posted
I know that this is probably normal but I am having trouble dealing with it. I was finally doing pretty well for the last couple of months with only the occasional bad day. What causes a flare-up like this?
Since last Thursday I have been feeling terrible again. Headaches, muscle twitching, nausea. jello-feeling in legs, tingling, neural tension. Even last Wednesday I was telling my physio on my weekly visit that I thought I was really improving and now I feel like I have been hit all over again out of nowhere.
Sitting at my son's HS graduation last night, I could see the muscle in my arm just twitching away. I haven't had this in months. I feel so discouraged.
I have appt with LLMD in 2 weeks - I feel that if I call him now what is he going to do? I have already been on abx for almost a year.
I see my physio again tomorrow. The only thing we did differently last week was to use the cold laser on my neck. She has used it on my face, back, etc before so I doubt that caused the flare-up unless there was a pocket of spirochetes in my neck that came out and are now being killed - in which case maybe feeling bad for a while is a good thing!
It is very difficult to go from feeling better to be right back in it again. And nobody understands - I just wish they could live in my body for an hour to see what it feel like. All I hear is "you look great" and I feel like people think it's in my head.
Sorry for the pity party - but I know you all understand!
Posts: 133 | From Far Hills, NJ 07931 | Registered: May 2003
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
What is it about seeing a doctor or other medical professional that suddenly makes you feel worse after you leave their office, lol?
Seriously, that happens to me--I go to the doc and tell them I've been feeling better, then not an hour after Ileave their office, either my old symptoms return with a vengeance, or else new ones come up.
That said, yes, flare ups are common and I guess normal (whatever that is) with Lyme and co.
It is frustrating and discouraging, but just know that it comes with the territory.
I don't know if it's possible that your laser treatment relaesed some chetes, but I guess anything is possible with this disease.
Just don't let yourself get down about the relapse; it happens, and hopefully it will turn around again quickly.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
For me, I've noticed that it doesn't matter who I tell about how much better I've been feeling...I just know that as soon as I say, "I'm soing a lot better." the you-know-what hits the fan, lol.
I feel your pain though. It's beyond frustrating to be doing so well and then hit a wall. Just remember that it won't last and you'll get back to where you were before.
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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posted
Thanks for all your positive support - helps when you talk with people who understands. Off to physical therapy today so hope that will help. Also have therapist visit today just to talk things out. His whole family has had lyme so talking with him is very helpful in gaining a perspective on the whole thing.
Posts: 133 | From Far Hills, NJ 07931 | Registered: May 2003
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