posted
Me too! I saw the most progress on while on it.
Posts: 379 | From Sydney, Australia | Registered: Nov 2008
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btmb03
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Thx - any particular side-effects I should be aware of (I mean not the pharmacy hand out) but as it relates specifically to killing off Lyme?
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losferwrds
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I was on ceftin 1000mg for 6 weeks, other than the terrible taste a very tolerable drug, no stomach issues or anything. As far as its efficacy for killing Bb I dunno, didn't notice a huge difference and it was my first abx ever used. Don't think I herxed.
I am currently on week 4 of Zithromax, and something is going on, I think I may be finally experiencing a herx, this zithro is strong stuff and keeps building up cause its like a 5 day half life. I have all cns stuff, I am sitting here at a work really dizzy and my right eye which normally acts up is just useless today, earlier in the week my feet were killing me to the point of needing to take celebrex to walk, so hopefully this is as bad as gets. Glad I got a few extra klonopins stashed in my aleve bottle, may need extra one today, I'll see how I feel after lunch.
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btmb03
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Losferwrds - thx so much for your input. Sorry Zith is so challenging, perhaps it is a herx and will subside once your body gets used to the drug.
Unfortunately I'm completely opposite - I react to meds immediately...my immune system must be really shot.
Anyway good luck with your treatment and do post on how it goes!
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nenet
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posted
I have been on Ceftin for a long time, ramping up from very small doses to where I am today, which is still not even half the recommended. I immediately herxed, for a long time, then had a brief window of energy and feeling of health and mental acuity that I hadn't experienced in years at that point. Then back to upping dose and herxing, and so on for many months now.
I still am experiencing improvement, so I haven't plateaued yet. I also still Herx with every time I up my dose.
I love my Ceftin. It's bizarre, but I do. I took Mino as my first antibiotic, and though it helped me for a time, the herxes were absolutely intolerable even on 25 mg doses every 3 days.
Mino almost put me in the hospital from the herxing, and then later on after a month, I started getting very strange horrible joints pains and such - it had a totally different characteristic than my Lyme aches and pains etc. I stopped Mino, on the suspicion that I was having a Drug-induced Lupus effect. All of that went away and I went back to my normal Lyme state.
Ceftin when herxing has caused me some extra heart palps, irritability, aggressive moods, moodiness, anxiety, panic (very rarely), extra joint, muscle, and bone pains.
However, we are all different. You will have your own Herx profile and pattern, if you even have one at all. You don't need to Herx to get better, contrary to what many might think. It is just a helpful signpost if it does happen.
I was sick with Lyme over most f not all of my life, and reinfected several times, most likely. I had it very bad, so I had/have a lot of bacterial and toxin load to work through, and a lot of built up damage from decades of illness and inflammation.
Good luck! You may find it does wonders for you, or nothing at all, or somewhere in between. I would just try to give it plenty of time to have an effect.
It is always good to remember the extremely long doubling time of Lyme vs other bacteria, and how the antibiotics work during that doubling time. That means you need to take antibiotics for far longer to treat Lyme for the same amount of times in other bacteria.
I hope that last part made sense. I am not being very clear today.
posted
i ve been on ceftin 1000mg, but didnt notice any difference. i will start it again, this time with tinidazol against cysts and maybe a higher dose.
and - if my llmd agrees - i will take it with probenecid, as burrascano recommends.
does anyone know if the probenecid also has effects on the tinidazol or just on ceftin and penecillin-like-abx? im a bit afraid it also makes the tinidazol more effective, so that its too strong for me...
Posts: 226 | From earth | Registered: Sep 2007
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Pinelady
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posted
I am on Ceftin and Diflucan after finishing doxy now. It has caused the most
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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When I started Ceftin - I began to get really bad headaches, but I talked myself through them by saying - those little buggers are being killed off in my brain.
I also began hearing a heart beat in my right ear. It is still there, and my doctor dismissed my complaint.
Other than that, the Ceftin got rid of my flu like symptoms, which made a HUGE difference for me.
Posts: 379 | From Sydney, Australia | Registered: Nov 2008
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btmb03
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I see we have such a variety of responses...like so many of our responses to meds - it seems to vary from individual to individual.
I'm so glad Ceftin has helped some of you despite the herxes. I would LOVE to get rid of my flu-like symptoms...glad it helped you in that area.
Amanda
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Member # 14107
posted
1000 mg is half the recommended dose for Ceftin, even by IDSA standards.
If you are herxing and getting better on 1000 mg a day, then great.
But if you didn't make progress with it, then try taking the recommended dose of 1000 mg 2x a day.
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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CherylSue
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I take 500 mg BID of cefuroxime (generic Ceftin) I am such a sissy baby when it comes to drugs. Ceftin and Doxycycline are the only ones I can tolerate.
Intolerable for me are azithromycyin, cipro, levaquin, erythromycin, alinia, etc.
Treating Lyme is a real challange to me. I did work up to 1/4 Flagyl (brand name) every other day before my relapse.
There are some LLMDs who recommended taking a cell wall drug like Ceftin with Flagyl to get the cyst form. Ceftin will make the Lyme turn into cysts and then the Flagyl kills it. Although I haven't tried this combo yet, it is strongly suggested by a lot LLMD's I'm finding.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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Lymeorsomething
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posted
I tolerated Ceftin fine. I'm using Omnicef now though...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
I am currently on Ceftin 1000mg daily and I have tolerated it failry well.
Unfortunately, I am prone to yeast infections with even small doses of antibiotics so I am pumping in lots of probiotics and the doctor has me on Diflucan as well.
I haven't experienced a terrible herx but headaches have been more frequent and the muscle pain in my legs and chest have returned.
I figure this is from the die off of the bacteria. Taking lots of supplements to try and detoxify my system.
I generally have to take it with a full bottle of water b/c the taste is so awful. I respond better if I take about 1/2 hour after I eat a lite meal by itself without any other supplements.
Good luck! JT
Posts: 72 | From Massachusetts | Registered: Feb 2009
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btmb03
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Thanks for your replies guys, I will take them into consideration when I start Ceftin....good luck!
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posted
Daughter and I are tolerating the Ceftin well. Were on it for about 4 weeks - then Flagyl added for 8 weeks. No problems so far - herxing pretty strong on the combination. Yes, the taste - yuck. And the Flagyl - uuuugh can't get it down before it starts to disolve. As soon as it hits the mouth! Hope it works out well for you too! -p
Posts: 641 | From So. CA | Registered: May 2008
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nenet
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Member # 13174
posted
I find I am able to hide the taste well if I take it with a gulp of almond milk. It has enough coating fat molecules to coat the pill as it goes down.
Others say they coat their pill in olive oil to take it. There are several threads about this here. Also lots of threads about how people have responded and Herxed on Ceftin.
I always take mine with a meal. Otherwise I can rarely get some stomach/abdominal cramping, pretty severe too, even radiating to my lower back.
I have also ramped up my probiotics to twice a day since I have ramped up my Ceftin dose. I take one Theralac 30-45 minutes before I eat breakfast, take Ceftin with my lunch, and take another Theralac right before bed.
posted
I always admire anyone who can tolerate Flagyl - it's cheap and well-studied. Me? Couldn't even tolerate 1/2 tablet...caused me terrible stomach pain.
I didn't realize Ceftin had a bad taste..everyone said that about Biaxin and I don't taste anything at all. I guess we're all different! Thx again!
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nenet
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Ceftin generic is the one with the foul taste.
Apparently the expensive brand-name product does not taste bad.
Also, I have read most people not tolerating more than a sliver of Flagyl. My LLMD starts people out at a sliver and works them up over a long time to their tolerance. Most I have seen can't go above a sliver, or perhaps up to 1/4.
I'm not sure I would give up on it just yet if I were you. Just my non-medical advice.
Tracy9
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Member # 7521
posted
Recently my LLD took me off all the meds I was on and put me on just Ceftin, 1000 mg BID. The taste is the worst,otherwise I haven't seen any changes.
I took it previously with Biaxin. I am concerned about being on JUST Ceftin; he took me off Plaquenil, the cyst buster, and my Mepron and Bart meds.
He felt I was showing no improvement after five months on that protocol (true) so why keep taking all those meds.
Still sick as ever; nothing is going to get me out of bed but IV antibiotics. I finally broke down today and made an appt with what will now be my FIFTH LLD, in order to get back on IV Rocephin. I'm assured this one will give it to me.
That is the one and only thing that I have improved on.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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WildCondor
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Make sure the doses are high enough. When i took Ceftin it was 3,000 mg per day, not the common 1,000 mg. I took it along with 2,000 mg of Biaxin, plus 3x week Bicillin shots. That was a GREAT protocol!!!
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btmb03
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Wow Wild Condor - what I would give to have your constitution!! I'm not even on full doses of *anything* but have to take it slow. Glad the high doses helped you!
Tracy9 - thx for your input, sorry you haven't seen much improvement despite your many docs. Good luck with your new LLMD and with the Ceftin!
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mojo
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Member # 9309
posted
I'm currently on 1000 mgs Ceftin bid and 500 mgs of Biaxin bid.
Talk about bad taste in the mouth!
asummers: I told my LLMD about the heartbeat sound in my left ear and he sent me to a chiropractor. Turns out a very old accident damaged my neck and my blood supply to the head was affected (and caused even more brain fog).
I now do simple exercises and the sound is gone. If I'm lax on the exercises it comes back. My Dr. told me if I had let this go I wouldn't be able to turn my head from side to side when I got older.
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