posted
I'm confused,can anyone give answers? I got a positive for lyme 3yrs.ago, and went to an Infectios Disease Dr.and they said negative. I then asked them to fax blood work and it shows three bands positive. They said you have to have all 5 bands for it to be positive. The wen to a neurologist and since I have many lesions they said start Copaxone now, so no new ones appear. So, now I'm on Copaxone and antibiotics. They said that it is fine to take antibiotics with the Copaxone. It doesn't have a steriod either. Confused, because the neurologist said I could have both. Does a disease,like lyme bring out Ms symptoms? I read on the internet somewhere that they believe that it comes from a disease or virus.
Any info. would be great and appreciated Thanks Posts: 24 | From lymeland | Registered: Sep 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I know I've seen this exact post a dozen times - just worded a little differently by different people.
So, you are not alone in what you've been told and what is going on.
Lyme can cause MS. But not all MS is necessary caused by lyme.
If you do a search here even with just "MS" for the medical forum, you will find many great threads - and I think someone who recently also was taking Copaxone, too.
You can also Google "Borrelia, MS" and find many examples where treating lyme resulted in the "MS" symptoms diminishing.
If you go to www.ilads.org - ILADS - and search their articles for one by Goldings "Controversies in Neuroborreliosis" you will find a fabulous article, too.
posted
I was first dxed with MS in Dec. of 07. I was on Copaxone for one year, and continued to decline. I then found out in Sept. of 08 I was CDC positive for Lyme, and started IV ceftriaxone. I believe you can have Lyme induced MS. My LLMD gave me the option to stay on Copaxone whilst treating with abx, but I chose to go off for a while. God bless you.
Posts: 374 | From United States | Registered: Nov 2008
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posted
Find an LLMD right away!! You need a dr who knows how to treat this longterm.
The lesions of "MS" often disappear with Lyme treatment.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
lymeherx, here is a very good News story video on Lyme, and it covers at least one person who was misdiagnosed by 4 different experts with MS, but got better once they got properly diagnosed with what was causing it, and treated their Lyme:
**From ABC TV 5, in Boston, MA, Chronicle HD. Originally aired Tuesday, April 21: "Ticked" (four parts - runtime 20:40 minutes)
Others have already explained it well, but I will try to put it in my words as well. MS is a set of symptoms that can likely be caused by several things. Lyme definitely has been shown to cause all of the markers of MS, from lesions in the brain and spinal columns on MRI imagery, to the "oligoclonal bands" in the CSF, as well as the symptoms of MS.
Since you have Lyme bands on your Lyme test, it is the logical step to go to a Lyme specializing Doctor (LLMD) who can evaluate your condition, consider all the possible factors, and treat the Lyme correctly to bring you into remission.
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes, Lyme induced MS. Been There.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
Lyme is caused by a specific spirochete, and there is some not so conclusive evidence that MS may be caused by a similar but different species of spirochete.
If you are not sure which is causing symptoms, a good middle of the road treatment would be Low Dose Naltrexone. It halts increasing MS symptoms, and will strengthen the immune response for Lyme Disease.
posted
I was told 11 years ago I had "probable MS", put on Avonex (DON'T TAKE THAT, it's an interferon), quit 2 years ago when I started investigating Lyme.
Finally got a positive Lyme diagnosis, but at the same time experienced more MS lesions. So I decided to take Copaxone while treating the Lyme. I figure that no matter what caused it, I have demylenation in my brain and I can't afford to lose any more of the gray matter! Like Pinelady, I believe the Lyme induced the MS for me, and am hopeful that the lesions will go away with treatment.
In the meantime, to reduce the chances of more lesions forming, I'll take the shots. Actually, time to go do the shot now....
Good luck, and definately get a good LLMD.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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