posted
Hi All, I don't post often but I read all the time.
I am in a bad place. I can't remember being this
depressed before. I did the zithro/mepron until I got so sick I couldn't walk. I stopped and
have gone into a funk that is the worst I have ever been in. It's 3 weeks now.
I have no hope. I have no vision of a future. My son who is 28 yrs. old came to visit for a
few days and behaved like a spoiled brat who is angry that his mommy is sick. I can't fix him.
I can't keep up with bills and work. I am afraid I am losing my house. My job is the only thing
keeping me going and even that is making me crazy because I spend all my "good" time helping
others live a great life and then I end up having no life at all on my time off.
I feel so awful.
Thanks for reading any feedback is greatly appreciated.
Blessings, Just Jan
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I'm sorry you're so depressed Jan. Please talk to your LLMD about it. This is a significant symptom and sometimes meds are needed to help with it.
How long were you on mepron/zith? Did you try mepron/biaxin? I couldn't tolerate the zith.
Also, during my first herx about three weeks in on mepron/biaxin, I could not walk, but the herx passed and I saw improvement. Every 21 days I got worse for about a week, but over time improved.
Did you go off the meds with your LLMD's knowledge? It's important to talk to the doc about any changes.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Dear Jan , so sorry you are fealing so down ! I've been there and I know how hard it is to deal with it all , especially when those close to you don't give you the compassion we need to help us through the tough times !
I'm sending prayers your way as I have found that prayers have been answered for myself and I hope they will help you in your times of need !
You should know that we here all care for each other and will do whatever we can to help one another!Big hugs to you and I hope you are able to feel better soon !
Posts: 97 | From West Chester ,Pa. | Registered: Aug 2006
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a few weeks ago I had started a new med....I was very doom and gloom...no hope...couldn't see any future..or wanted one...
in a dark tunnel and couldn't see any light...and didn't care to see any... not a good place...
it did pass though...it took what I thought a life time...but has passed....
still having some set backs but much better.....
just keep plugging along.....we are all here for you...
keep coming to the board for support...
thinking of you!! mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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posted
Thanks so much for all your replies. Yes, my LLMD knows what I am doing and wants me to go
back on the combo with much lower dosage and slowly build up to max. dosage.
Biaxin kicked my you know what. I still don't have the stamina to work up to the
herx, plus I was waiting until my son left so we could have a nice visit...silly me!
Blessings, Just Jan
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Jan,
I am sorry you are in such a tough place right now.
Just know that there are lots of folks here at lymenet that understand.
I have friends and family too that just don't 'get it' too and know how you feel.
It is so frustrating at times. They expect us to be supermom when we can't be supermom anymore.
I've been on meds that made me feel the same way, but it got better, it just seems like forever, but it does get better.
You are in our thoughts and prayers. Don't forget that. Ok?
God bless.
Linky
Posts: 2607 | From Hooterville | Registered: Apr 2009
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However, try to keep in mind that the disease and treatment is probably causing the depression.
I also spin down into a very dark, hopeless depression every so often. I thought it was justified because there was a lot to be depressed about (everyone with depression thinks that).
However, I realized in my case, it was concurrent with my physical state. When I was weak, I also got hit with depression.
In a day or so, I'd feel better, get strength back, and the depression would suddenly lift. (Typical depression shouldn't wax and wane like that).
These episodes have been fewer as I've gotten better.
Interestingly, I am on zith and mepron too. I don't know if this is a herx or just a side effect of the infections
So, try to grab hope that the depression is not YOUR fault.
Definitely talk to your LLMD about it as Sixgoofykids suggests. Take anti-depressants if prescribed. Think of them as "pain-killers" killing the pain of depression. You're having a tough time already, you don't need depression making everything else worse.
If you're on ADs then maybe you'll need to change something.
Hang in there.
Good luck,
James
Posts: 872 | From New York City | Registered: Jun 2008
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posted
Jan, I am so sorry for all that you are going through. I could not do Mepron at all. I was only on it for 10 days and became very depressed, but was better after stopping.
Maybe your LLMD can substitute another like Malarone. I pray you feel better.
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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My PCP actually ordered this test, BC/BS paid for it. It has lots of stuff in it but basically all I got was suggestion to use travacor/adrecor (very expensive) and she prescribed me cortef cause my cortisol was around 1.
Posts: 856 | From MA | Registered: Jul 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Sorry you are going through this. Read the Mepron Blues thread. I know you said you went off of it 3 weeks ago, but it could have started the depression and it is still there. I hope you feel better,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Jan are you on thyroid also. It can contribute to
feeling like that. I am sorry you are having to go
through this. When can you start treatment again. Have you signed up for SS disabilty?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
HI, Thanks for all the suggestions. I am still so despondent. I just have to put one foot in front
of the other. I hate feeling this awful. Yes, I am on thyroid meds.
Yes, I will ask my LLMD about neuro testing. Yes, I do B-12 shots and take mag.
I am also writing a letter to all my family and friends asking for help of any kind. We'll see
what happens because we all know...BUT YOU LOOK SO GOOD???????? It makes me nuts.
My neighbor, who is very sweet, and I were in
the garden this morning and he doesn't understand that I can't stand up for any period
of time. He isn't mean about it but I can tell he thinks I am not "forcing" myself through the
pain. Yuck! Thanks all.
Blessings, Just Jan
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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EtherealGirl
Unregistered
posted
Jan,
I'm so sorry to hear that you're still feeling down. Depression is a serious condition and you may need professional help to get out of this funk. I remember the first time I went to my doctor feeling extremely blue. I had felt this way off and on for years, but at this point I had a small child I needed to care for and couldn't spend a week on the couch.
She prescribed Lexapro for me. It took a few weeks to feel any better, but boy did it help.
I've been on most anti depressants out there. The one that works best for me now is Cymbalta because it also helps with the pain.
There's nothing wrong with seeking professional help. It's probably saved my life, and now I don't get the blues anymore.
Take very good care of yourself, and let us know how you're doing!
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Hmmm...Mepron and Zith can both cause depression, let alone together. The good news is that these symptoms can be controlled, please get some help, there's no need to suffer like that.
Posts: 3528 | From US | Registered: Apr 2007
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posted
Hi All, I am on Celexa already. I was on Effexor but had
bad reactions so I had to stop. I am getting professional help. I can't get out of this
hole...it is so deep and dark and dank and lonely. Having my 28 year old son come and
behave like a spoiled teenager didn't help. As I said I wrote a mass letter to all my family
and friends to see if anyone can help. I hope I haven't set myself up for a big splat! Blessings, Just Jan
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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you might need to call that link and see what amino acids you need to solve the symptoms
a regular doctor prescribing cortef may take care of initial symptoms but the other feeds your body to produce the cortisol i think there is a number on their site and maybe have a consult with them to see if anything else
as i understand that test is suppose to give alot of info, but the doctor may just not be familiar with it
Posts: 187 | From FL | Registered: Nov 2007
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posted
also supplement Intramax is a good boost might help mood since it has lots of nutrients and gives energy but do not take meds until 2 hours after this supplement will last you a while cause you will only take like a teaspoon to start
others are standard process dessicated adrenal drenamin for adrenals
also premier research adrenal complex and 2 months later take premier research adaptagen also premier research gold 360 try to to go to their site and see what tests for your system they usually will test a TON of stuff but just take a few
i dont know which will help you but i know that feeling of despair please hang in there!!
Posts: 187 | From FL | Registered: Nov 2007
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-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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