Topic: POTS / Dysautonomia Question about Symptoms
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
I have noticed that when I change body positions many of the symptoms change.
For example, if I'm walking, many symptoms ease up, but if I stop and just stand, I get the dysequilibrium.
Sometimes, just eating a banana can bring on anxiety from the food hitting my stomach.
When I walk, my HR will sometimes come down and if I stop, it will be higher.
When I get into bed at night, many of the symptoms ease up if I'm laying down.
Sitting on the floor seems to increase the pressure in my head.
I havn't logged every symptom, but just curious if you guys get this too.
It's funny because I use to get short of breath and for the most part I don't anymore when standing or walking, but only if I lift something heavy or really exert myself.
My blood pressure doesn't change much from sitting to standing. In fact, it has gone up on a few occasions.
This POTS and Dysautonomia I never had until treating my Lyme and I do think it is due to the Lyme, no question about it. I also think it is responsible for many of my symptoms.
This might sound crazy, but I even think it brings on depression when I change body positions sometimes.
Anyone else having anything like this ?
LT
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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"For example, if I'm walking, many symptoms ease up, but if I stop and just stand, I get the dysequilibrium."
I get this... been trying to figure out what it is.. obviously I spent a lot of time on the couch now.
At first I would get shortness of breath at the gym an then about 9 months ago I started having a hard time standing/walking, but it didn't include shortness of breath.
I played football and baseball in high school. Am 22 now.
Now sure what to make of it.
B
Posts: 73 | From ca, usa | Registered: May 2009
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posted
"For example, if I'm walking, many symptoms ease up, but if I stop and just stand, I get the dysequilibrium."
This is me to a "t". My Heart rate also goes up, but my BP does not drop.
I used to also feel very weak in my body when I feel this way (which is most of the time). This has improved, so at least my legs aren't rubbery anymore.
POTS/Dysautonomia can involve higher BP instead of low at times. My BP has started to increase. We added magnesium and choline citrate to help this and the tachycardia. I can't do beta blockers. (asthma)
It is the pits.
Posts: 819 | From East Coast | Registered: Apr 2009
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