Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Can people describe bartonella foot pain to me?
I just started Cipro for a small intestine bacterial overgrowth and Mycoplasma. I emailed my LLMD with bad symptoms I was having last night, and she said some of the symptoms sound like Bartonella.
I also have had foot pain for years. It feels like I'm on my feet all day. They just ache on the bottom. It feels like a foot massage should help, but it doesn't.
The symptoms I had last night were:
dizzy
feeling of almost tickling throughout my body
motor tics and uncontrolled movements - seems to be related to the tickling feeling, like I'm trying to stop the feeling
when I relax and concentrate on my body, I feel slight pain near all my joints
Inability to control my temperature. I was really cold without a blanket, but would start sweating minutes after getting under a blanket
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I will try and describe my Bartonella foot pain.
I guess I should start by saying it changes all the time. Today, as on most days lately, the sole of my right foot feels numb. It doesn't hurt, but feels heavy and clompy and "dead".
Last winter for months on end my arches hurt so bad it felt like they would snap in half.
Other foot pain I have experienced is a pins and needle prickly sensation on the bottom of both feet.
In addition, my feet are always freezing cold. It is July and they are still like ice cubes. Nothing warms them up.
I have some of your other Bart symptoms too: dizziness, motor tics and uncontrolled movements, inability to control my body temperature (cold then sweating) and a few others.
I also have what I call "Bartonella skin". I have streaks and rashes consistent with Bartonella.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
| IP: Logged |
My Bart foot pain is exactly as you describe it above. Recently, the all-over body aches and joint pain has been flaring badly. Foot pain is worst in the a.m. and late at night before bed. Foot massages feel great, but don't have lasting effects.
I am still treating for Babesia, so no Bart meds right now. Even before starting Babs meds I have been sweating profusely with increased foot and ankle pain that makes its' way up my shins.
I have a non-Lymie friend who was treated for diverticulitis with Cipro and felt horribly dizzy on it. So some symptoms may be the strength of the meds and other symptoms plain old Bart/Lyme.
I wish you luck that is pain-free,
wiserforit2
Posts: 273 | From Banks of the Hudson | Registered: Nov 2008
| IP: Logged |
My feet feel almost mushy at times, like I'm going to hurt them by walking on them. It's squishy and rather disturbing but has yet to keep me from walking where I want to go.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
| IP: Logged |
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Thank you both for your input. I also get severe muscle pain, particularly in my mid-back. And my legs ache with any exertion...like walking around shopping for a couple of hours.
It is interesting, because I started my Lyme treatment with Biaxin followed by Levaquin, so I just assumed if I had Bart (which I never tested positive for) that it was gone from that treatment. Perhaps it is not.
My understanding is that Bartonella does not last long in cats, is that correct? I have cats, but they are indoor cats and haven't been outside since possibly before they got to the shelter over 10 years ago. So my understanding was they can't be Bart carriers...am I correct or do I need them tested?
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
A,
my bart foot pain actually felt like the bottoms of my feet had no padding and i was walking on the bare bones.
most of my shoes felt uncomfortable as though the support was gone and i was walking on concrete.
also, the heels would hurt alot after just an hour or so of casual walking.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
| IP: Logged |
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
BTW, what helps my foot pain the most is wearing elastic ankle supports that I buy a drug store. Oxcycodone doesn't help it much.
quote:Originally posted by gemofnj: my bart foot pain actually felt like the bottoms of my feet had no padding and i was walking on the bare bones.
Well, my LLMD once told me I have almost no padding on the bottoms of my feet and I really am walking on bare bones. I try to always wear some type of cushion if I wear a heal, although I admit that doesn't happen all the time with sandals.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
btmb03
Unregistered
posted
Ditto to gemofnj's post...I describe mine like walking on extremely pointy rocks/pebbles on a beach 24/7. Didn't realize this could be bart.
Feels like every bone knees down is broken. Good luck with the Cipro, I took it briefly for an unrelated problem and the dizziness does improve!
IP: Logged |
my bart foot pain actually felt like the bottoms of my feet had no padding and i was walking on the bare bones.
most of my shoes felt uncomfortable as though the support was gone and i was walking on concrete.
also, the heels would hurt alot after just an hour or so of casual walking.
My feet symptoms from Bart feel exactly they way the above is described. I have never been able to describe it that well. But it's perfect.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
| IP: Logged |
posted
My Bartonella foot pain was a lot like the above descriptions. At first it was when I got out of bed in the a.m. The bottums felt sore and tired as if I ran around all day on them. They also felt squishy on the bottums as if they were swollen and almost a slick feel to them as I walked on my tiled floor.
Also had a lot of calf pain with Bart.
Also had the back pain and tightness too.
Hope the abx helps with your symptoms.
Stacy
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
| IP: Logged |
posted
WOW! I could use those exact words to describe my foot pain. No padding, like I've been hiking for hours but I just woke up, etc. Maybe my foot pain is Bartonella.
I also get the middle of the back pain. Hard to describe. Like across my ribs or maybe shoulder blades???
-------------------- Sofi Posts: 150 | From Northern California | Registered: Jun 2009
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Aniek, I think you're right about your cats. I don't think they are active carriers for much past the kitten stage. I have two and had a vet Rx abx for bartonella anyway, but I never gave it my two.
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I unfortunately needed to cut back on my abx. My LLMD told me to cut the abx in half after the really bad flare.
Sofi, My mid-back pain is between the shoulder blades. My muscles are very tight in that area, but also all around the shoulders.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
posted
My foot pain feels like the bottom of my feet are bruised, mostly in am when I get out of bed or late at night. Sometimes my feet burn at night. I have pain between my shoulder blades also, and tightness and pain in shoulders. My Dr. diagnosed me w/ Bart clinically.
Posts: 65 | From massachussettes | Registered: Mar 2009
| IP: Logged |
posted
My foot pain comes and goes randomly and fairly quickly and usually feels like a deep charley horse type of pain/cramping on the soles, near the front padded area, sometimes on the outside sides. It used to mainly affect my heels and outside of my foot/sole with a burning sensation.
I tried switching shoes and it didn't help, so not the culprit.
When I was herxing last week, the pain hit my heel and radiated up the back of my calf.
I get those same type of pains in the palms of my hands as well.
Since this doesn't sound like others pain here, I'm wondering now if it's caused by something else, like a Magnesium deficiency or something.
Oh, and I have the inability to regulate hot/cold, too. My LLMD diagnosed it as Dysautonomia (caused by Lyme).
Posts: 366 | From MA | Registered: Apr 2006
| IP: Logged |
I get those pains like you describe too. That was one of my early symptoms. Now it is more like I wrote above in my post. I still get the cramping feeling sometimes too. Especially if I walk too much. It might be Bart?
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic