posted
Over the course of four months into treatment, my wife has seen some mental improvement, but physically she has further deteriorated.
She has so far been tested igm positive for both igenex and cdc but no igg. She was on low dose of doxy for a while before switching to 1000mg biaxin.
She is severely disabled by this disease, I mean severely. She quit her perfect, good paying, low stress job at the end of April. There is no sign she could ever be back to work.
Thanks for your thoughts.
Posts: 822 | From midwest | Registered: Apr 2009
| IP: Logged |
I was diagnosed in July 2005 after a harrowing journey. The last few years before diagnosis, the harrowing part. Before that it was mostly shooting pains, migraines, vertigo, etc. like that.
I worked through treatment as long as I could but had to eventually stop work in Sept 2006 and I haven't been back since.
It's possible I contracted lyme as a child in MA in 1970's then diagnosed 30 years later. It's possible I contracted it about 15 years before I was diagnosed.
I did not see real improvement with the effects of the encephalopathy for about two years. I was on abx for two years.
SO MUCH OF MY MENTAL SYMPTOMS HAVE IMPROVED GREATLY BUT PHYSICALLY I AM MUCH WORSE OFF THAN I WAS WHEN I STARTED.
BUT, I can live with the physical pain and all those other symptoms. i could not live with what I was dealing with before.
In my case, it has thus far been a bit of a trade off, so I am sure this kind of thing happens to other people as well.
Best wishes for you and your wife. This disease is monstrous to deal with but in time, improvements are possible.
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I'll second that Wtl. I have noticed marked
improvement mental, dizziness, neuro. But
physically, I am being slow. Some days I think-OH
I feel wonderful I can get that sheetrock mudded,
and then I can't do anything but get on the
couch. My mind wants to but I am not ready for
that. I also know I have a parasitic issue to
resolve. I think it is still to early to have
such relief as my LLMD says it may take a year.
So hang on. I do believe we can beat this. Bless
you for being there.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
ABSOLUTELY.
This is the exact thing that has been happening to me over the last year, after five years of Lyme & Co.
I am completely bedridden but my mind is good and sharper than ever. Not much more brain fog at all, just some word finding and word substitution issues.
My main cognitive issue is just mental fatigue. I can connect the dots now, but I dont' always have the energy to pick up the pencil.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
posted
That happened to me. I started antibiotics and severe herxing started, made me sick as all hell. Also started seeing a pain management specialist because of the severe symptoms. My brain symptoms seemed to be getting better but my body was getting worse on antibiotics because of the herxing effect. Eventually went to the Lyme Research Center in New York. While on antibiotics, my brain tested 26 pts higher on the trail making B test, while also on oxycodone for pain. I was told Oxycodone should have made me test worse. Dr. F almost did not want to evaluate me because of the oxycodone use. BUT, Dr. F was amazed at the results. 26 pts higher put me into an entire standard deviation higher (for those of you who understand statistics)on the intellectual functioning test. That put me into a higher intellegence group, higher then pre-antibiotic treatment. I was tested before antibiotic treatment because infectious disease doctor thought I needed to see a physicrist even though I had a CDC positive lyme test. He didn't think I had lyme??? What??? Same test, antibiotics and oxycodone, then different results. Lyme Research Center concluded increased mental functioning was because of the antibiotics. I am currently off antibiotics because of the severe daily herxing. I was bedridden the entire time while on antibiotics. I am still severly ill but at least I am out of bed more often. So to answer your question... yes, treatment will help mental function but physical function takes more time.
Posts: 16 | From Buffalo, New York | Registered: Jul 2004
| IP: Logged |
posted
I really appreciate your feedbacks. They give me hope that she will get better, just a matter of time.
She has rarely complain about pain. As a matter of fact, I have never heard her saying about pain until she started taking abx. Now she says occasionally she has this mild bone ache but she seems to have a hard time describing the sensation. I did see some swelling of her left knee joint for a few days.
I should make clear that when I say mental improvement, I really mean that she seems to be more focused and engaging. she still has miles to go for short term memory and other mental abilities.
Thank you. If there are more thougths, please let me know.
Posts: 822 | From midwest | Registered: Apr 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic