seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I was referred by my neurologist to a physiatrist I saw today who supposedly was sympathetic to chronic, invisible illnesses like CFS, Fibro, etc. I was hoping for help with my LTD appeal, but got none as always.
The guy said right away he didn't treat CFS (why the hell didn't the neuro tell me?). He worked at a pain clinic.
The doc said maybe I have Lyme (though should have been cured by Abx), Fibro or CFS. More likely the latter two.
He asked, as did the last 50 docs, if I've tried Cymbalta, Lyrica, Elavil, or other like drugs. I said no. He recommended Savella. I have no idea what this drug is. I asked him about his experience with it and he admitted none. He handed me a free 2-week titration pack and said he's heard 'good things.'
He said neurotransmitter misfirings can cause severe muscle tightness and other symptoms, but he's not sure all my laundry list of issues could be accounted for due to this. He suggested a possible consultation with a psychiatrist for their opinion, though he stated these type of docs often see what they want as they only have one tool in their toolbox.
My group LTD disability appeal chances are null. No physiatrist will support me. I have been shoved Cymbalta every single time. Docs LOVE this drug. I may just take it now to say I did. What more can one do? If 50 docs tell me to take it, maybe they're all right!!
These psych drugs sure must help a lot of people given the aggressiveness docs promote them with. Why would they if they didn't help people like me?
Any experience directly with Savella? It titrates from 12.5 mg to 50 mg over 2 weeks.
My medical file including all lab/test results is over 8" thick from 1997. I've got all my abnormal test results summarized in chronological order, all major tests done with results in chronological order, and other summaru exhibits. This hard work never impresses the physicians and all I try to do is make their job easier.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Do a Search here for limited info on Savella. It is a new drug. I NEVER take a new drug myself becuase there has been no time to record adverse reactions by real consumers.
This is just me. That being said, this drug is a a SNRI, it works on different receptors than SSRI's. It is said to help with fibro pain and fatigue.
One person here is taking it. Do a search for Savella. Blair from Coco FL. posted that he was taking it.
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Seek,
Are you going to show any of these doctors what you so astutely observed on your lab results from another post?
Referring to the round worms and tapeworm that were Identified. Really an important part of the puzzle.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Gael, I've showed endless docs that test. All said Diagnos-Techs is a terrible lab with no controls and the results mean little to nothing.
They said if you see nothing in the toilet you don't have tapeworms/roundworms. They said it's obvious if you have it and they come pouring out.
Even holistic docs, including the ordering one, thought the results warranted nothing more than a 15-day supply of Wormwood Combination from Kroeger Herbs. He was fine with that protocol. He obviously didn't believe in the 'parasites are master survivalists' theory. I know you have a completely different thought process on the topic, but I'm just relaying what docs told me.
Can these parasites really cause balance issues, muscle pain, muscle tightness, etc.? I had to stop the Humaworm after 20 days because I believe it was giving me significant chest tightness. Perhaps a reaction to Wormwood?
Thanks Feelfit for the information. I too worry about taking new stuff with no real-life patient testimonials. The physicians are sure happy as pie to Rx it though. Bought off by drug reps? I really think of pharmaceutical reps as bottom of the barrel at times. You sell your soul to the devil. Promote crap you have no first hand experience with to make a $$$ and get the job based 90% on looks alone. That's been my observation and that of many I know with friends/family in the 'industry.'
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Observation: Most drug reps ARE good looking, All American types.
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Seek,
I NEVER saw anything in the toilet for over 25yrs of being misdiagnosed. It wasn't until I started doing antiparasitic herbs and salt/c did I see a mass exodus for a year.
Everything pictured on lymephotos is exactly what came pouring out of me and then some. There is no doubt in my mind that you have this infection especially since I saw the lab work and the picture you posted.
It's unbelievable to me that any doctor worth his salt would ignore that lab work!!!! This kind of across the board incompetence is why we are all so sick!!
Especially, an ND, who should be aware that so many people are infected with parasites.
BTW, I encourage you to read the recent thread posted by micul and very professional pictures of microfilaria worms in his tissue.
I have felt them moving around in my tissues when they are dying. I have had every symptom you mentioned and all of the symptoms at humaworm.
Seek, It would be a VERY BIG mistake to ignore these findings. Is there another ND in your area that is more astute? Sorry, for the rant, just want to see you get well,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
posted
I will be starting this drug shortly... will let you know if it helps me or not. brian
Posts: 217 | From Everywhere | Registered: Nov 2006
| IP: Logged |
posted
Observation= Drug Reps have always been good looking americans= they make alot of money= they have the resources to make themselves look good= they tend to live a healthier lifestyle.
Posts: 217 | From Everywhere | Registered: Nov 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Really an important part of the puzzle.
Printer-friendly view of this topic