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» LymeNet Flash » Questions and Discussion » Medical Questions » My test results

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Author Topic: My test results
sariejack
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I worked at a vet clinic about 13 years ago, my main job was bathing flea and tick infested dogs
and cats.

I got very sick while I was working there, which I believe was the onset of my Lyme disease.

Over the past 13 years I have been told I have fibromyalgia, maybe lupus, or that maybe I just needed attention.

I had the usual LabCorp western blot about six months ago, and the results were "inconclusive."

My dr. then referred me to a LLMD, who ran the Igenex tests. My reults were:

Lyme IgG Western Blot: **41 + and 58 + (everything else neg)

Lyme IgM Western Blot:

**23-25 IND
**34 IND
**39 IND
**41 ++

The IFA showed <1:40 titer.

Based on these results and knowing my past history of working at a vet clinic, and the weird symptoms I have had over the past 13 years, my LLMD decided to treat.

But she feels abx would not work as I have had the illness so long.

I had been on a natural regimen with Artemisinin and Cat's Claw until I had a bad herx that landed me in the ER a week ago.

I went off the treatment cold turkey and want to start again, but slower.

I just wanted to share my experience and see if anyone has similar test results, etc.

My worst symptoms right now are sleeplessness, burning feet, burning pain in my leg, and vertigo.

Posts: 14 | From New Bern, NC | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
liesandmorelies
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Sariejack,

I had been sick for years before I was dx'd, but my LLMD has been treating me with abx and I have made good progress.

Is your LLMD only recommending Artemisinin and Cat's Claw or are you doing that on your own?

Were you tested for Babs or Bartonella?

I think most LLMD's would still try to treat with Abx even if you have had the disease for a while.

I hope you get well. Thinking of you =)

--------------------
aka: Lyme Warrior

In order to do "real" science, you have to have a "real" conversation with nature.

Well Behaved Women Rarely Make History!

"Just Demand your Rights"

Posts: 869 | From nor - cal | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
sariejack
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Hi liesandmorelies--

Yes, my LLMD put me on the Cat's Claw and Art.

However, we recently moved to NC and I am hoping to find a new LLMD out here.

Perhaps one with a different protocol, who might give abx a try.

I was not tested for Babs or Bart. But I wish I had been.

Thanks for replying!

Posts: 14 | From New Bern, NC | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
kitty9309
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I would seriously think Bartonella, given your job history.

Search "Breitschwerdt Bartonella"

Also see www.galaxydx.com

That is how I got my Bart dx. Dr. Breitschwerdt at NC State Intacellular Pathogens Lab.

Posts: 819 | From East Coast | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
sariejack
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Hi kitty9309, I am going to PM you to ask more

about Dr. B. But I am curious--I don't know much

about Bart. Is it possible to have Bart and not

Lyme? Why do you think Bart more likely than

Lyme? Off to educate myself...

Posts: 14 | From New Bern, NC | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Dekrator48
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I have had lyme and co for about 22 years now and just started treating 7 months ago....I just had a fibromyalgia diagnosis until early 2009.

I am on long term combination antibiotic therapy like most people, and I'm treating for coinfections, despite a negative test.

Many people have negative or inconclusive tests.
The tests are not that good.

The IND results on bands 23-35, 34 and 39 are good clues though, since they are lyme specific bands.

A good LLMD will treat you with antibiotics and tell you that it will probably take a very long time to get better.

Hormone testing and starting bioidentical hormones have also been important for me.

In case you haven't read Dr B's treatment guidelines here they are:

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Good luck, I hope you recover!

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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seekhelp
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How much better are you Dekrator48?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I would definitely find a real LLMD. I had Lyme for 42 yrs before going on abx and after 4 yrs went off. That was almost 5 yrs ago.

I am doing well .. and you can too!

--------------------
--Lymetutu--
Opinions, not medical advice!

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kitty9309
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sariejack-

If you were exposed on the job to Bartonella by cats/dogs, then it is very possible to only have that and not Lyme.

A tick bite would not neccesarily transmit Lyme, but could gove you one of the other co-infections alone.

I got your PM. Keep me posted.

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Dekrator48
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seekhelp,

I am sleeping alot better and having far less hot flashes.

I had 2 occasions while traveling when my neck did not hurt nearly as much as usual in the car.

When I wake up in the morning, even though I am still stiff and sore, my lower back is not throbbing like it used to.

I started Mepron not long ago and my joints are more sore than usual right now.

When the "fibromyalgia" pain goes away I will know I am really getting better....and this darn neck/base of the skull vise grip-like pain.

Thanks for asking, hope you are well!

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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Pinelady
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I agree it is not to late. I would get a LLMD to help you.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
sariejack
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Thanks everyone for responding.

I'm curious about abx therapy since my current

dr. doesn't believe it will help me.

Do most of you do abx pills, or IV therapy?

I don't think I can afford IVs. We have insurance

but I doubt they would cover it.

I went back on the Art/Cat's Claw yesterday, as

my feet were burning like crazy. It may cause a

herx but I needed some relief.

Again, thanks so much for keeping me in the loop!

Posts: 14 | From New Bern, NC | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
WildCondor
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The burning feet sounds like bartonella. Lord knows how many infections you picked up working there. If it gets bad, think about workman's compensation and building a case against your former employer!
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Pinelady
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The cats claw is very powerful to me. You may need to start slow and low and ramp up if you get a major herx from it. Just a thought.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
   

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