posted
I'm on 5000 iu of vitamin D daily, per my LLMD, and I really don't think it's a herx. I'm sure it's the vitamin D, too, because on several occasions I stopped it for a few days and didn't feel as sick. Also, when I was only taking 400 iu of D daily I told my LLMD that this dose was also making me sick.
Then someone sent me this about the Marshall protocol with regards to D...
The rationale in the above article that D supplemention is bad for you would make sense to me because, although I stopped taking the D supplement this week, I've been eating D-fortified cereal and drinking D-fortified milk this week and feel HORRIBLE all over again. Also, if I eat more than maybe one can of tuna a week my kidneys scream.
Backing up a bit here, since starting the D maybe 2 months ago, I have a 'new' symptom - hip/lower back pain. My pain has always been either in my middle back upwards or in my knees - never my lower back - but when I told my LLMD this, she blamed it on die-off. The pain was SO extreme though this last time that I could not bend to even sit, let alone crawl in and out of the tub.
And a friend of mine who has Lyme and knows someone who sees my doctor told me that D supplementation at this dosage resulted in kidney stones for this friend.
Has anyone here heard of Benicar mentioned in this article?
My teeth actually feel loose when I take vitamin D.
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
I get herx from vit. d and had to stop. I think it is a killer as well. It kills bacteria. We need to start very low dose. Also test your 1.25 and the .25.
Posts: 1834 | From US | Registered: Oct 2008
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
I got some extra nasty symptoms when I was taking Vitamin D.
I had my 25-D and 1,25-D tested, and I had SUPER HIGH, OUT OF THE PARK 1,25-D, which means that I was getting way, way too much!!
Also, I was having bone loss (even with calcium and magnesium supplements) which Vitamin D is supposed to prevent.
I discontinued all D supplements, stopped eating foods with Vit. D in them, restricted my time in sunlight, and got some NoIR dark glasses.
Things got better.
I was not able to do the full Marshall Protocol, and have been doing other treatments, which seem to be helping overall.
Anyway, I wouldn't ever take Vit D supplements again.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
What was your Vitamin-D25 reading that caused your doc to put you on such a high dose? He had to test you first. And you need to test again, to see how you are doing.
If your lower back hurts, if you think it's your kidneys, you really need to test your serum Vit D-25. I read that recently they found that doses higher than 2000 IUs per day can cause kidney damage in old people.
Get some test number so you can stop worrying and guessing.
----Polly Polygonum
Posts: 1226 | From USA | Registered: May 2007
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
I have Rheum. Arthritis from my lyme. My Vit D levels were very low and I now supplement at 5000IU daily.
Immediate relief AND my knuckle deformities have returned to normal.
After 1 yr at 5000 IU daily, my Vit D levels are finally good and the doctor has me backing off the supplement to 5000 IU every other day.
Vit D is excellent, excellent medicine unless you have Sarcoidosis or high levels of Vit D due to other issues.
Vit D is detoxifying and this could be causing your herxing. Herxing is a good sign but it is also a sign to slow down. Too much herxing can cause damage.
I can't believe your LLMD would place you on 5000 IU daily without bloodwork. Right?
Vit D cuts cancer risk by 60%. Before you throw out Vit D, you need to read all it does for you.
If you herx from cereal and milk, that is a whole diffferent form of Vit D. It is D2 which is poorly absorbed by the body. Vit D3 is the better form to take.
Definitely test first before supplementing. A very safe way to get Vit D is from the sun. You cannot overdose from the sun source.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
blaze you shared with me months ago your teeth felt loose. Are you sure it is the D or not a lack of some needed mineral?
Posts: 42 | From the woods | Registered: Jul 2009
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blaze
Unregistered
posted
I'm not sure what kind of D level she tested, but mine was low-end normal when she first put me on 5000iu vitamin D. I immediately started taking the 'right' form of D, felt too sick on it, and stopped.
Then when she tested my D levels again, of course, because I'd stopped taking it, they were still low-end normal. I told her I'd stopped taking it because I felt horrible on it.
So she sent me Pure Encapsulations D to try, thinking maybe it was the magnesium stearate in mine that was making me feel horrible, but no - it's definitely the D.
It was about 2 months ago that I first started any D supplementation, and ever since I've been telling my family that I feel at least as bad as I did a couple of years ago, before ANY antibiotics.
My loose teeth symptoms HAD been improving OFF vitamin D. They seemed to be only intermittent.
But when I pushed myself to take this D for her and started eating D-fortified foods, my symptoms went through the roof.
The outer edges (only) of my tongue are bright red and sore.
My tongue has a conspicuous white coating.
My gums are bright red and inflammed.
I have tartar buildup along the gumline - I was confused in the past why this seemed to worsen after eating yogurt - then realized the yogurt was D-fortified.
And my teeth feel wiggly.
I have trouble believing that God didn't create our bodies in such a way that sunlight alone gives me all the vitamin D I need, no matter how far away from the equator I live.
Anyway, she's going to test my 'activated' D levels once more. Regardless of the results, I'm not taking D ever again. I believe the Marshall Protocol has it right - D supplementation is not necessary, and even harmful.
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I am on 8000 IU (4 drops of Bio-Emulsion-Forte) per day to get my levels up from 34 to the upper quadrant of the range (range is 32-100). I had been supplementing with 4000 and that only got me from a 34 to a 41. Doc's handout says to get to 10,000 IU per day to "prevent autoimmune disease".
Am I supposed to be monitoring my bloodwork? He didn't mention anything about this.
Posts: 3528 | From US | Registered: Apr 2007
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
CD 57,
I got my test back with 20 and I have severe lupus.What does your handout say? But I have to start taking D slowly as I herx already with 500 a day.
Posts: 1834 | From US | Registered: Oct 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
It's interesting you bring up your teeth being loose. Mine are loose as well. They aren't extremely loose, thank goodness, but they do feel wiggly, like you said yours do.
For me, this is not due to Vitamin D and I'd find it weird for Vitamin D to cause it. My teeth has been doing this for over three years now and still have no answer as to why. I am on Vitamin D now, but when the looseness started when I was never on Vitamin D, so I know it has nothing to do with Vitamin D.
The loose tooth issue is very scary. I hate it. And like you said, mine too comes and goes and comes in varying degrees. Some days I don't notice it and then some days they seem extremely loose like they are about to fall out.
I've been to two to three dentists all of which don't notice the looseness and tell me my teeth and gums are healthy. It's extremely aggravating and worrisome when only YOU notice it and no one else can. I am actually going to see my dentist AGAIN about my teeth feeling loose at the end of this month.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
I would suggest you look into triphala. It will improve the strength of your gums.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Thanks, Bob. Is Triphala in pill form? Does it also assist with lyme and co treatment or not? Just curious!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Hey guys. Awhile back there was a lot of chat about oil pulling. www.oilpulling.com. One of the #1 claims is that it tightens the teeth back up.
It is cheap, easy and harmless to try.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Yes it is! by the way, maybe we should get dc metro lunch group together on a weekend. PM me if you and hubby are interested (sorry if the following comment isn't medical ).
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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posted
Vitamin D3 helped my brain's chemical imbalance over night and lifted my depression. I think everyone is different and some people can benefit from it tremendously.
The homeopathic tissue cell salt calcium fluorite will tighten up loose gums.
Oil pulling should not be done unless one has removed gold or silver fillings or other metals from the mouth.
Posts: 42 | From the woods | Registered: Jul 2009
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