posted
I was visiting with someone the other day knowing I had/have (don't know anymore)Lyme,
She said "you know Lyme is permanent".
I'm beginning to believe it is. Like MS, or osteo, etc.
Opinions?
I rarely post or even come on these boards anymore. Living in denial
Posts: 44 | From Oklahoma | Registered: Aug 2007
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bettyg
Unregistered
posted
if found early, get on antibtiotics LONG ENOUGH and continue them until you show NO SYMPTOMS, you can be cured in my non-medical opinion.
it goes for years until you get diagnosed correctly and put on meds; you hope to get into remission.
then it's like cancer rearing it's ugly head during a very stressful time, accidents, loved ones funeral, etc. and reoccurring during your bodies' weaknesses.
again, just my opinion from folks i've watched come back here and the above paragraph is exactly what happend to these members...
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Many believe that it is a permenant infection due to it's ability to go into cystic form and hibernate when threatened. Then come out when conditions are favorable.
There are others (mostly IDSA types) who think it is easily cured.
I believe that it's possible that some people could be cured. Others can't with current knowledge. Some variables are genetics, age, condition of the immune system, number and tenacity of other infections, length of time one has been infected before treatment begins etc.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I hesitated to read this book for a long time but, really it has hope. The author is very well and has been for a while. Each person's path is different so, while it may take a while, you can get better. It is possible.
Whether a cure or not, feeling better and maintaining a strength is something that many have done. If there is a flare, it's much easier to nip it in the bud but many can go on and lead good lives as long as they maintain good health practices.
posted
I think it's possible to get your life back.. I did .. but I don't feel that I'm "cured."
There is plenty of hope.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
The experience over the last 7 years of my husband, myself, and our three children is that it is permanent. But like others have already said....many people have it and control it and lead full lives.
Mary in Switzerland
Posts: 1034 | From North Carolina | Registered: Aug 2003
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posted
If it is forever, I want someone to shot me now!! Put me out of my misery, PLEASE!!!
Seriously, my lyme started with headaches and the fatigue. I always said, well my pain isn't as bad.
Now that I am treating, every single joint in my body hurts. Ankles, knees, hips, shoulders, elbows, and wrists. I have been treating for 8 months, I would have hoped to get a little better.
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I had undiagnosed lyme disease for at least 10 years. I finally found a lyme doctor who follows the Dr. Burrascano lyme treatment guidelines, and I got rid of my lyme disease.
It has been 4 years now since I finished lyme treatment and I am symptom-free, enjoying my life--the same life I had before lyme disease.
I have referred many friends and acquaintances to Burrascano type docs and they also have gotten well.
Dr. Burrascano is the world guru on lyme disease. His Guidelines are found here:
I suggest you read and study them. Then, find a lyme specialist who follows Burrascano.
Ask if the doc follows Burrascano when you call to make an appointment. If he doesn't, I would look for another doc.
By studying these Guidelines, you will see what good lyme treatment looks like. Here are some points from the Guidelines:
You must attack both the regular and cyst form of lyme simultaneously--requires 2 different antibiotics to do so.
You must test the patient for all co-infections and other physical ailments (thyroid, etc.) and treat everything the person has.
You must treat all co-infections (including mycoplasma, etc.) or the patient will not get well.
You must use Igenex for most of these tests--they are a tick-borne disease speciality lab in Calif.
You must use very high doses of antibiotics to kill the diseases (batericidal doses).
You must give the patient supplements, probiotics, herbs such as artimesinin if babs is suspected, and require adherence to rules such as low carb diet, no alcohol, rest, and exercise as the patient is able to do it.
You must treat at least 2 months after all symptoms have disappeared (if sick at least 1 year).
These are just a few of the important points you will see in the guidelines. You want a doc who does EVERYTHING Burrascano says to do. He treated lyme for over 25 years, and compiled what he learned so that other docs could benefit from it. Read it in his Guidelines.
I had lyme disease, babesiosis, and bartonella. Most of my friends had the same.
Don't be discouraged. But, it can take some work to find a good doc. And, a good doc won't be cheap. Be willing to travel.
The doc is the key to getting rid of this disease. You want someone with years of experience treating lyme patients and a good success record.
By the way, it may be technically correct that some lyme germs will always remain in a person's body (but your immune system takes care of them so they do you no harm). But, the same is true of chicken pox. So, for this reason, do you say that chicken pox is permanent? I don't think so.
Shingles are the chicken pox virus coming out a second time. But, nobody says that you can never get rid of chicken pox.
It's the same with lyme disease.
That's different from the on-going attacks of MS and osteo.
Posts: 9931 | From Maryland | Registered: Dec 2007
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