I am 23 years old and was diagnosed almost 3 years ago with idiopathic transverse myelitis. While in the hospital paralyzed from the shoulders down, I was treated with IV antibiotics and steroids for the inflammation in my spinal cord, I and was tested for everything, including Lyme, but no cause was ever found.
Before becoming ill, I was a completely healthy college student. Now I am numb on most of the left side of my body, and I have chronic fatigue. Anxiety is a daily battle, I have random shooting pains in different parts of my body (mostly upper abdomen) and I have muscle spasms in my legs and arms. I also have to take medicine for over active bladder. I feel like a 23 year old senior citizen (no offense to the older members!)
I would be content with diagnosis if it was not for my experience with Lyme as a child. I was treated for Lyme when I was 9 years old. After a vacation in Arkansas where I was bitten by a tick on the shoulder, I developed a lot of the early symptoms of the disease. My pediatrician tested me for Lyme, but the test was negative. I was treated with antibiotics just in case and eventually got better. I never thought about Lyme Disease again until this mysterious disorder, TM, entered my life.
I was just wondering if this could possibly be Lyme even though I've tested negative twice, 11 years apart.
Posts: 13 | From Texas | Registered: Jun 2009
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posted
TM was what my neuro dxd before she ran other tests. I also have the over active bladder problem.
BTW there isn't a test that can tell you you don't have Lyme. You need to find an LLMD. Go to the discussion board on finding a doctor and post. Great people here will guide you.
Good luck.
Amy
-------------------- Amy
Diagnosed April 29, 2007. Posts: 136 | From Joplin, MO | Registered: Apr 2007
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posted
I hope I don't worry you but my sister was diagnosed with the same thing..it turns out that she has MS.
They thought she had Lyme because of her symptoms and ended up in the hospital paralyzed from the shoulders down one night. They gave her steriods IV to help with the inflammation.
It took them 3 years but finally last summer she was diagnosed. She has been on daily injections since and is doing extremely well.
She is now back to a job and is doing much better than I am.
Posts: 343 | From North Carolina | Registered: Oct 2008
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