posted
I have noticed that when I have a drink or 2 I sometimes get a headache.
The weird thing is that the next day I tend to wake up a little less foggy for the first hour or so.
I am interested in others reaction to drinking with it.
Posts: 36 | From Dallas GA | Registered: Jun 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Before most lyme patients even knew exactly what was wrong, it is common to hear that they became terribly intolerant to even a few sips of wine or beer.
Alcohol is absolutely forbidden for lyme patients. It has many damaging effects and makes treatment all that more difficult while also further stressing the liver and brain cells. In addition, combining alcohol with medicine is even more dangerous.
Are you being treated by a LLMD? If so, they usually go over all that. It's in Dr. B's guidelines, along with other self-care details.
Dr. Burrascano'sTreatment Guidelines (2008) - 37 pages
From page 27:
CERTAIN ABSOLUTE RULES MUST BE FOLLOWED IF LYME SYMPTOMS ARE TO BE PERMANENTLY CLEARED:
1. Not allowed to get behind in sleep, or become overtired.
2. No caffeine or other stimulants that may affect depth or duration of sleep, or reduce or eliminate naps.
3. Absolutely no alcohol!
4. No smoking at all.
5. Aggressive exercises are required and should be initiated as soon as possible. [note on p. 31: no aerobics, though, until better]
6. Diet must contain generous quantities of high quality protein and be high in fiber and low in fat and carbohydrates- no simple carbohydrates are allowed. Instead, use those with low glycemic index.
7. Certain key nutritional supplements should be added.
8. COMPLIANCE!
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Also see pages 31-32 for LYME DISEASE REHABILITATION.
Excerpt: " . . .This T-cell depression is more pronounced after aerobics which is why aerobics are not allowed. . . ."
- with much more detail on how to go about exercise in a safe manner and why rest days in between are required.
=====================
This book, by an ILADS member LLMD, holds great information about treatments options, support measures and self-care:
posted
Thank you. I am new to this and still adjusting to the changes in my life, mostly all the limitations.
I helped a man once that became severely disabled, I realized that the hardest thing in the world must be learning to be disabled and depend on others.
I was right, it would seem as though life as I knew it is over.
Posts: 36 | From Dallas GA | Registered: Jun 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
Before I knew I had Lyme, back in the days when all the doctors said I was emotionally unstable instead, I would occasionally enjoy a glass of white wine when we went out to dinner.
But eventually just the thought of wine made my head hurt and my stomach ache. I thought I had developed an allergy to it so I stopped ordering it.
Now that I know what is wrong with me and have learned that alcohol intolerance can be a symptom of Lyme, I realize what was happening.
I don't mind, though. I actually prefer iced tea and sparkling water. Plus the wine is really bad for yeast and definitely can not be taken while one is on abx.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
I drank every day for 4 months before I knew what this was making me sicker and sicker, and couldn't understand why every day after 3 beers I felt like an 80 year old man who drank 15 shots of tequila the night before. I wonder how much I furthered the progression of this disease by not knowing what was going on and doing this.
Quitting alcohol completely as a lyme patient = one of the best moves I made.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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posted
Constant headache and intolerance of alcohol have been my constant companions for over 25 years.
Posts: 37 | From Athens, GA | Registered: Jun 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I could drink two glasses of wine and end up with a three day hangover prior to diagnosis.
Now that I've been off meds for 10 months, I have a drink on occasion but not often and not very much.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I had the same problem before I knew I had Lyme. I would go out with my friends and they could drink all night. I used to be able to do that. We are the same age so didn't think it was age.
I would get the several day hangover too. But mostly just felt different when I would drink. Like one drink and I felt drunk. More like drugged! It was strange and it felt weird.
I don't drink anymore. But hate going out to bars or to a wedding where everyone else is drinking. I never knew how annoying people were to others who don't drink! Just want to post a big sign on my head so they will leave me alone! UGH!
Oh and it is really funny/annoying to see others drunk while you are sober. Yeah I'd rather stay home! But I do miss the taste of wine and a really good dark beer
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
quote:Originally posted by Amy C:
I don't drink anymore. But hate going out to bars or to a wedding where everyone else is drinking. I never knew how annoying people were to others who don't drink! Just want to post a big sign on my head so they will leave me alone! UGH!
Some neighbors invited us over for a dinner party a couple of weeks ago. There were three other couples there and the highlight of the evening for all of them was drinking some fancy pink drink. I forget what they called them.
Anyway, they kept offering them to my husband and me and we kept declining. They would not drop it. Then they would offer us beer and wine. We kept thanking them and saying we were fine with water. It really did get annoying.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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POMEGRANATE JUICE
(unsweetened and with no additives). Take it where ever you go. Add a touch of stevia (a sweetener from a plant) and maybe a splash of lemon and you are good to go. You could add some soda water, too.
You'll be the healthier ones at the party, in many ways.
If you frequent a particular eatery or bar, ask them to carry it. Or ask for links so that you can read labels for what juices they may already carry. Or they may be okay with your bringing in what you need for yourself as long as they get a reasonable tip.
I used to give them a tip just as if I had ordered a real drink so that their wages would not suffer but I still got what I wanted because I brought it with me.
posted
HMMM I drink six to eight beers a day, I don't think I can have lyme then, all I showed was band 41 and positive bart hensalea antibodies, now I am questioning that test as well. Seems like no one with lyme is able to drink alcohol. Also the antibodie tests don't really tell you anything other than possible exposure, they are not proof of an active infection, its basically a clinical diagnosis unless your one of the lucky ones that light up IGM and IGG on a western blot or get a positive PCR results
I go for a second opinion on thursday, I hope I don't have this disease.
All I have a majority of bart symtoms, that is it and they can be caused by any number of other things like B6 deficiencys
I don't know how I can treat it anyway, I did 6 weeks of Ceftin 1000mg, it did nothing, like a sugar pill, gave me a dry unproductive cough.
Switched to Bactrim felt like I was on speed, looked it up, common side effect, quit after 2 weeks. Leviaquin blows out tendons, I wouldn't touch that with a ten foot pole and rifarampin is side effect city too.
Maybe Dr G was wrong, sure hope so...
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posted
I've noticed a growing intolerance over the last few years, assumed it was due to getting older! Doesn't take much at all to give me a horrible hangover. Haven't started my meds yet, am having trouble getting used to some of them, but have not been drinking either...
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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posted
losferwrds -- I have lyme and do not have the same reactions to alcohol as everybody here. I can drink with the best of them with no hang over! My last drink was 2 days before my 1st LLMD appointment.
With that being said, since entering abx treatment 6 months ago -- I have had to say goodbye to alcohol, and it has been difficult, don't get me wrong.
But I tell myself, the more I stick with the program, the quicker I can be done treatment and get back to my martini's & wine....ummmm good!
Posts: 379 | From Sydney, Australia | Registered: Nov 2008
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posted
I'm more like asummers. I quit drinking before my Lyme diagnosis, but more so because I was trying to eliminate any negative behavior that could even possibly be contributing to my health problems.
Though not really intolerant, I lost my taste for it as more and more weird symptoms emerged. But for a long time into my illness I still enjoyed drinking.
Now that I'm diagnosed, I continue not to drink because of course it wouldn't work with the abx.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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