posted
How many Lyme patients use it and has it been researched to be safe? What does it do for the immune system?
What symptoms have people been finding it relieves?
Thanks!
Chris
Posts: 770 | From USA | Registered: Jul 2006
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I am two days into it with new LLMD. Have been taking it at night with no problems. Could be my imagination, but I am not having nearly as much muscle pain in my back these last two days. Very vivid dreams.
My LLMD likes it.
Posts: 3528 | From US | Registered: Apr 2007
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D Bergy
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Member # 9984
posted
LDN is probably the safest drug in the pharmaceutical world. It normalizes or boosts the immune system. There is differing opinions on which it does. I think it does both to a degree.
I use it for Crohn's disease. So far so good.
I loved the vivid dreams. Too bad they stopped after a while.
Dan
Posts: 2924 | From Minnesota | Registered: Aug 2006
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
I don't seem to have candida issues anymore since I've been on it. If I go off of it for a week or two I seem to start having candida recur- that might just have been coincidence but I'm pretty sure that's what I experienced.
-------------------- Symptom Free!!! Thank you all!!!!
posted
I just got a script for LDN at my appoint. Haven't filled it yet, will be interested in seeing what ppl have to say!
Posts: 847 | From upstateNY | Registered: Dec 2007
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posted
If it interferes with your sleep in a long-term way (you don't adjust to it after a week or two), it can be taken in the morning instead.
The only downside to morning dosing is that you will be awake while the naltrexone is antagonizing the opiate receptors which can have negative effects on your mood and state of mind. However, you do adapt to that effect as well over time so that eventually its barely noticeable.
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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posted
When I was living in NYC, I saw the big Low Dose Nalxtron Doc (probably 14 years ago). The drug caused some of the worst wake up screaming nightmares, torture, you wake up screaming and you're still in teh dream. After a few nights of that I had to get off. He switched me to a liquid where I could takle an evel lower dose. It's so far back, I didn't stay with it. I think it made my allergiess worse.
Posts: 462 | From Newnan, GA | Registered: Aug 2004
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My son is starting his third month, it is so slow acting it is hard to tell just how much effect it has had.
He had insomnia and constipation when he started, both resolved after about 4-5 days. Other than that, no problems.
Posts: 263 | From Capital Region, NY, USA | Registered: Jun 2008
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Jill E.
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Member # 9121
posted
One of my doctors wants me to try it to calm down the autoimmune attack on my thyroid. I already had Hashimoto's thyroiditis pre-Lyme, and Lyme is just making thyroid issues go out of control, no matter how much we change dosing and thyroid meds. He thinks it will help modulate my immune system.
I haven't tried it yet because I am concerned about the sleep issues - I'm already sleep-deprived from myoclonus. But I'm tempted to try it, starting low.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I dumped out half the capsule and then slowly worked up over a week to the 4.5. So far so good.
I read in Dr S's book that people who are going to benefit seem to do so quickly, his example was a patient who called him excitedly after a week saying how great he felt.
This is not me.....I actually feel like I'm herxing from it! But this could be cause immune system is stronger? Weird.
Posts: 3528 | From US | Registered: Apr 2007
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