posted
This a quote from the president of the ISDA.
"There is no solid evidence of the existence of ``chronic'' Lyme infection.
Although we do not doubt that there are patients who initially were treated for Lyme disease infection and subsequently have ongoing, vague symptoms, we are concerned these patients likely are suffering from a different or new illness and are receiving potentially dangerous ``treatment'' rather than being evaluated, properly diagnosed, and treated appropriately. "
I can sort of see how they could argue their point of view with people only getting a clinical diagnosis despite the fact that the testing is so bad and that if you go fishing and don't catch a fish that doesn't mean there were not fish in the water.
But I was just wondering if anyone has ever seen anyone from the ISDA address people that have tested cdc positive or even more so with a postive pcr test?
What about the work done by Dr. Macdonald featured in Under Our Skin proving that the bacteria can survive long term?
I am still new to this disease and all the controversies surrounding it but they keep quoting the science doesn't back up CLD existing but positive PCR's at a minimum seem to dispute that scientifically.
Posts: 27 | From Boulder, CO | Registered: Sep 2008
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posted
Look at all the research I posted in the thread titled "my suggestion for tackling wormser and others.." There has been tons of research and there's tons of proof showing lyme does not simply roll over and die from 3 weeks of antibiotics. IDSA has been payed by corporations to ignore this research and form false conclusions based on one profit based study that formed manipulated assumptions for the gain of the insurance industry.
A select few doctors had the ability to control insurance coverage for all americans so once those doctors were bribed the insurance industry saved money.
Posts: 499 | From Indiana | Registered: Oct 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
For a good understanding of the issues and politics of Lyme disease, read "Cure Unknown". Written by a respected Science journalist.
You asked: But I was just wondering if anyone has ever seen anyone from the ISDA address people that have tested cdc positive or even more so with a postive pcr test?
It is not uncommon to hear of an IDSA doctor who has said that a CDC positive is a "false" positive. Many in that camp state that their patient has fibromyalgia as a result of lyme or the poorly defined "Post lyme syndrome" once they have had "adequate" (IDSA) treatment.
If one shows up with a positive PCR after treatment, I've read from the IDSA camp that they were likely re-infected and that is why their test is positive. The opinions may run the gamut or you may find something on the IDSA website that spells it out. Probably not but you might take a look.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
wow i've never seen that stuff Terryk. Isn't that enough information to prosecute them and send them to prison finally?
Posts: 499 | From Indiana | Registered: Oct 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I made a post regarding studies on persistent borrelia burgdorferi infection inspite of antibiotic therapy. Here it is:
posted
The IDSA has also said that a positive pcr may be picking up dead or nonpathogenic Bb. Don't ask me how they explain this. Seems there is nothing too idiotic for them to say.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
And yet they will call a negative PCR definative. Like I've said before, a "negative" is always true, but a "positive" is a false. What ev.
Posts: 374 | From United States | Registered: Nov 2008
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