LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Do all lyme people have this? It feels like an electric current is running through me. Sometimes in just one part of my body and sometimes in my whole body and head. Grr, I don't like it.
What could cause this? Infected nervous system? It's been 18 long years and I'm still not used to this. I don't know how else to explain it. Maybe an internal vibration?
And I had it before abx and supplements, and durng taking them. So it's not a reaction to meds. But I think it does correlate with the ringing and roaring in my ears. They both seem to get worse at the same time!
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I don't know what causes it, but I get this too from time to time.
And when you tell people what you're feeling they just look at you like you're on drugs.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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posted
could be the "parathesia" and "brain zaps" (q.v.) that many of us get
Posts: 727 | From USA | Registered: Mar 2006
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
I don't know if its the same thing you are describing, but mine happens a lot when I am waking up. I feel like my whole body is internally vibrating, or that I'm connected to an electrical outlet. It isn't painful, just very disconcerting!
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Mornings are always the worst, but I have it to some degree most of the time.
Brain zaps I get too. But that's different. I only get that once in a great while thank God. I consider a brain zap when I'm just sitting there and all of a sudden it's like a shock to my head or neck.
Then it runs down into my chest and up into my face, and I won't feel normal for a long time. I wonder what causes that too?
posted
I have the same thing that Ickyticky describes. It wakes me up in the morning and makes it impossible to keep on trying to sleep through it. At that point I have to get up and move to get it to go away. Very annoying!
posted
I had this really bad when I was first dx'd in my legs, along with pain. It's a neuropathy.
Getting up and walking around helps mild cases. Since Lyme is inflamatory - I'm thinking it effects our nerve pathways particularly from our spine.
Perhaps it is Neuro Lyme originating from the brain and Central Nervous system.
But I have felt - at least for me that it may have a connection to inflamation.
I have never read an explaination for it. Maybe someone will come along and post a link.
I will say it has improved and happens rarely now - to a lesser degree after 1 yr. on abx.
-p
Posts: 641 | From So. CA | Registered: May 2008
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Cindy Ss
Unregistered
posted
I have this too, it is very strange like a quivering dog going to the vet only inside your body...
Not visible from the outside.
I also have at times extreme anxiety and panic also. Never had it before, ever. SO it must be from the lyme and/or abx. Sometimes if I stop abx for a day it will go away but sometimes the abx seems to help it.
Very odd...
Has anyone tryed any supplements for this, I have had a few PM's that suggested 5-htp or L-tryptophan along with L-trysine during the day.
Just ordered some from my LLMD but havn't tried it yet. Still trying to find any adverse reactions to it.
So far I may just go for it to see if it works.
I'll let you know, my local Dr. seems baffled by the sensation, I was going to see if a neurologist may be able to help. It has to be some organ affected, some deficiency, or just plain lyme disease, my guess...
IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Piegirl is just like me. For me, the feeling goes away as soon as I get up and moving. It does feel like it's caused by inflammation maybe at the base of my skull somewhere? I dunno.
I have something else that is a bit different that involves my arms and hands usually. I explain it like this... if you hold onto a jackhammer for an hour, and then let it go...you still feel the vibrations of that jackhammer through your hands.
Thats what happens to me off and on for no reason. And when I clap my hands.. I feel the "reverberation" for about 10 seconds after I stop.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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posted
does it seem sort of like electric mixed with burning?
I get this feeling for like 3 days at a time, it comes and goes.
Posts: 73 | From ca, usa | Registered: May 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
It's most probably inflammation of the nerve endings. The CNS is basically on fire. It should subside with treatment. IV ABX usually helps best with that.
Meds like klonopin or zanaflex will ease the symptoms.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Cindy Ss
Unregistered
posted
Yes I do agree that it has to be CNS on fire, I had this symptom before dx with Lyme. I must say it has gotten worse with abx treatment, I am now worried about permanenet damage and am considering treatment with Cymbalta? I read they give it to diabetic's for diabetic neropathy?
Any ideas on this, I know we are all diffferent and different meds affect all of us differently it seems.
Possibly reducing inflamation to this area may help but how do you do that? Supplements? Cymbalta?
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
High doses of B vitamins are important and magnesium.
IM shots would be best or IV high dose vitamin C with B vitamins and mag. Oral B complex, high dose every day and magnesium, too.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Cindy Ss
Unregistered
posted
Hi Abxnomore,
Have you ever heard of a neg reaction to B-12 injection. I am getting weekly and it used to help this symptom but now it seems to make me so nervous in the evening. It usually hits about 8-9 hours after injection where I fear I am having overdose or?
I was getting monthly and didn't have that problem but with weekly the last 2 times it was pretty bad the evening of.
I am going to Nutrition Store today to get the extra vitamin c and magnesium, hope this helps me with my nervous jitters. I really don't want to begin Cymbalta, my local MD also mentioned Buspar for anxiety which seems to be related to this.
I think it is easier to take and less side effects.
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
No I have never heard of that and never experienced that myself. Are you taking the full range of B vitamins as well or just B12? If not you should be either by IM or with a capsule. If you take capsules get a high dose B complex. Solgar makes one.
To get the full benefit of B vitamins you have to take all of them.
You might ask your doctor if he can let you put magnesium sulfate in with your IM B12 shot. It does wonders to calm things down. Works better than Valium!
What would be best is to put b12, b complex and mag sulfate in your shot, if he would go for that.
But it is a good idea to get some magnesium glycinate. Are you taking any magnesium now?
And may be pick up some calming herbs, too. The person at the health food store can help you with that.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Cindy Ss
Unregistered
posted
No Magnesium at this time other than what is in my multivitamin. I am planing on getting this today and suggestions on good brands for this.
I was not supplementing extra B or 12 due to weekly injection. But I do have both an started taking B-complex yesterday. Hope it helps...
I know the B-12 injection is not the (good type). Maybe that would make a diff.
Do you know if there is a dosage differenc from monthly to weekly? I was thinking that possibly the dose she was giving me for weekly was the monthly dose and that is why I was having the problems? Sound logical?
THan you so much for the tidbit, hope it helps all of us here. I really do not want to start Cymbalta so I will try all of the other routes first...
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
In general health food stores don't carry the first tier brands which are pharmaceutical grade.
Kal makes one that comes in a large dose. Solgar is usually dependable.
Magnesium is essential to calm the nervous system and performs so many other functions. Once you start the mag and get going on the b complex it should help.
I doubt the dose is different between monthly and weekly and that is the problem. It's probably your lack of magnesium and B vitamins contributing the to problem.
I would try this approach first before cymbalta, too. You have to get your nervous system to calm down. ABX will eventually help too.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Cindy Ss
Unregistered
posted
Yes thank you where do you find the pharmaceutical grade? My LLMD carries pharmaceutical grade in his office but I would have to order over phone.
WIll see wht the local nutrition stop carries or order froM LLMD.
posted
Try vitacost.com. I think they carry pretty good stuff. I get the Magnesium Calm (and other supplements) from them, plus glucosamine for my dog! And shipping is only $5.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
You can get them either from a doctor who carries them or from the internet. If you click on the link below and look on the left hand side the product lines he carries are mostly the very good ones:
http://www.myhealth-store.com/ His prices are decent and he is knowledgeable about products if you call him but if you do a search you can probably find better prices.
There are tons of sites, where you can find good deals.
Pure encapsulations is very good brand, because it does not contain any fillers.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
I have had the internal vibrations or internal tremor for 2 years now. I take a beta blocker for my fast heart beat and the beta blocker really helps to diminish the sensation.
Posts: 56 | From Austin, Tx | Registered: Aug 2009
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posted
Pulsating electrical feelings in legs mostly for many years. They disappeared during my abx in the spring. After a month or so off abx they started again. LLMD says it is the Lyme.
Also depression/anxiety. I can't plan or sequence things. Cried my whole dentist appointment a week ago because I was late.... strange behavior for me.
LLMD started me on abx again and also wants me to take an antidepressant. I haven't picked the antidepressant up yet and at this time don't plan to.
I have been treating for 20 months and probably have had Lyme for more than 25 years(Fibromyalgia diagnosed over 22 years ago). Last tick bite was just over 2 years ago.
I had several days of actualy feeling normal before these and many other symptoms started again. I want a life!!!
-------------------- "His faithful love endures forever." Psalm 136 Posts: 189 | From MN | Registered: Dec 2007
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