LymeNet Flash: RMSF positive with ???'s

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»	LymeNet Flash » Questions and Discussion » Medical Questions » RMSF positive with ???'s

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Topic: RMSF positive with ???'s

Truly
Junior Member
Member # 22257

posted

I have a positive RMSF IgM (was 2 months before treatment with 100 mg Doxy 2x pd. I don't think that is enough but can't find the Treatment guidelines (I have them from my daughter who had 20+ yrs of Neurological Lyme-so I know too much. I have lots of ?'s Hope someone can answer.
1. Does anyone else have RMSF and how are you being treated?
2. Should I see a LLMD immediately? (my GP put me on the Doxy right away.) I have 2 months supply, but do not want to wait if I need more treatment, in other words, will it always get worse?

3. Who is the best LLMD in NJ for this disease? I know a Dr. but it is 100 miles away.
4.Is it true the CDC guidelines for treating RMSF are more aggressive than for Lyme, due to the deaths from RMSF? I read this on a medical website (I saved it) Can post it if allowed.
I am not new to Lyme-have seen it all with my daughter, but need specific answers so I know what to do next.
Thank you to anyone listening and who can answer my ?'s
Truly

Posts: 8 | From NW N.J. | Registered: Sep 2009 | IP: Logged |

AliG
Frequent Contributor (1K+ posts)
Member # 9734

posted

Both ILADS Guidelines & Dr.B's Advanced Topics in Lyme Disease are available here: ILADS.org Lyme Disease Treatment Guidelines

Were you referring to the Lyme Disease Association's doctor referral link (LDA Dr. Referrals)? I hadn't heard of any problems.

or did you try posting a request on Lymenet in "Seeking a Doctor"?

I'm a little confused by your post. [confused]

RMSF is probably the only tick-borne infection I haven't been diagnosed with. Sorry I can't provide any personal insight or experience there. Hopefully someone else can.

I do know that you are less likely to be completely ignored by your primary care physician with RMSF than Lyme. [Roll Eyes]

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Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006 | IP: Logged |

lctheobald
LymeNet Contributor
Member # 18093

posted

I have q's about RMSF too!

Burrascano unfortunately doesn't talk about RMSF except to say that it's really rare, doesn't talk about how to treat it unfortunately.

It doesn't seem that rare! And everything I read says it can result in death, most people wind up in the hospital, but I haven't!

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lisa theobald

Posts: 111 | From madison wi | Registered: Nov 2008 | IP: Logged |

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