posted
My search function wasn't working, so I couldn't see if there's been other questions about this. I've heard about a doctor S in MD who treats L.D. with cholstyramine as a major part of his Lyme protocol. Does anyone have any exprerience with this? My doctor in PA prescribed it, knowing that it binds toxins and prevents reabsorption into the intestines, but he didn't say much else. Dr. S. does checks for something called C4a's to assess the level of neurotoxins, and apparently claims to be able to tell whether on-going infections are indeed present, by how the level of C4as decline and if symptoms remain after the neurotoxins are cleaned out. The Cholestyramine my doctor prescribed is very yucky sweet, and I'm afraid it will add to my yeast load. Can anyone comment? Thanks!
Posts: 40 | From Cincinnati, Ohio | Registered: Sep 2006
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I took it for a while. It's good for binding toxins, needs to be taken away from all other meds, and can be constipating so take magnesium if you need to to keep things moving. It's a good product and seems that many LLMD's use it.
Do you see someone locally? I'm also near Cincinnati.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Stuff almost killed me the day I took it!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
posted
I've taken it but not consistently. Hope to though soon, as it's supposed to be great for helping cognitive issues.
I didn't have any side effects from it.
Posts: 366 | From MA | Registered: Apr 2006
| IP: Logged |
emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
Most forms of Cholestyramine contain either aspartame (nutrasweet) or sucrose (sugar). Aspartame is a neurotoxin and sucrose feeds yeast.
A better option would be to get Cholestyramine that has stevia added to it as the sweetener from a compounding pharmacy. Stevia will not promote the growth of yeast.
I got my Cholestyramine with stevia compounded by the "Dollar Drug" pharmacy. The Dollar Drug pharmacy will also ship it to you.
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
My LLMD said that he didn't think that the small amount of sugar was anything to worry about, but I'm also on Diflucan to keep the yeast down.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
| IP: Logged |
posted
It almost killed me at first too. I stuck with it and I can really feel a positive difference. I am on 2 a day and my llmd wants me to increase to 3. I will do it on Mon. once I get through the weekend. It made me constipated at first but once my body adjusted I was fine.
Posts: 433 | From new york | Registered: Dec 2004
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Seek and Cleo, how did this "almost kill you"? Just curious?
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Feelfit, it can make the Lyme flare badly. When I was really sick and took it, I didn't notice. But when I was getting better and was prescribed it again, I flared very badly and could not take it.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
oh ok, so I have been told to take this but have not. I have mind blowing headaches, especially worse when I herx......maybe I should start off slow.
The poster mentions C4a as a gauge used by Shoemaker. the reference range for C4a is 0-2800. My C4a was 46,000, very high. According to the poster, that would make me full of neuro-toxins....just thinking that I better get rid of them!
Thanks for this post, FF
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic