posted
Ever since 1998 I have been having painful spasms in my head. Usually between the temples, feels like an artery is being squeezed. I am beginning my 4th month of Bart treatment (Rifampin and Zith) and am doing well, in the gym 3-4 days a week, but sometimes I get these strange spasms and they leave me disoriented.
Yesterday just walking up a flight of stairs I got the pain in my head and then disorientation, sweaty, then panic. Decided to drive to the ER, felt like I was having an aneurism on the way. Got there and they did ECG, nothing but slightly raised BP. Normal neurological exam by ER Dr (putting feet in front of each other, touching nose, etc). Said he could do a CT and Spinal TAP but didn't seem to think I needed it.
Saw my regular Dr. today and he is doing an MRI/MRA with Contrast Thursday. This scares the hell out of me. Strange that it has not been happening in the gym but is happening walking up stairs, sometimes after coffee (a vasoconstrictor so I should stop) and wine (I had one glass Friday, but never drink otherwise on RIfampin).
Anyone get these?
My LLMD has not called me back yet which is par for the course with him.
Thanks for any feedback.
Chris
Posts: 770 | From USA | Registered: Jul 2006
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posted
anyone else?
Posts: 770 | From USA | Registered: Jul 2006
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blaze
Unregistered
posted
I get these all the time. A sudden, piercing, needle-like pain.
By any chance did it occur yesterday around - hmmm? - I'm not sure what the difference in time is there. I'm EST time and most of Space Weather is in UTC time.
Look at the solar x-ray graph below though. We had a pretty major solar x-ray flux midday on Tuesday. Look at the red/yellow 'spikes'.
REGION OF INTEREST: The Solar and Heliospheric Observatory (SOHO) is monitoring an active region that could mark the location of an emerging sunspot. Readers with solar telescopes, train your optics on the sun's western limb.
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I do get these spasms in my brain once in a while. Before I was dx with Lyme my neurologist did an MRI and an MRA, he was thinking it was an aneurism (because I suddenly lost my hearing on the right side), but everything on the test was fine.
I don't know if you are being treated for babesia but in my case, my worse spasms were when taking mepron/primaquine/zithro. I am not doing babesia treatment anymore, but once in a while, I still get the spasms. They come with no specific activity, time or anything; I just feel this ZING on my right temple.
Best of luck to you, hope you find out what it is, please write me if you ever know. Lymster in WA [email protected]Posts: 303 | From WA | Registered: Jul 2004
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Yes, I get spasms like these too and the docs never find anything. Sometimes after the pain I get numb spots in my head, and sometimes my heraing goes funny. I just attribute it to a Lyme/cos thing, until I'm told otherwise.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I have had these often Chris. It got to the point that I had these everyday for over a year and 1/2....still have them, but not as often.
My first MRA in 2007 indicated vasculitis of the major vessels. A CT brain angiogram in April 2009 showed nothing.
it is very scary. I have always likened it to how I believe that it would feel if a stroke was about to happen.
Good luck on your tests and please post your results.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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I saw this yesterday, but was brain dead and forgot I had something to post.
I don't get exactly what you describe, but I have some similar things. They also tend to get worse if I exercise- or if I get really tired.
It's kind of like my body needs a certain amount of energy to keep my symptoms at bay, and once I use that up, everything gets worse
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I personally had a bad reaction to Rifampin although some may say that it was a herx. My blood pressure was dangerously high and I had severe chest pain ,was sure that I was having a heart attack. Also all of my veins we're popping which possibly lead to all of the other side effects.
Take Care
Posts: 2232 | From USA | Registered: Aug 2009
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When I went for the MRI/MRA scan the Dr. who read the scan said no white matter lesions or signs of MS, Stroke, aneurysm, etc...Waiting for follow up with my Dr. and call from my LLMD.
Thanks everyone. Was in the gym 4x last week with no problems. Seems as someone said above that if I miss out on sleep (actually had a date Friday night!) I suffer and end up in the ER. Really strange because I feel basically normal most days now except for some mild anxiety (shouldn't drink coffee) and these vagal related irregular beats. Can't seem to get rid of those!
Posts: 770 | From USA | Registered: Jul 2006
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posted
I didn't get contrast with my MRA/MRI as the tech did not think I needed any after looking over the images. Did everyone here get contrast?
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