Fighting Lyme for 20 years was too easy so I decided to get this one too!
Papillary Cancer of the thyroid, several locations.
I have no idea if this is related to my MP experience from 2004 to 2006. I know others have voiced concerns so I am adding my data.
I'm seeing the surgeon tomorrow and complete thyroid removal is in order. Prognosis at this point is good.
Advice from other thyroid cancer survivors is appreciated.
Posts: 252 | From NJ USA | Registered: Mar 2004
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I'm not a cancer victim, but I wanted to tell you I know someone who had thyroid cancer, had her thyroid removed, did some kind of chemo/radiation (don't know which, but lost her hair), and is fine today. She was really sick. It took her a while to get the thyroid meds balanced, but like I said, she's doing well.
Sorry about the diagnosis.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
quote:Originally posted by dsiebenh: Me!
Cancer. Probably the the most frightening word a person can hear. I'm so sorry. My prayers and best thoughts are with you.
Please keep in close touch with us.
ping "We are more than containers for Lyme (or Cancer)
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
Check out Low Dose Naltrexone as a Cancer treatment, and more importantly a preventative.
posted
My mother had her thyroid removed 10 years ago for the same reason.
She sees the specialist (endocrinologist, I think) twice a year now. I forget if she ever saw the surgeon after he was finished. Probably not.
She has done very well. I wish you the same outcome.
Posts: 797 | From New York | Registered: Feb 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i will be praying for you. to have both is something i can't imagine.
a positive attitude will help everything.
praying for ya...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Just wanted to add my prayers too...I'm so sorry you're having to deal with that on top of Lyme. Is your Lyme under control right now? Keep us posted.
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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posted
Good thoughts and very best vibes to you and a uper fast recovery!!!! Sincerely Ira
Posts: 19 | From ILLINOIS | Registered: May 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
That type of cancer has a extremely high rate of success. I had a friend who had it done years ago and she is fine.
Sending blessings your way....... Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Thyroid cancer is associated with myasthenia gravis, which can be induced by certain meds including antibiotics from what I remember.
You might want to look into medicinal mushrooms. Many of them have really potent cancer-fighting properties.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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bettyg
Unregistered
posted
ds, i'm so sorry to read of your thyroid cancer! i've heard good news about it being one of the easier types like it's mentioned above.
ds, you might get more people's attention if you edit your subject line adding THYROID CANCER; anyone else here with that?
just click on pencil, 3rd icon to right of your name, which opens up subject line and body text. click edit send when done.
best wishes and we're here to give you 23/7 support also as you face another journey you didn't plan to walk on.
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I've gone downhill pretty fast in the last year and now it looks to me to be more thyroid-related than Lyme. Severe energy issues, lots of walking problems. Yet my blood tests always show normal, including thyroid.
We'll see what the surgeon says today.
Posts: 252 | From NJ USA | Registered: Mar 2004
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posted
Have had both Thy Ca and Bb dx for a couple of years now. Had both sides of the thyroid removed as nodules were biopsied and cancer was found.
At the time did not know I had Lyme and thought all sxs were related to Thyroid problems....not true. I am monitored by an endo that's aware of my Lyme, although not knowledgable really.
After removal I didn't have to have any chemo but, they did radiation to ablate any remnants of Ty tissue. Rec'd Bb dx later that year.
Please feel free to ask me any questions you may have.
I will keep you in my prayers,
Blessings, Tic
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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quote:Originally posted by LymeCFIDSMCS: Thyroid cancer is associated with myasthenia gravis, which can be induced by certain meds including antibiotics from what I remember.
You might want to look into medicinal mushrooms. Many of them have really potent cancer-fighting properties.
I think you mean Thymus cancer....
Posts: 80 | From Canada | Registered: Mar 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I had mine removed Jan.06. I will tell you the
most important thing is getting a great surgeon
who has done hundreds if not thousands of these.
I took a 3 hr drive just for this. He had to
dissect all my neck to get it all out. I did my
research and was prepared for the worst. As it
would have it it was all benign. But I did lose
one parathyroid to disease. So this is whats most
important-having a surgeon who can identify and
get it out. And place the ones(parathyroid) that are not- in
position to work. Very important.
Would you consider sending Igenex a sample for
testing? I do think total is the way to go so
don't let anyone tell you otherwise. Why? Because
I knew a man who did not go total and he battled
it for 5 years when it went Anaplastic.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I am so very sorry to hear this. You and yours are very much in my thoughts and prayers.
I do so wish other MP-ers who have contracted cancer would share openly so that patients might be aware of all possible risks, which are nay-sayed and glossed over at the MP website. Whether or not there is an official link to the MP and cancer yet, I think people should be aware of all the MP patient data, especially those patients who have not had good outcomes.
I thought you and others might be interested in this link from Dr. Joe Mercola's website:
Catalase is the anti-oxidant enzyme that is supposed to deal with H2O2.
Google: retinoic acid thyroid cancer
( RA is helpful)
Survival:
"The overall 5-year relative survival rate for 1999-2005 from 17 SEER geographic areas was 97.3%.
Five-year relative survival rates by race and sex were: 94.8% for white men; 98.2% for white women; 91.4% for black men; 95.5% for black women."
The above are really encouraging numbers!!!
Good luck and God Bless.
[ 06-14-2009, 05:58 PM: Message edited by: Marnie ]
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Yes. I was going to suggest the avoidance of Vit D which MP promotes. Vit D is turning out to be a superhero against cancer.
Good luck to you and thank you so much for being so thoughtful as to come forth with your illness for the benefit of others.
Susan
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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quote:Originally posted by Marnie: [QB] Likely not related to Benicar, but perhaps to lowering vitamin D which IS very very cancer protective.
I would agree.
I'll be praying for you and hope your treatment will go very well! Take care and be sure to keep us posted on your progress, OK?!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I was curious about this so I did some searching.
It turns out there are several documents cases of
Syphilis being found by thyroid goiters. So it may
be very important to have this literature to those who know it all.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
It works in something like 1/400,000th of a SECOND!
It is our most abundant anti-oxidant enzyme.
If deficient, Solaray makes SOD which contains all 3 anti-oxidant enzymes...
Our body is truly amazing...making proteins/enzymes/neurotransmitters, breaking them down, making proteins, etc....incredibly fast all the time.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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posted
Just an FYI, no it IS thyroid thymoma (tumors) that are associated with myathenia gravis -- I just doubled checked. If you have extreme weakness and trouble walking you might want to rule out MG.
I didn't know about the Marshall Protocol/cancer possibility -- it's really interesting/disturbing to learn about this.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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I had my thyroid removed last Friday afternoon and was home Saturday morning. The surgeon did an amazing job - one stitch externally and 2 clamps internally. Almost no swelling or physical discomfort. The anesthesia, that was another story.
The chemical changeover in my body is aggravating the Lyme but the important thing is that the doc saw no disease spread beyond the thyroid, even to the local lymph glands. This is really good news. The tests will tell the tale.
In 6 weeks we get radioactive iodine to kill any thyroid tissue remaining, then it's synthetic thyroid meds for life and biannual monitoring. Hopefully the iodine test does not discover any cancerous thyroid tissue elsewhere... but these results are about as good as it gets a week after surgery.
Now back to fighting Lyme...
Dave
Posts: 252 | From NJ USA | Registered: Mar 2004
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