it simply disrupts enzymes needed by parasites, wouldn't seem to do much to a ball of bacteria covered by protein gelly (assuming that's what the cyst is)
Posts: 499 | From Indiana | Registered: Oct 2007
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tickbattler
Unregistered
posted
Our LLMD is Dr. J (the famous one in CT) and he said that in kids it helps with the cyst form of lyme. I didn't ask for more detail but that's what he told me. It may not do so for adults.
He often says that treatment can differ with kids.
posted
Cysts are cysts...there aren't special ones for kids only. Mepron has not been tested and proven to be a cyst buster AFAIK, and neither has Alinia. These are just rumors that get passed around.
Some Dr's do have opinions that these drugs may work as cyst busters, but it isn't based on any actual hard evidence. Usually it comes from ND's or other alternative therapy practitioners that have determined it through muscle testing. So if you buy that stuff, then........
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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posted
Yeah good point about the alinia, it at least makes sense that it might work on cysts... i wish someone would test it. Those Finnish doctors that tested flagyl and tinidazole should check it too.
Posts: 499 | From Indiana | Registered: Oct 2007
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tickbattler
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posted
micul -
I'm certainly not trying to spread rumors...I just was sharing info from the most experienced pediatric LLMD in the country (or perhaps the world). He is definitely not an alternative therapy practitioner.
If you have heard this "rumor" before, then that supports the possibility that it could have some effect on cysts.
Perhaps Dr. J is wrong, but I normally don't dismiss what he says, even absent hard evidence. We all know that there is a lot of unknown with regard to these TBD's.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Isn't he the 'only' pediatric Lyme doc? Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Alv
Unregistered
posted
tickbattler !
You are not lying as I have heard the same thing MYSELF .
But when my son was very sick ( he had duncani ) but we knew back than only for MICROTI and now I know he has divergens as well.European strain .
He fought microti -mainly with artemisin as MEPRON with ART tested all the time negative.My nd would say is not killing it.So almost 2 years ago when my son was 7-8 ..we tried mepron and azithromax but did not helped and I included artemisin based on MY ND .
later based on the best doctor on treated coinfectiosn..we increased artemisin .WAS tough and scary as my son had 3 babesia and A FULL LOAD of bartonella henselae.I was awake all night on top of his head giving him many suplement to keep hos blood flow.He was at teh edge -period.MEPRON alone and azithromax would have done nothing to him.
The addition of stuff that I HAVE to give my son from MY ND saved him.We changed the protocoll al the time and made sure all the organs could handle the die off inspite of his organs BEIING terrible toxic.He was bitten on summer over and over and born with FULL load of babs ...
anyway -homepathic formulas had also combo of many other herbs to address babs and keep liver and kidney open and lymphatic system .He also was taking RECHStregulat -enxyme 3 times a day .Very high .His body needed it.I used to get it from family shipping it to me from germany.
OK sicne I test myself now and I am very confident..I found out that HIS MICROTI was not gone but was somewhat 10 % hanging.This is not what I worry as DUNCANI is the worst of all.
I have not posted lately as I am killing it in my body myself and MY protocoll is VERY strong.
Is working .In 3 weeks I reduced it from 100% ( 3 babesiaas as well) to down 30%.
I found out that Dr J can put kids in MALARONE , bactrim and CLARYTHROMYCIN ( or azithr but when ringing on the ears is a problem that is not a sugestion-clarythromycin is better).
OK ..MALARONE kills DUNCANI.MEPRON DOES not.ARTEMISIN from D r Z also .But to certain point.Coptis from Dr Z is very strong and now hits DUNCANI better artemisin.maybe due to the fact that might create resistance.
ARTEMISIN was excellent ON MICROTI and DIVERGENS.This two ones I am alsmot done.DUNCANI hanging as last .Even though this is the one that PUT me to DEATH BED 3 years ago as I have had DIVERGENS babs for 2 decades and microti over 10 years.
Clarythromycin , BACTRIM hit duncani as well and MALARONE is best from drugs on my testing and Dr J releases this protocoll as well on BABS if you tell him.
From HERBS , USe artemisin -if he is 8 years old that he need 8 Artemisin of Dr Z.COPTIS is excellent and he can take up to 4 a day .Allicin is ok but not much .It does not hurt to include there.I found that NEEM oil is great to rub it in teh hands and really reaches it through the skin in exstremeties where the HIGH DOSGAES of drugs or herbs whatever you use can get them
Seems that some hang in the muscles and bactrim seems to have high ability to get there. Also bactrim in combo with clarythromycin hits bart and ricketsia ( prowazaki and Q fever) based on my test.
Include hidh dosages of VITAMIN C to your son to help him detox.You can not get milk thisle while in it.I have given my son for very long homepathic formula to preapre his kidney and liver and lymphatic system before starting the BIG KILL.They need to be open and do the job well before killing babs.
It can make you very sick , enzymes need to be in ssytem to help with fibrins.
The kids can not use CRYPTOLEPSIS even though to my test does not come that STRONG...COPTIS test very high .I take 5-7 once and than at dinner as well.So my son takes 4 and he handles is better.
The protocoll I am doing is ONLY for 8 weeks.NOT 2YEARS like eveyr body does.Now way .Even the best Doctor kikcs it out in 8 weeks and in very HIGH DOSAGES of MANY THINGS...I am adding slowly many other herbs as I am testing..
The adults are suposed to take vitamin e , vitamin C and ala but I test negative on ALA and very high ON VITAMIN C every day -you need this to reduec the inflamation due to the die off.I also take flax seeds oil and fish oil ...
the key is to combine the dosages based on his body needs ..but also to make sure his kidney , liver and lymphatic system can handle it..is hard to say each person is diferent...but I test my son ..
He goes to school and jumps around and plays Wii and racing with cars while herxing
I make sue his body is on top form to handle such a die off....but this things will not come from the pediatrition..this are from many doctos that I have meet in EUROPE-and I carried them with me for MY SON SPECIALY......to help his body as his system can not detoxify and his liver second phase is very slow... see my point...
I am in a rush and not proofreading right now.IS like working 24 /7 treating and testing my son .
If I did know how to test I would not have found the truth .So for my daughter.She started having in 3 months a few chills than twithches....I never in million years thougth she had babs..as we treated her for bart and lyme..but once this were treated and not active..babs showed up and so a ricketsia ...
HEr load was very low..but I am not giving it a chance to get a hold on her...
DUNCANI is the worst of all.
By the way ..theileria microti that is NORTH AMERIKAS malaria created TONS of BLACK dots of floaters...this one causes this more than any other strain.
Gotta go.
Hope I am helping.Pm me if you need to ask ..I do not have time to come here often .
Finaly after 7 years I feel my shoulders are mine and my knees are stronger..I was running upstars in the house..when all these years I was holding into the wall and was a torture for me to get upstars from the pain in the knees and hips.My blue veins in my body are living for good.
My edema at my legs is GONE!!!!!My fet size is smaller now FINALY and hands getting back to normal.The puffines..is living as well.
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feelfit
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Member # 12770
posted
Tickbattler,
My doc, who has been around the block once or twice, and is also an infectious disease LLMD (ILADS) has also said that mepron can work as a cyst buster.
I tried flagyl and tindamax and did not tolerate.
He now has me on IV Rocephin and Mepron (to attack cysts) and zith...also hitting babs too.
Maybe it is just theory, but I respect the experience of my doctor and accept his opinion. Apparently there are some very good LLMD's who believe that this works.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
I don't believe Dr. J is the "only" pediatric Lyme Doc. He is just the most seasoned and most well-known. If we continue to see him as the only, the other brave LLMD's who are willing to see/treat kids continue to be discounted.
He won't be around forever folks. We have to trust other LLMD's to build a pediatric practice. Yes, while practicing on our kids, but what choice do we have?
No, Dr. J. Is NOT the only pediatric Lyme Doctor. There are a few brave folks out there treating kids and treating them well.
Posts: 564 | From Tick Hell | Registered: Oct 2008
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tickbattler
Unregistered
posted
Thanks Alv and feelfit for your vote of confidence on the "Mepron/cyst" issue! I didn't realize this was such a touchy subject...but it's good to hear that other experienced LLMD's believe it to be true.
Alv - thank you so much for your detailed response. It is wonderful that your son is doing so well now. I hope you turn the corner soon too! I know we have spoken in the past and would love to talk more but unfortunately my pm box no longer works. If you have time, would you mind e-mailing me at [email protected]? I would love to hear what you think about my son's current protocol.
While one of my boys is finally making a turnaround, the other is really having a tough time now between his OCD and manic behavior getting worse and also his babs duncani symptoms. I really think we need a change in the protocol.
Seek- Of course Dr. J is not the only LLMD treating children. I can think of 3 within a hour of me who do so.
However, he has probably been treating children the longest and therefore has thousands of patients that in a way form his own "clinical study" which he can use to guide his protocols.
Almost every time I am there, he has a pediatrician shadowing him and learning from him so there are others building pediatric lyme practices.
posted
Tickbattler! Your BOX is full .You need to clean it !
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Wow, that is surprising to me that Dr. J uses Malaone/Biaxin/Bactrim on children, because I have never heard anyone around here say their child was on Malarone. That is good to know.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
Yes, malarone can be used in kids. My adolescent was switched to malarone after hitting a plateau on mepron.
Posts: 170 | From New Jersey | Registered: Jun 2008
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tickbattler
Unregistered
posted
Hi Alv -
In my note above I mentioned that my pm box does not work. I have asked the lymenet staff numerous times to fix it and I guess it's not happening.
Do you mind e-mailing me at [email protected] so we can communicate that way?
posted
HI tickbattler..Now I recall that you wrote me a while ago and I never responded to you .I still have your PM.
I skiped the Pm box..though as I read it in a rush ..
I just emailed you .Yes the malarone was mentioned for my son since 2 years ago ..so he does use it and MY SON used bactrim as well 2 years ago ..so Dr J releases this protocoll if you ask him to put into it.
MALARONE has many advantages...as covers plasmodium , diferent unknown protozoas, hit the CYST of theileria microti that mepron does not , Toxa as well..so is much better than MEPRON ...
bactrim in combo with azithr can cover the gram negative bacteria , ricketsia, Q fever, also keep in check babs and bart....so the combo bactrim , azithr ( or clarythromycin ) and malarone as DRUGS is better...but if you go for herbs..COPTIS, ALLICIN, ARTEMISIN ( Dr Z).. can be given to the kids as well..they are as cyst buster when Artemisin kills the free forms
Artemisin get a boost when taken with a few drops of GFS exsract that serves as cyst buster for babs as well as lyme...there are many herbs that are really good and can be used..
the ones that my son has for kidney and liver from my nd have other herbs on it as well..so all he did have helped him !
Everything was given to him only by testing if his body needed it or not..WHEN he was testing negatie everything was stoped and swithced the protocoll.That is how he is getting his life back .
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
So....has anyone actually gotten rid of babesia ducani?
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
I hope so.....
God help me if not.
up???
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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Alv
Unregistered
posted
tickbattler I answered you
Yes babesia cause the eye light sensitivity ...
My daughter just started lately to complain about it..and the babs showed only the last 2 months she had no symtoms whatsoever before...but less infections with babs strains...
Me and my son have 3 babs so we were hiding inside the house long time before we knew about it
I have been able to walk out with no glases at all and have a wide open eye( not wrinked or squized ) to see in distance and in the middle of the day .BABS seems the only one to still hang now high on my eyes...FINALLY my face belongs to me.....
Seems that duncani diferent from other strain coveres the frontal part 0f the face like forehead , eyes, chiks , teeth and tmj more than 2 other babs...and this is the one hanging around longer!!! Time will tell!My back of the head has been cleared and neck as well( where DIVERGENS has been all along ) .
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tickbattler
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posted
Alv - thank you so much for your responses...I will send you another e-mail soon with more questions if you don't mind!
That is so interesting about the different symptoms you are seeing associated with the different babs infections. My son used to complain of pain in the back of his neck, but now that is gone. Perhaps the many months of Mepron/art helped that.
He never tested positive for other strains but probably had them.
He still has light sensitivity.
He has complained of pain around his eyes over the past few months, but hasn't mentioned this eye pain since starting rifampin almost 2 months ago, so I am thinking this pain was bart related.
Just curious, how do you know the divergens has cleared? Is this through your own testing?
posted
Pain behind the eyeball is BART BIG TIME.Add hh to make sure you catch it well.
YES based on my own testing..still some cyst though around my heart tissues.
I turned around and so my kids since I started having great answer.No need to go to my ND and LLMD for the testing as last time I challenged them and I was right ..been right for a few months..and search all day long for my health and for them I am still a patient that was more severe than anybody else..and overcome faster than others that still carry portals and IV in their nody( chest) and still are in treatment for over 5 years.
They can not even be off antibiotics a couple of weeks.Not only that but when I talk to them MOST have not done much of reading or still think that they have no parasites , no mercury no other problems.. I never chased ONLY LYME...never.I willeven probably say OUT LOUD "I wish I had JUST LYME".
Is way more than that and started since the day we were born and carried all the "DEFECTS/Errors" from our previous generation that caused damages to our DNA and than we added up some more damages due to vacines , toxins in environment , dental work , traumas, and more infections....etc
You have to address them ALL!!!!And probably start from there .
I also have noticed that the bugs communicate..and once you reduce one enough and another...etc ..over in time when you retreat the it again will leave quicly as the communication and holding each other has been interupted and they no longer are strong.
That is WHY combos address many things at the same time.HERBS are PERFECT and help way much more ..if knowing the right one..to take.
My son still has the back head pain and is due to babesia.Mine left thank GOOD !Frontal lobe eyes are where is hanging.I can not complain as I ended up on glasses that change percription so quicly and than with NO NEED of glasses anymore.
HAD the visit at the doctor and he knows my story -HMM european DOCTOR and we can talk ( off records) in LYME language and aside INSURANCE politics...and he said MY eyes are perfect and better than others in my age.
Also tickbattler...my shoulders finally feel that are mine...after 20 years.
I am sure that the treatment that he did helped your son but DO not think is gone for good and watch out as it might come right after the bart is under controll..been there and that is exactly what happened to my entire family. retretment is very advisible in both ..to reach the exstremeties...
BABS and bart love feet and hands...this is the last place that they will live...
READ miculs post about babesia...that is so true as that is what I find as well.The more busg you leave when the immune is still not recovered ...than relapsing will accur sooner or later.
Since I test myself I progresed tremedously ..and so my kids that comparing to otehr kids that go to Dr J should have stayed 5 years in Antibiotics to reach where he is now.HERBS and SUPORT organs and HOMEPATHIC formulas have been non stop in his system all along ..and all types of binders as well as rechtregulat..
HE still takes it as he has lack of enzymes productions that does add some more problmes..having all the inflamations in the body and on top of this he also has second phase of the liver slower than the first one.
Righ now he is in sauna.30 minutes daily swetting and drinking tons of water and swetting while I am typing.
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tickbattler
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posted
Hey Alv - thanks! I sent you an e-mail a few days ago in case you haven't checked....
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
The babesia book by Dr Schaller says Mepron is better than Malarone but that ducani is very difficult to eradicate.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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Alv
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posted
Tickbattler just sow your email.I responded you!
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