Want to see something special? No mention of Lyme Disease or prevention anywhere on the page, but lo and behold, what is that giant banner to the left? A great big warning about *Mosquito-borne diseases* and prevention! Diseases which pale in numbers when compared to even just the reported Lyme cases.
It says 2 cases of Lyme were reported in 2008 in Loraine County, Ohio, from what I can gather. Hope that helps! They don't mention any other TBDs, but I do notice that there is twice the number of reported Lyme cases as West Nile cases.
posted
haha yet west nile is all over the news... good grief I should've went into journalism.
Posts: 499 | From Indiana | Registered: Oct 2007
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Two cases! That sounds pretty near impossible to me, especially since they are the next state over from endemic PA. Do ticks and deer stop at the PA border?
Sounds like the public isn't getting the real scoop and little education about tick borne illnesses, but what else is new!
Would love to hear from other Ohioans on this site.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
My CDC positive WB was not reported. I called the CDC and they didn't care. They said if I wasn't happy with my doctor, to get a new one. THAT is why there is no Lyme in Ohio.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
IMO that information is about as accurate as the antibody test that is responsible for us getting sicker and undiagnosed.
If it means anything I got several bites in Geauga County and know two people with lyme + friends from that area.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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posted
I wouldn't be surprised if my CDC positive didn't get reported either!!
People & doctors in Ohio are totally clueless! I deal with it daily and it drives me nuts!!
The lady that was suppose to post our family's story in our local paper wrote some bull crap article with a ton of false info that she got from a local infectious disease dr instead.
She actually said that ticks don't cross the PA border into OH!!
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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bettyg
Unregistered
posted
roy,
here's some info on ohio from lymememorial.org site ... might not be what you need but you might find something else there ok
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Wow! No wonder why they have so few LLMD's. The State is in a "State of Denial" !! That article is full of misinformation but I'm not surprised.
I looked on another link that someone posted and it said Ohio had 2 report cases while it's neighboring state PA had several thousand.
That could only mean that thousands are being misdiagnosed with FMS, CFS, MS, Dementia, Parkinsons, Depression and Anxiety disorders and the usual list of disorders that people who have Lyme are misdiagnosed with.
Very sad! How many lives are being lost and how much suffering is taking place?
Why isn't there more noise being made in that state?
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
It is sad.
I think that people just don't want to hear the truth. It scares them. Who would believe that you could get sick after playing outside? They would rather believe their doctor and the news that there is "no Lyme in Ohio".
My friends and family have learned the hard way that Lyme is very real and it's right here in our backyard.
I've also educated my fellow coworkers (RN's and MD's), they watched me suffer as my health deteriorated and they are watching now as I am slowly reclaiming life with "long term antibiotic therapy". When they witness it firsthand it gets harder to deny the truth.
By the way, my CDC positive was not reported either.
Posts: 5237 | From here | Registered: Nov 2007
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massman
Unregistered
posted
C'mon now. Ticks from PA are not allowed in OH ! That is well known. Ohio ticks will not belittle themselves or pollute their genes chain by marrying a tick from PA.
Unless of course they rode over the river in a bears fur as the bear swam the Oh-Hi-Ya river !
nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
quote:Originally posted by Abxnomore: That could only mean that thousands are being misdiagnosed with FMS, CFS, MS, Dementia, Parkinsons, Depression and Anxiety disorders and the usual list of disorders that people who have Lyme are misdiagnosed with.
When we moved here, 3 of our immediately adjoining neighbors had MS. At least 2 of whom began having symptoms after living in their current houses. Another had just been living in Hawaii, but was born in Ohio. Not sure how long he had had symptoms.
So, to recap: 4 our of 4 adjoining houses, 3 with "MS", and me with Lyme (with many symptoms that could be misdiagnosed as "MS").
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
So many people within my neighborhood, folks that I grew up with, have been diagnosed with fairly rare autoimmune disorders: MS, Lupus, Sjogrens, Rheumatoid arthritis, Crohn's, you name it. Not to mention all the FMS and CFS sufferers. Seems like everybody has something around here. It is unbelievable.
I cringe whenever I run into someone and our conversation turns to "and you know, so and so has XYZ now...". Makes me want to cry. Then of I ask more questions only to find out that they're on steroids or other powerful immune suppressants yet their disease continues to progress rapidly.
And has anyone heard of LDN around here? Of course not "that's for drug addicts" and "only pain management docs can prescribe that". Maybe some of these people would actually have a chance if they were on LDN instead of immune suppressants.
Obviously this touches way to close to home. My mom has MS and i'd love to get her on LDN and the CPN protocol. Unfortunately her doctor is so closed minded she won't even read the information my mom shares with her. Now that i'm getting better I need to find her a doctor willing to treat. I love my LLMD but he is way to far away and too expensive for her or for me to help her with.
Posts: 5237 | From here | Registered: Nov 2007
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Sammy, why do you think there is so little Lyme awareness there. You do have a few Lyme support groups. Are any of them showing "Under Our Skin"?
Looks like the film really needs to make the rounds there.
All the diagnosis you mentioned are the typical ones misdiagnosed for Lyme. I'm just so surprised
given it's right next to PA. While every state needs more Lyme awareness, Ohio really seems to be in the dark.
What are the Lyme support leaders doing? This situation is to scary and upsetting.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Good question. I think it has something to do with that tick borders. We Ohioans don't need any education because we don't have Lyme.
My personal experience has been that I tried to contact the person listed as Ohio group contact first for a recommendation of an LLMD but I got no reply. I then went back to LDA site and came a big circle here to find there actually is an "active" Ohio group. I am not sure who is the leader in Ohio, but I found a few Ohioans here incredible. They gave me everything I could possibly ask for.
Not that I can find any showing of UOS in central Ohio but the closest showing I find is in Cleveland:
Cleveland Cinematheque Cleveland OH 09/10/09 to 09/13/09 (800)223-4700
And I found this out through a friend in NYC who doesn't have a Lyme disease. So here is my chance to broadcast to all Ohioans.
Posts: 822 | From midwest | Registered: Apr 2009
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posted
Hi. I got Lyme Disease and Babesia in Sagamore Hills, Ohio. Doctor's don't report to the state or CDC. To quote my doctor "CDC and State doesn't want to know."
I actually had a rash and my doctor said it was nothing. I was dx'd with FMS, CFS & MPS. Now I have been treating since October 2008, all my "FMS Tenderpoints are gone" Chronic Fatigue is gone, all pain is gone. Can't be lyme disease though huh? URggggg.
So there you go!!! No lyme disease in Ohio
Posts: 46 | From NE Ohio | Registered: Nov 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
mustluvdogs,
Thanks for sharing! Sounds like your doctor is a real idiot, huh?
I would like to hear from more Ohioans because we have a very close family/friend who lives out there and wanted to know the numbers.
I guess Lyme doesn't exist there....
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
Kreynolds, this has nothing to do with Lorain county, but I know of at least 15 people w/lyme a few counties away. And thats not counting the people I know here on Lyme net.
They are not confirmed, but when you have this stuff- you know the symptoms.They are all currently treating different ailments.
Posts: 262 | From ohio | Registered: Jul 2008
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