posted
I moved this from the parasite thread into it's own thread.
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I have a 5 month old baby. A couple weeks ago she had a diaper full of what looked like worms.
Her poo was very watery so it was very easy to see them.
I was very concerned and took some pictures.
The next three diapers had the same worm looking things although there were fewer and fewer.
I went to her Dr. and was sent home with a stool test kit. Well, the results were NEGATIVE for parasites.
It doesn't make any sense. She isn't on solids yet and I am exclusively breastfeeding so it certainly wasn't from something she ate.
What else was it if it wasn't worms? Incompetent labs?
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I made sure when I did the stool test there were actual worms in the sample.
I even took in pictures of her diaper with the worms to show the Dr.
They didn't even bother to call me with the results.
I called a week later to see if the results were in and this was the conversation:
Nurse: "I am so sorry we didn't call you to give you the results. normally when everything is normal we do not call."
Me: "What? The lab didn't find anything?"
Nurse: "Nope, your baby is just fine."
Me: "My baby is NOT fine!!! There were WORMS in her diaper."
Nurse: "Do you still see any?"
Me: "No, not for a week now."
Nurse: "Well, if they were worms her systems must have "cleared them out."
WTF?????????
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If this doesn't sound too gross....could I send someone pictures of what I found in her diaper?
They really aren't too gross of pictures to me. It is watery baby poo with some squiggly brown things.
I just wanted someone else's opinion to make sure I am not out of my mind. (I am crazy though :-) )
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
HollyS,
I've never heard of a baby / toddler / child who didn't have pinworms, at the least. 5 months sounds rather young to me (not an expert here) but I suggest that you find your child someone who will treat for pinworms and others, if your present doc doesn't believe the pictures. The amount of infestation that you've described could be very serious.
Keep us posted.
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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posted
Yes, the Dr. said they are very common in children but not normally under 2 years old. They said they never see them in babies that young.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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posted
Is it possible that your body can rid itself of them?
Does she still need to be treated if I don't see anymore?
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
quote:Originally posted by HollyS: Is it possible that your body can rid itself of them?
Does she still need to be treated if I don't see anymore?
Holly,
I'm not an expert, but if it were my child, I would get a second and possibly third opinion on this from other M.D.'s.
I will venture to take a guess - I don't know if a baby of 5 months has the capacity (immune system) to clear the parasites with no assist. Does your baby have congenital LD? Worms do lay eggs and I'd seek out more help, immediately. IMHO...
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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posted
I don't know if she has congenital LD. I am on the road to confirm if I have it.
I tested positive 2 1/2 years ago but was told at that time I didn't have LD.
Now, still sick, I have been researching it and it sure does sound just like LD.
I have a new Dr. (not a LLMD) running tests for Lyme, Ehrlichiosis, and Rocky Mountain Spotted Fever.
He thought it sounded like Lyme too. Although, he is testing for Lupus too.
My baby, who is 6 months old today, had a lot of food allergies/sensitivities, lots of mucus in her poo and has vomited several times over the last few weeks.
Outside of that she seems very happy and healthy. I just have this nagging feeling that something isn't right.
Can the worms be from congenital LD?
Also, I looked up pinworms and they are white. Her worms were brownish redish in color.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
quote:Originally posted by HollyS: I tested positive 2 1/2 years ago but was told at that time I didn't have LD.
Now, still sick, I have been researching it and it sure does sound just like LD.
I have a new Dr. (not a LLMD) running tests for Lyme, Ehrlichiosis, and Rocky Mountain Spotted Fever.
My baby, who is 6 months old today, had a lot of food allergies/sensitivities, lots of mucus in her poo and has vomited several times over the last few weeks.
Outside of that she seems very happy and healthy. I just have this nagging feeling that something isn't right.
HollyS - PLEASE, do yourself and your child a favor and get yourselves up to see Dr. C. ASAP and get the both of you taken care of, properly, NOW! Your non-LLMD will not only waste your money, but could cost you and your child what health you have left. CALL DR. C.'s OFC FIRST THING MONDAY MORNING!
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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posted
Ok....I just called Dr. C and they are closed on Fridays. Darn. No wonder you said to call Monday. :-)
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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posted
Do you think the worms could be from cong. LD?
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
quote:Originally posted by HollyS: Do you think the worms could be from cong. LD?
Holly - I don't know what's wrong. You need to find out. Do yourself and your baby a big favor, go to the ped that seems real concerned, then, you both should go to Dr. C.
Please don't try to treat your child yourself using any OTC or on-line anti-parasitics.
Will be thinking about you 2 this weekend. Gotta go for now but I know there's some good people on this forum who can assist you. Everything will be okay. Okay? It will.
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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glm1111
Frequent Contributor (5K+ posts)
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posted
Holly,
Really glad you got a new peditrician for your baby. Save the specimens if you can. Sorry you are going through this. Post the pictures, but put a warning in the title for people who get queezy. Keep us posted,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Oh...not trying to treat her myself. Dr. wants me to keep a poop journal. How fun.
We see the new Ped in a couple weeks for a well baby visit. They want to keep close tabs on her in the mean time.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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posted
Yes, Deb. They want to hold off seeing her since she seems well right now. They said it would be more effective if they see her when she is symptomatic.
I am ok with that. I have to keep a journal on her poop and take pictures to show them.
I got a call from my Dr. right after I talked to them and they said I tested positive for Rocky Mountain Spotted Fever. I wonder if that could affect her too. I still think Lyme is a possibility.
I will be calling a LLMD on Monday for me and the baby.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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posted
YIKES! Save the worms to bring to somebody to examine! Tell them to put them under a microscope!
Posts: 273 | From Banks of the Hudson | Registered: Nov 2008
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Carol in PA
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Member # 5338
posted
quote:Originally posted by HollyS: My baby, who is 6 months old today, had a lot of food allergies/sensitivities, lots of mucus in her poo and has vomited several times over the last few weeks.
My first child was breastfed exclusively until he was six months old. At that point I began to introduce solids.
He developed excema.
When my second child was six months old, I again began to give him solids. He developed excema.
I stopped the solids, and returned to breastmilk. The excema went away!
I did try solids again after he was seven months old, and he didn't have the skin problems.
Carol
p.s. Be sure to read to your baby every day! Babies can't talk yet, but they can understand.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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I am exclusively breastfeeding. She gets excema, upset tummy and spits up with different food that I eat.
I have pinpointed several foods that bother her and just don't eat them. They told me to introduce solids at 4 months but I refused.
I will be starting her on homemade cereal this week and will take it very slowly introducing new foods.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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bettyg
Unregistered
posted
holly,
were you the one who east FRESH SUCHI on a regular basis and have for YEARS?
speculation here ... but could the worms in you have gone to your baby congenitally?
i don't know anything about this, but just my gut reaction from seeing the photos & thinking you posted about loving to eat fresh sushi today. [group hug]
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posted
Dear HollyS, As bettyg said, sushi is loaded with parasites! There is a good possibility your baby got them from you if that is what you ate. I heard about a man in Japan who had a terrible headache, and they found a huge worm in his brain. The large amount of sushi he consumed had eggs and larvae that followed the blood flow up to the brain. They hatched and developed.
Fortunately, the surgery to remove the worm was successful. From the sound of it, your baby is able to push the parasites out. This is a good sign. As infants, my brother and I spit-up all formulas and had to be placed on 2 percent milk. Later, I was told I have Celiac Disease, and gluten must be completely avoided. If you have not considered that yet, you may want to. We all are sending good thoughts so your baby recovers.
posted
Yes, I love sushi. I don't eat it as often as I would like but I did have some while I was pregnant.
Most of it was cooked but I did have a few raw pieces.
I tested positive for a parasite a year ago but at the time didn't know the implications so did nothing about it.
Time for me to be retested and treated.
Jin, she does have a sensitivity to dairy, gluten , bananas, strawberries and tomatoes so far.
I am breastfeeding so have cut all of those out of my diet.
I am also gluten intolerant and lactose intolerant.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
HollyS,
You do realize that if you have Lyme that it can be transmitted through breast milk, don't you?
You've further described a history of vomiting and other sx's that could easily dehydrate this baby, among other things.
If you're comfortable waiting 2 weeks, hey, you're the Mom and it's certainly your decision. Quite a lot can happen in 2 weeks. Please don't be afraid to seek medical assistance if conditions deteriorate in that time.
Wishing you both all the best and much love.
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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glm1111
Frequent Contributor (5K+ posts)
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posted
Holly,
I agree with ping...also check out the symptom list for parasites at
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I have been in touch with her Dr. office about all this. The first Dr. office did a parasite test and it came up negative.
They blew me off telling me there was nothing wrong and don't worry about it. They also said it couldn't have come from me.
I fired that office and switched. I have already been in contact with the new office and they seem genuinely concerned.
They want me to keep a poop journal and note any changes as well as the consistency, etc. They also want me to take pictures each time.
Because I am not seeing any "worms" at this time and she doesn't have diarrhea or vomiting they want me to wait.
If anything at all changes they want me to call immediately and bring her in. They really want to see her while she is symptomatic. We had a very long conversation on the phone and that was the gist of it.
I am absolutely NOT ignoring this or treating it as a minor issue. I know something is not right and have started the process with the Dr.
The reason for the two weeks is that is when my next well baby visit is scheduled for. They will, however, see me sooner once her symptoms return.
Don't think I am taking this lightly. I am a huge advocate for my children.
Yes, I do know Lyme can pass through breast milk as well as placenta. I didn't think this was Lyme until recently.
I was convinced I had Rheumatic Fever by the ID Dr. so I didn't give Lyme another thought.
I felt better while I was pregnant so I thought whatever it was was fianally gone. It was right after I had the baby that my symptoms came back full force.
After another dose of amoxicillan they subsided but returned three months later. This is when I fianally started to seek another answer. This is when a friend brought up Lyme.
I had been tested for it in the past and tested positive. I do believe now this is the answer. I am making an appointment with a LLMD for her and myself.
Thanks for all the support and help.
Holly
[ 06-14-2009, 09:03 AM: Message edited by: HollyS ]
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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TO LIFE
Unregistered
posted
Yes, I love sushi. I don't eat it as often as I would like but I did have some while I was pregnant.
Most of it was cooked but I did have a few raw pieces.
I tested positive for a parasite a year ago but at the time didn't know the implications so did nothing about it.
Time for me to be retested and treated.
Jin, she does have a sensitivity to dairy, gluten , bananas, strawberries and tomatoes so far.
I am breastfeeding so have cut all of those out of my diet.
I am also gluten intolerant and lactose intolerant.
Dear Holly,
You mentioned you tested postive a year ago. Would you please share what parasite it was?
posted
Dear Holly, Your baby sounds just like me! I am also allergic to strawberries and tomatoes. I felt so stupid, because I have eczema really bad, but thought I outgrew the allergies. A friend of mine recently said those foods are high in histamine naturally, so this may explain it. You sound as if you are on the right track.
This new doctor's office sounds very thorough. I am glad you went with another physician. Parasites are bad about causing GI disturbances. Incidentally, bananas are also high in histamine, so your daughter may do well on a low-histamine diet. I cannot believe the testing you had done last year did not reveal which parasite you have.
Sincerely, Jin
P.S. I found your other thread with the pictures, and certainly would be worried about my child if they had that in their diaper. Your intuition as a mother will not steer you wrong.
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