posted
Been fighting Lyme and Babs for 9 years. Have had cheek tingle often, but NOW my entire right leg and butt are tingling, aching and then painful when I go to bed: PAIN as in #9 on the scale of 1-10. Oh, top of foot and ankle too. Had the foot tingle-numbness at first in 2000. My LLMD is on vacation for two weeks. I am in GA; she is in CA. I called her off., but her NP has not returned my call. I'm anxious about this. If feel that if I go to a Dr. here, I'll be dx with MS or something. Anyone know how to treat this tingling/numbness???? TH for any replies. Martha
-------------------- Marjo Posts: 39 | From Full-time RVer | Registered: Aug 2001
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posted
I odn't know but I get all variations on tingling or sort-of-gone-to-sleep feelings in legs & arms & sometimes face or scalp, but not with pain.
I was told to add more vit. B 6 for the face tingling.
Posts: 424 | From Connecticut, USA | Registered: Nov 2003
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Can you try some magnesium oil on the skin. I have to start slowly with one drop and now take 20 drops a day. Are you on enzymes, they can cause it?
Posts: 1834 | From US | Registered: Oct 2008
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Martha, are you feeling better? Do you have bartonella? I am on HH and as I was cutting down on HH my horrible vibrations are back again. Also sharp pain in brain. I wake up during the night with heart racing and vibrations all over the body. I am not so often online, pm is better.
Posts: 1834 | From US | Registered: Oct 2008
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posted
To karenl, THANK YOU so much for the suggestion on enzymes. I started them a month ago. I need a digestive enzyme cap with meals to help my pancreas. But I bought a larger dose. I shall stop these and see what happens.
-------------------- Marjo Posts: 39 | From Full-time RVer | Registered: Aug 2001
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Also do a search on here for parasite symptoms. Antiparasitic herbs also help,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Martha, sent you a pm. If you have low alpha one it is not enough to wait a month, then your body cannot deal with enzymes.
Posts: 1834 | From US | Registered: Oct 2008
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posted
alpha lipoic acid taken several times daily
MetanX a prescription vitamin combo for neuropathy
Lyrica
gabapentin
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
I like HH a lot but I am not healed. There is more in the SEARCH function. Cindy it is late, so I wish you a good time on lymenet. I like lymenet a lot, great people.
Posts: 1834 | From US | Registered: Oct 2008
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Cindy Ss
Unregistered
posted
Thanks Karen,
I actually just bought this Dr. book The Lyme Disease Solution and really have learned alot from it.
posted
Bug Barb no offense intended but I would not suggest that people take what you have suggested. There can be very serious problems esp. with ALA and Lyrica.
-------------------- If you keep doing nothing...nothing changes!
posted
I was just throwing out possibilities. I would totally expect someone to do research on their own and talk to their doctor before doing any of those things. Especially since most of them require a prescription.
On the ADA discussion board, ala has been found to be very helpful for diabetic neuropathy.
No offense taken.
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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