posted
Are most of you very up and down with your symptoms?
Wondering if anyone else feels ok during the day...but bad at night/mornings?
I feel very strange/bad at night (while 'sleeping'). I do sleep but it is like I'm in a coma...I say that because I feel I'm dying in a weird way, hard to explain.
My body/blood feels like it is trembling or vibrating..yet I'm not physically shaking. I also ache all over and my mouth/tongue has a bad toxic taste. In the morning when I am trying to wake up I feel HORRIBLE.
Like today, I felt delirious/drugged...I thought someone was breaking into my house (hallucination I guess), I tried to get up and then blacked out for a few seconds. I was so weak and achy I thought I would be in bed all day.
But then...I managed to drag myself out of bed. About 30 min after I wake up I am usually ok most of the day. Like today I felt perfectly fine ALL day. No aches, no fatigue, nothing... How weird is that?
This has been going on for over a week now.
Does anyone else feel mostly bad at night/mornings but then ok during the day?
-------------------- TxLymie IgG-Negative IgM - Postive bands 23 and 41
Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori Posts: 297 | From Houston | Registered: Jun 2009
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posted
I have a a cycle also, most of the time. But it's opposite yours.
I generally get a bit better sometime between 4 PM and 11 PM (it varies)...but my mornings/days are very bad.
Posts: 322 | From Venice, CA | Registered: Sep 2008
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bettyg
Unregistered
posted
what meds are you on? amandatine causes hullinations; happened to my hubby.
do youi wake up struggling for air? you might have sleep apnea where we stop breathing. i never knew it, but someone suggested it, and yes i have it.
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I was like that for the longest time, right before and at the beginning of treatment.
Except I'd wake up feeling good, then within a half hour start in with air hunger, and that would be with me all day till after supper, then I'd be pretty good till bedtime, then it would hit again and I couldn't get to sleep or stay asleep.
It got better with treatmetn, but just last night things kicked in again after not dealing with it for over a month.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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Cindy Ss
Unregistered
posted
Hi TxLymie,
I too upon awakening lay there quivering (internal of course) not every day depends on what I have done to myself. What changes I have made or detox I have done, or med changes. Once I get up and get moving I can see how I will be for the day.
I am usually ok off and on depends on the minute, hour, and day. I too am in the beginning of my tratment.
Only 9 weeks on abx but some things have improved
I take things to help calm me and also have anxiety that I deal with too.
Vitamins/supplements help me as well as a small prescription for Xanax.
posted
Thanks for the replies. I guess it is like everything else with Lyme...no figuring it out.
Still floors me how bad I am one moment and how good the next.
I have woken up choking before but that is usually right after I have had a very hard day/lots of stress or a few days of no sleep. Then I seem to crash and it's almost like my body is dying, stops breathing...of course that is when I wake up choking.
Maybe I do have sleep apnea. Just add it to my ever growing list I guess.
-------------------- TxLymie IgG-Negative IgM - Postive bands 23 and 41
Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori Posts: 297 | From Houston | Registered: Jun 2009
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posted
that is exactly how i feel at night..how weird..well, at least 2 weeks out of the month i do...my symptoms very much cycle.
Posts: 94 | From ut | Registered: Jul 2009
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posted
I feel the worst during the night and when I first wake up in the morning.
I sometimes wake up in the middle of the night or when I first wake up in the morning feeling like I'm going to die. It's scary how sick I feel. It's not every day though.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
What I wouldn't give to figure out why I get vibrations around my head and neck in the wee hours of the morning. It's pretty much my only constant symptom. It never fails to start after I've been asleep for about 5 hours, almost like clockwork. It is unbelievably annoying. If anyone would ever have an answer to this, I'd love to talk to you! Will
Posts: 131 | From MD | Registered: Jul 2008
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posted
I've been tracking my symptoms every day for almost 3 months and I guess I am beginning to see a cycle. I know when I had all this before it lasted about 4 weeks, then I had 3-4 pretty good weeks and now I am back to bad again.
Of course the other cycle is the daily one which I posted here.
Aiden I know what you mean about feeling like you are going to die.
What blows my mind is I can feel like I am dying in the wee hours of the night/morning but then by 10am I'm doing just normal daily stuff and feel normal (for the most part) about 75% of my day.
Wish I knew what the bugs were doing at night...it kinda freaks me out. Like a burgler coming into your house when your asleep, it seems the bacteria know your defenses are down so they come out to wreak havoc. I abhor this disease!
-------------------- TxLymie IgG-Negative IgM - Postive bands 23 and 41
Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori Posts: 297 | From Houston | Registered: Jun 2009
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