posted
My neck skin constantly burns....and my face too. My neck muscles are so tight, they burn, I get shooting pains, and this started happening last year in Feb or so.
At the same time, I got swollen lymph nodes, before that I had lots of ear infections, eye infections, twitching, rashes, and then tested positive for Lyme twice.
But since the pain is around my neck and face they did an MRI and it shows that I have disk bulges at c4-5, c5-6, c6-7. Degenerative Disk Disease. Cervical facet syndrome. However, the "bones" and structure of my neck does not hurt what so ever. It's not stiff or anything. It's weird. But I do have tons of nerve related pain.
Then in Feb of THIS year, I woke up and could not walk. My entire left leg was numb, cold and burning at the same time. I could not walk really, I could just drag it, but would fall all of the time. I relearned to walk on my own, but it still feels heavy and I have HORRIBLE nerve damage in my foot.
So, I went and got and MRI of my back and a nerve study immediately. It showed lots of stuff wrong with my back, I don't have the piece of paper in front of me, but it was bad.
So, I guess against what I'm supposed to do having Lyme and all, I'm taking a gamble and having nerve blocks and injections today at 4:30. I'm really scared. But the pain is so much, I can't take it any more. I feel like I will kill myself if this pain that never ever ends keeps going on. It's been a long year and a half and I just feel like my spirit and will to keep fighting is dying.
So, we scheduled 4 surgeries. I do the first one today on my neck. I am scared because I forgot not to drink 6 hours prior but I drank 2 capri suns 4 hours prior to surgery. EEEKK.
I did get in a bad car accident when I was 16, I hit a tree head on at 60mph. I walked away from the crash, literally, it was at night, and I didn't feel any pain but in my wrists, and just a tad in my back. It went away and I just thought I was lucky.
I just doubt though that over TWELVE years later, these problems came on literally SUDDENLY. I still think the burning is Lyme related, but if it isn't and it is from damage to my neck and back....what if I didn't have this surgery and ended up missing out on having a life....or not giving up.
So, please pray for me, pray for success (of course I won't know if it really worked for a week or two or three...considering the 2 surgeries on my neck, 1 week apart.
Please pray because I have a little boy and I don't want anything to go wrong, I love him so much. They are putting me completely under from what I understand and I'm terrified of that and I know that you aren't supposed to do that either when you have Lyme unless it's really necessary. Well, I feel like it is because my desire to keep fighting is fading fast and I feel that I will give up by the end of the year of something doesn't change. My mind is just giving up. I know I can't live like this. There's just not enough medicine in the world to keep me out of pain. I already take the maximum dose of what helps the pain and it already isn't enough.
I'm not abusing it, I'm just really tolerant to it. I run out long before I get a refill and I'm just tired of it. Always running away from my pain, running out of medicine, I'm always running....from something.
Well, please pray like I said like 2 times before this! I'm just scared, please pray for God to lay his hands on me during this and bless me by giving me my life back...I know I won't get "my" life back, like the one that I had, but maybe a new one....one that's better than this one. Thank you.
-------------------- ---Beautiful Disaster--- IgeneX WB: IgM: 18+, 31+, 41+, 58+, IgG: 31++, 39 IND, 41++, 31kda Epitope Test: Positive Labcorp: IgM: 23+, 41+ No LLMD due to money since Sept 2008. Was on Doxy, I.V. Rocephin (30 days), Flagyl. Also dx with Bartonella. Posts: 139 | From United States, East Coast-ish | Registered: Aug 2009
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posted
Wow, I'm not religious but I will pray for you. Good luck, stay strong for your boy and you'll be alright.
Posts: 124 | From Toronto | Registered: Aug 2009
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
I will pray for you for sure.
I've been put completely under with general anesthesia 3 times in the past two years and handled it just fine. Try not to worry.
God bless, klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I am so sorry you are in so much pain. My entire spine has been hurting for awhile pretty bad... I think for me it is the babs because when I take/increase something art. like it gets worse.
I know how horrible it is to live with such bad pain. I hope the sugery helps you. Sengin healing thoughts and prayers your way.
gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
You are in my prayers. May His grace and peace be upon you and your family and this time and give wisdom to the doctor(s) as he perform your surgery. Keep us posted.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I wish you all the best with your surgery and hope it provided some much needed relief.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Thinking of you and wishing you a good outcome.
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Ditto - I hope this helps you, I can't imagine living with that much pain. PRAYERS COMING YOUR WAY!
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I know it's late but i'm praying for you too. And sending you a big hug
God bless you!
Posts: 5237 | From here | Registered: Nov 2007
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posted
Pain is so terrible to endure for years. I had up to 5 shots a day of methadone and IV's twice a week. I know exactly how awful the pain can be and how it nearly drives you mad.
But with lots of help, therapies, etc. I got through the worst of it. And you will, too. I had nerve blocks a number of times and they worked like magic!
Good luck and remember that little boy who loves you so much. My kids and husband were my reason for fighting so hard and so long. I'm still fighting after 21 years and they all still count on me to continue.
My daughter once told me that I had set an example for her that would last her whole life. Maybe that is what you will do for your son.
You are in my prayers.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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Praying you are home and recovering and the surgery will alleviate the pain. Lean on the Lord - he will never leave you or forsake you, even when it seems dark and hopeless - he is always there. Your son is blessed to have a mother who will fight to get well and be there for him. You are in my prayers.
Posts: 239 | From Virginia | Registered: Jun 2009
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