posted
Hi everyone! I'm a long standing member here but went into remission for over a year and haven't been around. Now my Lyme is back in the form of arthritis, and I've had two cortisone shots. I now have no pain but I've heard that these shots are bad for people with Lyme. What am I in for now?
Continuos cortisone shot can lower your immune system. Arthritis is indicative of infection and primary for Lyme. Please look into the parasite connection,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Well sounds like you figured out steroids are a big no no. They weaken the immune system allowing Lyme to really take hold. Initially you'll feel much better when on steroids but it doesn't last.
Get back in touch with your LLMD pronto. You'll probably need to go back on a short course of ab to nip your flair in the bud.
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Blake is supposed to get one in his back and now he thinks he shouldn't.....but he is still in excruciating back pain and doesn't know what else to do. Is it really that bad to get one?
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
I think you can do it in extreme circumstances as long as you're on abx at the same time....
Posts: 2804 | From Texas | Registered: Oct 2000
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EtherealGirl
Unregistered
posted
Well I had mine before I realized they are bad for you. I have to say, it saved my life. The pain was so bad that nothing touched it and I wasn't sleeping at night. Now I just take neurontin and I'm fine. No more percocets and I sleep like a baby. However, my orthopedist told me that IV abx will knock out the arthritis, so that's what I'm shooting for.
As for Blake, I know how much pain he's in and the shots make such a huge difference. I think he should try it.
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Well he was afraid and blew off his long awaited appt today......ugh.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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EtherealGirl
Unregistered
posted
Try Orthopedic Associates in Putnam. That's where I go.
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I had many epidural injections due to debilitating back pain. At the time I didn't know I had Lyme.
I really don't know if it made my symptoms worse or not. I really noticed the back pain more than the joint pain at the time.
One thing about the epidurals is the steriod is localized and isn't supposed to be absorbed into the rest of the body.
If he is in that much pain then he should go ahead with it. I have been where he is at and it is no fun.
The epidurals pretty much only bought me 6-8 weeks of comfort at a time. I got them every 8 weeks for 1 1/2 years. I then finally had back surgery and got my life back.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
They probably don't take Medicaid there. He waited three weeks for this appt. I can believe he no showed.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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