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» LymeNet Flash » Questions and Discussion » Medical Questions » 3 year old, correct treatment?

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Author Topic: 3 year old, correct treatment?
Amy08723
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So my little guy was diagnosed with Lyme last week.

When he was diagnosed, he was already on antibiotics because he had a splinter that had gotten infected. So that was 10 days of Augmentin.

Got back the positive results for Lyme Disease and started him on 2 weeks of Amoxicillin, 1 tsp, 3 times a day.

Someone told me that wasn't long enough on the antibiotics, so I called the doctor this morning who will prescribe an additional 2 weeks after this one runs out.

I don't have an appointment with the LLMD until September 3rd, and I'm just wondering if antibiotics for 5 weeks for a 3 year old is too much? Or not enough?

His symptoms were just that he was super tired. I mean he'd wake up with me and while I was getting dressed he'd have to lay down on the floor he was so tired. Anyway, besides the extreme fatigue....he was getting a very high temperature like clockwork, once a week between 103 and 104.

That is the only symptoms that I am able to actually see ya know, I have no idea what, if anything else is going on inside his super cute little body.

Was it the right thing to do to ask for more antibiotics? Or was that wrong? I mean, the doctor is willing to renew the prescription which leads me to believe that he doesn't know a whole lot about Lyme?

--------------------
Amy

Posts: 9 | From Brick, NJ | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
bettyg
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amy,

did you go to top of medical and print off my post showing MEDS/DOSAGES FOR KIDS/ADULTS

go by what is there written by dr. burrascano, our no. 1 llmd in usaa.

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wtl
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I would keep him on antibiotic until he sees the llmd. Sorry this must be horrible for a parent.
Posts: 822 | From midwest | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
Amy08723
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betty,

I did look at that information, but I'm just not certain really of what it says!

I don't know if Ryan would be "early localized" or what? also with that I didn't get the q8h, have no idea what that is???

That is the only reason I posed this. Please know that I looked at that info, but it is a foreign language to me as I don't know what it says.

--------------------
Amy

Posts: 9 | From Brick, NJ | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
lymers
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Hi Amy,

Do you have any idea how long he's had lyme? The longer he's had it, the longer treatment should be.

It's very important to get him to a lyme literate medical doctor (LLMD) as soon as possible.

In the meantime, I wouldn't worry about him being on antibiotics for TOO LONG...I'd worry much more about him not being on antibiotics LONG ENOUGH.

Many parents of young children have their children on very lengthy courses of antibiotics. In comparison, 5 weeks is not particularly lengthy.

Just be certain to have him take a good probiotic that is made for children. This will protect his tummy while on the antibiotics.

If it were me, I would push very hard for my child to be given antibiotcs until you can get him to a LLMD.

Lymers

Lymers

Posts: 287 | From Humboldt County, CA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
LymeLearned
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Here is the list of things I sent to my daughter's KAISER pediatrician that convinced him to increase her antibiotics from two to four weeks.

I pray she's in an "early localized" stage. There's even a small chance that her vague symptoms were just a coincidence and not actually an exposure.

She WAS playing for hours where I picked two Lyme Positive ticks in 10 minutes.

ANYWAY, THIS convinced him to extend treatment, and I'm inclined to provide it to any doc who seems to have a conscience and cares.


1. Flawed Treatment Guidelines for Lyme disease:

http://www.ct.gov/ag/cwp/view.asp?a=2795&q=414284


2. Unbiased Older Science:

http://lymediseasescience.blogspot.com/

3. New Law Protects Doctors: http://www.ct.gov/dph/cwp/view.asp?A=3659&Q=443628


4. Pandemic Infectious Disease Warning(GREAT 6pg. Article): http://www.21stcenturysciencetech.com/Articles_2009/Lyme%20Pandemic.pdf


5. 80% of confirmed Lyme patients do not recall bite:

http://opa.yale.edu/news/article.aspx?id=3278


6. Clearinghouse Guidelines:

http://www.guideline.gov/summary/summary.aspx?doc_id=4836&nbr=3481&string=lyme


7. Antibiotics Interfere with Test Results (top of page two):

http://www.labtestsonline.org/understanding/analytes/lyme/test.html


8. Hearing notice for IDSA : http://www.idsociety.org/WorkArea/showcontent.aspx?id=14974

--------------------
"SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:

http://www.youtube.com/TickedOffLiterally

Posts: 183 | From USA | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Amy08723
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lymers,

I had my neighbor remove a tick from his back on Memorial Day, which would be the only tick I've ever seen on him.

Unfortunately, I didn't know how to get a tick out, so I had to ask the neighbor since hubby was at work [Smile]

Anyway, that is when he got bit, but I don't think the tick was on him for super long, I don't know really.

His appointment with the LLMD is September 3rd, the doctor has vacation for 3 weeks starting next week, so yeah.

Plus the lady told me it will be like a 2 hour appointment, I'm not sure why, but I suppose thats a good sign, probably will be quite detailed I would think.

As far as the probiotics, I've just been giving him 1 or 2 servings of yogurt a day, although that probably isn't the right thing to do huh?

Thanks for all the info.

Amy

--------------------
Amy

Posts: 9 | From Brick, NJ | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
wtl
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Amy,

Make sure that the yogurt you give to him is plain, not the fruity kind as it contains a lot of sugar.

You probably should just get to a health food store near you and get the pro-biotic. somewheer I read that one tab of probiotic will contain good bacteria that's equal to a gallon of yogurt. So it is better that you give him plenty bacteria to keep his intestines healthy.

Good luck.

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Amy08723
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Thanks wtl,

I will go tomorrow and check into it, do you happen to know what it is called? Or maybe the worker would know right?

Thanks again!

-Amy

--------------------
Amy

Posts: 9 | From Brick, NJ | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
wtl
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Amy,

I can't recall the brand right at the moment. But I can check when I get home from work.

My daughter is 3 1/2 year old and hasn't learned to swallow pills. So I went to Whole Foods(a health food store in town and you probably have one where you live) and got her a bottle of chewable probiotic for children. I believe each chewable pill contains 3 billion bacteria.

From time to time, I gave her two instead of the regular one. She loves it.

Whole Foods store I went to hires some most knowledgable assistance in the supplement area and I believe the chewable one for children is the only brand they carry.

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Amy08723
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Thanks wtl.

It would be great if you could check the name and let me know. My little guy likely wouldn't be able to swallow a pill either, so I would like to know of the chewable one.

I'm not sure of a "whole foods" store, but there are like GNC and other ones around here, I'm sure they would likely have the same things, hopefully!

Thanks a million.

-Amy

--------------------
Amy

Posts: 9 | From Brick, NJ | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
wtl
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Hi Amy,

I am sure GNC has some products there.

I checked the bottle and it is Renew Life FloraBear for Kids. I also got online and found this product on this site:

http://www.nextag.com/Renew-Life-FloraBear-for-611499452/prices-html

The store I bought charges a bit more, I believe, but it is convenient than online.

I can't say this is th ebest product out there but it seems to work well for my daughter.

Hope this helps.

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Brussels
Frequent Contributor (5K+ posts)
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I don't want to make you afraid, but when my 2 year old daughter was first bitten, she took immediately amoxy for a few weeks and it didn't clear her lyme disease (even in the acute phase). She started on amoxy on the day I found the tick (who was there for less than 24 hours).

it took me many months on an extensive protocol (herbs, homeopathics, microcurrent) to get her symptomless again.

Second time she got bitten by a few infected ticks, she was 3 years old, she again took amoxy, this time for 5 weeks. She was worse in the end.

She started taking it on the day of the bite. My lyme dr told me to stop giving it her. As she was bad, I stopped it and went again to alternative treatments like before.

I suspect amoxy won't work if Bb crosses the brain, and amoxy treats none of tick born coinfections that I know.

My daughter had bartonella, mycoplasma and other things I can't remember, so I suppose that's one reason amoxy just didn't work even when I gave her from day 1 I found the tick bite.

It took me another 5 months of treatment to get her rid of lyme and coinfections, and no antibiotic anymore (since I found it MORE difficult to keep her on a non-sugar, low carb diet than to give her dozens of herbs and let her eat carbs and bits of sugar).

She caught candida during these 5 weeks of amoxy. I wonder if the candida was there already or got worse with amoxy. It took her AS LONG to get rid of candida. Bb and candida were her most persistent infections.

Now I will NEVER start with amoxy for her anymore if she is bitten again. She is still bitten here and then, but these ticks seem to be not infected...

She still got a lyme relapse after months without any treatment, but now I don't give her antibiotics anymore. I use many other alternative routes that I find friendlier to her.

She's now 5 and thriving, no more on lyme treatment, no more probiotics, no more herbs, zero symptoms. Her main symptoms were gastro intestinal, then joint pain, headaches, rashes...

When her lyme got chronic, she got then very swollen knees and unbearable pain.

Immediately after an infected bite she would be tired and fussy, or get very fast some Gastro intestinal symptoms (pain, diarrhea, bloating).

As her lyme symptoms are always linked to some GI dysfunction, now I prefer to go to alternative route directly, so that her bowels don't get harmed.

I'm just relating my own experience, not asking you to follow.

I never got excellent results from any ingested probiotics except for Rechtsregulat (that are mostly enzymes). The ravage amoxy did to her intestines can't be compensated with a bunch of other treatments I tried (Theralac included), as I told you, I had to fight her candida almost until the end.

I find candida as tough adversary as borrelia, so I hate letting candida spread. But if it were her first bite, and I didn't have the experience I got in treating her after so many infected bites, I would try the abx route as you are doing, for a maximum of 6 - 8 weeks.

If symptoms persist, I would then change strategy!

Now that I tried amoxy a couple of times, I won't repeat that again though. I think some kids do react well to amoxy if taken in early stages, but my daughter didn't.

I hope this helps.

Posts: 6200 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
   

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