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I just got a fax copy of test results. The ID dr at Good Sam. Dr. N had taken the blood test for Lyme after I asked him too. Good Sam sent it out to IMUGEN I guess in MA.
I spoke to Good Sam last week because they called me to let me know I had to redo another series of blood tests I had done with a different dr, a dermatologist last week -- because they THAWED THE BLOOD ACCIDENTALLY - and it needed to be frozen.
Good Sam said it wasn't their fault but I wondered about how accurate the Lyme test would be with the same people handling that blood. I do not know how it needs to be handled.
So I got back ANTIBODY CAPTURE ENZYME IMMUNOASSAY showing <1 for IgM, IgG, and IgA. Says interpretation no serologic evidence of infection with B burdoferi/Lyme.
Then there is Immunoblot -- same thing as western blot? IgG and it says Bb G39/40 and under that says 58 and 41 then in the next column it says Bb 49736 with number 62 and 36.
Does anyone know what this means - is this negative negative? Is immunoblot IgG same as western blot. Guess under <5 antigens is normal range according to this IMUGEN report. Is this a good lab for Lyme testing?
Any help is appreciated. I got into see Dr. I in Plainview tomorrow ID I believe - hoping he is good! Putting some history below! thanks
Okay, not my first post. Not diagnosed with Lyme or any co at this point because none of the over 10 in 8 months or over 40 doctors in last 4 years seem to know anything about Lyme. And yes I like the lil faces.
So, slight summary here for anyone who has not read my other posts. I will try to be brief.. which is hard lately to get what is in my head on this screen easily or clearly so bare with me please.
Someone just told me SBU Lyme testing is not that accurate. I had been tested there a few years ago but not for co infections which is apparently what their lab is better at.
Whatever testing done there was negative at that time. So, I have some current test results and still all symptoms of Lyme, chronic & neuro, sudden onset, meaning overnight and since
disabled, osteoarthritis of spine and tons of
other symptoms as listed in other posts, low
grade fever for 4 years and possibly co-infections as well.
Again, 6 month post 2 fusion surgeries my symptoms became much worse, more widespread, cyclic, changing, moving, and have started to affect my brain, emotional state, cognitive ability, skin, vision and head big time and getting worse.
Although fusions appear to have solved problem, the pain is there like nothing was ever done to correct it - like 5,000,000 large rubber bands are wrapped around my low back spinal cord and being pulled and taut and tight and dry.
Like a tearing, sharp stiffness like my back is going to snap. I still get locked in place.
My ID dr did a babesiosis peripheral blood smear/Giema/thick and thin at Good Sam that came back negative. Galium scan showed some diffuse muscle uptake in lower extremities.
However he did NOT have this test done with a Lyme test or for Lyme I guess. When I then mentioned testing for Lyme he did not think my symptoms were Lyme symptoms as I said in all my other posts. But, he ran some tests after I asked him to telling him SOMETHING IS WRONG.
He said even if the tests he ran came back positive, they would be non specific and I would need a spinal tap almost acting as like why bother looking - seriously!
So it went like this - went away to PA & upstate weeks later noticeable change in how I felt - I mean bad.
One trip, we went away to Motocross racing boyfriend loves & I was walking all around with him and fine. I don't want to get another one unless it would be 100% or close to helpful.
On the next trip, I couldn't get off the bench because I was so fatigued, feeling sick, no energy, and that has not stopped since - weakness,etc.
Started getting low back stiffness about a year later and overnight had spinal prob develop w/ swelling, fevers, weakness and pain- causing me to become disabled since!
And I have read spinal taps are often pretty much useless, not accurate and not specific and that there are newer blood tests that show more and SPECT brain scans, etc that are much more helpful.
Does anyone know what tests are better , more accurate - what tests should a doctor run on my first visit - and for co infections what tests. I heard of PCR and others but when dr tomorrow does testing, I want to make sure he is doing the right ones.
I think Dr. I. I in Plainview is an LLMD. I did get his name from this website from a member and on another Long Island website.
Thanks again
Posts: 9 | From SUFFOLK COUNTY LONG ISLAND NY NEAR ISLIP & HUNTINGTON, PATCHOGUE, RONKONKOMA | Registered: Aug 2009
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bettyg
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i'm not up on test results; up for help ....
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Not diagnosed with Lyme or any co at this point because none of the over 10 in 8 months or over 40 doctors in last 4 years seem to know anything about Lyme. ![[Roll Eyes]](rolleyes.gif)
And yes I like the lil faces. ![[bonk]](graemlins/bonk.gif)
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