I just end up on the couch not wanting to deal with anything and hating this illness.
One thing that helps me is forcing myself to do something that I enjoy, even if it's just reading a book for a while (when my brain can handle reading).
Otherwise, my kids help a lot, since I want to teach them to enjoy life, but it's still hard.
You're not alone! PM me if you ever want to talk.
-------------------- Take care -kelly --------------- Posts: 330 | From TX | Registered: Mar 2009
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posted
Yes! It seems like as soon as I figure out one thing, something else goes wrong. Right now, I'm seeing two LLMDs, a podiatrist and a gastroenterologist, not to mention the chiropractor and acupuncurist. It's too much some days.
I usually call my mom and whine for a little while, which makes me feel better. THen I realize that somewhere there's someone who has a worse time than me - at least my insurance is covering almost everything and I can still work and my friends and family are available and as understanding as they can be.
If that doesn't work, I go to bed! Dogs and kitties help a lot, since I live alone.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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posted
YES. I think most of us feel that way. You can't do the things you used to love to do and it's a struggle to do the bare minimum just to keep clean clothes and food in the house.
Dealing with mixing medicines and all the supplments, IVS, doctors, insurance companies, work, and home is just overwhelming. It's like three full time jobs when you're not well enough to do one.
I do exactly what you're doing. I count my blessings and pray I'll be well again soon.
Hang in there.
Posts: 237 | From WV | Registered: Mar 2007
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posted
I am having a hard time. I thought after being diagnosed and seeing an LLMD, I would get better. It is 8 months later and I am beginning to wonder if I will ever get better.
If it wasn't for my husband and daughter, I don't know what I would do.
The thought of bearly hanging on to life every day is more than exhausting!!
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Yes, I am going through this right now. I just feel like I am never going to get well and I am so tired of the fight.
Of course I will never give up, but I have days where it is just almost more than I can deal with. I miss being normal.
I also feel overwhelmed because I do not have a CDC positive lyme test, so I have no way of knowing for sure 100% that I even have LD.
I think the uncertainty is an added stress to the already stressful situation of being chronically ill.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Me too. I often feel so sick and tired of being sick and tired.... and others around me, although trying to be supportive, can't really understand.
You only understand if you have this, I think, since we look ok and it may seem like we are just feeling sorry for ourselves.
Well, I do feel sorry for myself. But the suggestion to count one's blessings is a good one. I am grateful that this is something that can be treated, and people do get better.
We all just wish it didn't take so long and wasn't so confusing.
-------------------- Judy G. Posts: 122 | From Minnesota | Registered: Dec 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Every single moment of every single day.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
thanks for all of your input. wish i had more time to post and comment on the replies.
I posted a long vent of my own, but deleted it as I was upset. It felt good to get it out. HOwever, I found out that some of the things that I'd heard from people were inaccurate, changing the situation.
I'm happy there's a delete button!
All the advice was great. I will try that. And knowing that I'm normal, compparead to people dealing with these diseases makes me feel less like an oddball.
Hugs to you all!
Posts: 59 | From U.S. | Registered: Oct 2007
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lymeparfait
Unregistered
posted
I can relate to everyone here.
But know there is hope.
Try to learn what you can about detox from the die off. There are many here who can help you move forward.
This is what has helped me the most, after the lyme and co-infection treatments.
I am now lyme and co-infectin free. But am dealing with the residue of die off, candida and metals...and still sometimes overwhelmed.
There are layers...so be positive, and all of you are peeling the layers away, and they is health beneath it all.
linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Yes, we can all relate. It is overwhelming. Thank God for this site, it has been a lifeline for us.
People here are always willing to offer help and advice, even though they are not well themselves. Hang in there!
Linky
'Come to me all you who are weary and burdened and I will give you rest.' Matthew 11:28
Posts: 2607 | From Hooterville | Registered: Apr 2009
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