I recently found this site after someone told me that my symptoms could be related to lyme disease. I did a little internet investigating, and here I am.
I've been having random shooting nerve pain for almost 2 years now. It came on after a I had some pretty strong flu-like symptoms one weekend...aches, chills, fever, etc. The shooting nerve pains has gotten much worse over the last 6-8 months. The pain is not constantly there, but comes randomly, anywhere on my body and last just a few seconds. But, when it comes, it is sometimes very intense and sends a wave through my entire body. Overall, I have some days where I experience over 30 zaps in a day, maybe more. They almost feel electrical in nature. Also, when I'm active and/or busy, they are much less frequent. A couple more things...i get them while sleeping (but more so upon first waking up) and they are much more frequent after lunch. My job involves sitting at the desk for extended periods, which is the time when I seem to notice them more.
I have talked with doctor about it who eventually referred me to a neurologist. The neuro really didn't know what it was. They decided to do a brain MRI and other tests, which all came back normal.
Overall, i'm a healthy guy, 30 years old, 6'3, 210 lbs. I played collegiate basketball and played professionally in Europe. I continue exercising to this day. My body feels okay, otherwise. I don't have any muscle weakness or anything like that. I do have aches frequently in my lower back and I also get headaches quite frequently.
Other medical issues: I have had twitching in eyelids and other places in body. My only other condition that may have a relation is that I suffer from acid-reflux. I do take prilosec semi-regularly which helps.
I'm not sure if you think this could be related to possibly lyme disease. I'm really anxious to try and figure it out. Is there someone I should see to get some testing done? I have spent plenty of time outdoors in Rhode Island, Connecticut and Massachusetts.
I look forward to hearing from people.
Thanks CMT
Posts: 4 | From Massachusetts | Registered: Jun 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
Hi, Ctabb,
Your symptoms sound like they could be Lyme or a co-infection. Also, having spent time outdoors in three endemic areas makes Lyme a possibility. This is especially so since other diseases have been ruled out.
The best thing to do would be to schedule an appointment with a LLMD (Lyme Literate Medical Doctor). It can take a few months to get in to see one so I suggest making an appointment right away.
A LLMD will likely test you for Lyme and co-infections as well as do a thorough investigation into your symptoms. Igenex is considered the best lab for Lyme testing.
To find a LLMD, please go to "Seeking a Doctor" and post a request. Someone will come along shortly to help you.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Have you had body-work such as cranial-sacral therapy or massage?
Have you tried yoga?
While lyme can certainly cause the shooting nerve pain, so can constricted vertebrae. Can you stand up and stretch -or even excuse yourself at work for a few minutes and go do some yoga stretches?
Can you get an excellent erognomic chair for your job?
I assume you may have already done that but just checking. Even with gentle body work, considering all your symptoms, it would be best to consult a LLMD who is an ILADS member.
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
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In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
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