posted
How does it feel in year ears? I get tightness so bad that I won't try it again with Zithromax. They get really sensitve and start hurting and ringing from louder enviroments like a movie theater.
Tried Bactrim recently and got the same effect after just 4 days .
Posts: 526 | From NJ | Registered: May 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
So the mino is or is not helping?
Is it making you herx, you mean?
Because you seem to be saying mino is better for you than the IVs, but then you say at the end you can't say you're feeling any better. So I'm confused!
Posts: 4590 | From Midwest | Registered: Jun 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
radfaraf,
They get really sensitive and get the ringing in the ears...
Hoosiers51,
I am not sure if it is making me herx. I feel no difference between IV and oral is what I meant.
I can tell you that it is very strong stuff.
Sorry about making you confused, I was just making the point that the IV was a pain and the Oral Mino seems to be having a better effect.
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
I'm sorry, I'm still an newbie. What is Mino short for?
-------------------- Sofi Posts: 150 | From Northern California | Registered: Jun 2009
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Minocycline, it's a tetracycline, like doxycycline...
Hope that helps!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
How is the sun sensitivity issue with the mino?? I know it is supposed to be less than with doxy, but it seems so extreme with doxy!
I want to switch from doxy to something that doesn't cause the sun sensitivity for the summer. I'm on the doxy for a recent tick bite (again?!) and as an additional abx to rocephin.
Posts: 3771 | From around | Registered: Mar 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
I was on IV Doxy and oral Doxy and the sun was unbearable.
I had to live like a hermit. With the Minocycline it doesn't bother me as much.
I am able to stand in the sun for a long period of time unlike with the Doxy.
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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bettyg
Unregistered
posted
ROY, WELCOME BACK !!! we were so worried about you and you hadn't posted on your caring bridge site too.
PINELADY wants to hear from you; perhaps pm her and include your link here; she asked that i contact her but i have to dress & leave in minutes for a funeral.
again, THANKS FOR CHECKING IN !!! hugs/kisses to you and special katie and son!
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Hi Kreynolds, glad to see you back and doing ok (considering). Glad you aren't struggling with IVs at the moment, since you mention they have been a pain.
I am confused by your posts about minocycline, though, and am hoping you can help a brain-fogger out hehe. What do you mean by this?:
quote:Originally posted by Kreynolds: To me it seems like Mino is one of the better ABX out there.
...
the Oral Mino seems to be having a better effect. ...
I can't say I am feeling any better
...
I am not sure if it is making me herx. I feel no difference between IV and oral is what I meant.
To try to clarify my question, what is the effect? and why is it a better effect? When you say it is better, or effective, but yet you aren't feeling any better, what do you mean? Do you mean you think you may be finally herxing? But then you say you feel no difference between your IVs and the mino? I know that was a mess of confusing questions, I apologize.
I took mino for a while but had to stop since it was causing massive herxing and then worse, but I am always interested in how others respond to it, because it was effective for me for a while (meaning I had a herx and improvement pattern). Thanks in advance for your patience! [insert bonking over my goofy head with mallet emoticon]
kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
nenet,
Sorry about the confusing post. It was late at night and I was in a zombie state.
I was trying to say that the Mino seems to be hitting me the hardest ( all around).
I get small herxes from it and never have for a long long time.
I was also stating that in my opinion, it is one of the best ABX out there.
Although I don't feel any better, I know its doing more than the IV meds were.
Also the freedom of not having a PICC in or an accessed port is enough to brighten my day.
Does that help?
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Yes, that really helped, thank you! I am very glad to hear it is having an effect and making you herx. For many it is too effective and makes them herx too strongly (like me), so I can absolutely see where you are coming from, that it is finally making you herx.
As I understood it from my LLMDs, Mino has the best BBB penetration of the tetracyclines, at least of the oral forms.
Good luck with your continued treatment! I think I recall my first window of feeling a little better happened a few weeks after beginning treatment with mino. But again, I was on super tiny doses - 25mg every 3 days was all I could handle.
That window was a day where I actually managed to go with my husband to the store in the car, and then walk through the giant grocery store. This was my first time being able to do something like this in years.
wow those doses are much higher than mine. i am sure i am low at 200mg mino, 500mg zithro iv, and 2 tsp mepron a day. i tried to go up to 1000mg zithro oral and herxed extremely hard so had to back down.
glad you think this combo is working.
Posts: 262 | From nj | Registered: Dec 2007
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
2roads,
How old are your children?
My son is 3 and has Lyme and Bartonella and was prescribed suspension Zithro.
I think most pediatric LLMD's start with the Zithro because many of the ABX's are too strong for them to handle.
njgirl14,
I am on 400mg Mino, 1200mg Zithro, Malarone 500/200, Bactrim DS, Artemesia etc.....
Beleive me, I feel it... The Mino and Zithro combo are enough to knock me to the floor!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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