posted
I could use some thoughts. My main symptoms have been daily headaches, stiff neck and heart palpitations.
I have started seeing a new LLMD and the two things he added to my treatment plan are cholestyramine and nystatin. I have been on this for about 2 months.
About one month ago my heart palpitations and headaches got much better. For the first time in 9 years I have had 2 weeks without a headache!
My neck is still stiff but better.
About 3.5 weeks ago I started getting a pain in upper middle back. That pain came and went for about 2 weeks.
In the last 1.5 weeks The pain has also moved to my sides below my ribs and above my hips. Also the pain is now lower in my back too.
I have been having these spells where I have to rush to bathroom. I have greasy stools and the toilet paper is yellow.
I had my gallbladder out 2 years ago.
In the past 3 days I have just horrible fatigue.
My doctor did a blood workup and my alt was a little elevated at 60 and lipase a little elevated at 66.
Yesterday the pain was so bad I went to urgent care. Blood work showed the same with slightly elevated enzymes. CT scan showed nothing unusual. Urine was fine as was ekg.
My doctor is saying it could be herx or just bacteria stirring up in different locations.
The ER doc said to keep an eye on enzyme numbers but thinks pain is likely from muscle or nerve irritation. They sure dont feel that way to me.
Any thoughts on this would be appreciated. I was feeling so hopeful when my main symptoms started to get better but this new pain is almost worse.
I have anxiety after all these years and feel like its something serious like liver or pancreas despite the tests not showing anything alarming.
Posts: 27 | From Boulder, CO | Registered: Sep 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Sounds like pancreas. Yellow stool. Or stone blocking duct. Or liver messed up. Did they consult a gastro doc? They could have at looked.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
No gastro doc was consulted yet. I have pancreas on my radar but the ct scan showed all the organs looked normal.
Posts: 27 | From Boulder, CO | Registered: Sep 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Are you on IV or a lot of abx? Rocephin, for instance, might cause this. Plus, any abx causes neurotoxins and toxins in general to accumulate. So we need lots of detox.
It sounds like a lot of liver congestion. I would suggest a Liver Flush. They help a lot!! And you could do one every two weeks until you don't have these symptoms.
Of course, you can continue to get checked out, but regular doctors don't know anything about Liver Flushes and detox. LLMD's know more, but still not everything.
Rumigirl
Posts: 3771 | From around | Registered: Mar 2008
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bettyg
Unregistered
posted
mark, not on your meds....
i had my gallbladder removed 30 yrs. ago; i have yellowish bms all the time still to this day.
so it is gallbladder related as well.
are you allergic to any foods: gluten/wheat? dairy? that's all i do know
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
They thought my brother in law had pancreas cancer.
Went to Baltimore where the worlds leading
authority on pancreas works. On normal scan it did
not show up. When he started itching like crazy and
turning yellow it was found on PET scan. Did
surgery and doc said it looked like cancer but it
was not it was just disease. But you don't want
to take chances with it.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hi Mark,
I have not had the pain, but one time several years ago, before I started treating, but was clearly infected, I had the same thing happen.
I had a sudden 'urge' to eliminate and when I did, what resulted was yellow, greasy looking, mush. It scared the heck out of me.
I had abdominal ultrasounds that were normal and it has never happened again.
In your case, it seems to be an extended occurrance. I would demand further investigation. What have the docs said or attributed the 'yellow' stools to?
BEST, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
It could be some parasite like Giardia, which is much easier to contract than most people realize. It will cause the urgent need to go and 'yellow', soft or mushy stools.
At least Giardia (and perhaps other parsites) is something they could test for pretty easily. And a round of Flagyl usually knocks it out.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
I'd get to a good gastro and get my pancreas checked out. The symptoms you are describing make it sound like gall bladder, but you don't have one, so your pancreas and liver need to be looked at.
This is my opinion, I'm not a doc!
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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