posted
Hey everyone. Have some questions for you. I am
going to hospital today to have pic line put in
and then a homehealth nurse is set up to come
see me for 3 weeks. My Dr. wanted me to drive 34
miles oneway eveyday for iv's I told him he was
crazy I can't drive to the corner once I start
this antibiotic. I took minocycline for 3 weeks
and was off for a week before my DR. did blood
test again to find it was still positive so this
is my next step is this about right ? He is
sending me to Baptist Hospital in Winston Salem
to be seen there. Good news is my ins is going
to pay I have already met my deductables so at
least something good. I feel like i am back in
the shape I was in before taking the 3 weeks of
minocyline is that possible? I feel so alone
and no one arounds me understands the feelings I
am having. I can hardly get through the day. The
fatigued is incredible the pain is unbearable but
I push through by the Grace of God. Praying that
everyones day will be good. Laura
-------------------- Laura Barrett Posts: 11 | From Millers Creek, North Carolina | Registered: Aug 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Laura,
Good luck with the Rocephin. 3 weeks is standard insurance coverage. If you seem to be helped by it, I would try for much longer.
Do you have a LLMD? Who is treating you? Chances are you will need much longer treatment if mino did nothing. You also need to follow up with IM or oral meds after Rocephin. If not, there is a high probability of relapse.
Good Luck, and speedy healing to you!
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Im glad you are able to get on IV Rocephin. I was bedridden and very ill at the time, and I believe it was a God send to save my life.
During the IV I was very tired, but once it was completed I noticed the progress that had been made.
I agree with Feelfit, it would be good to followup with orals afterwards, especially antibiotics that are considered macrolides and others that will attack the Cyst form of Lyme to prevent relapse.
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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Everyone has their own opinion and not everyone reacts to each of the protocols the same.
Having said that; our daughter did Rocephin IV push via a PICC line for almost 2 years.
We are convinced that it was the one antibiotic that got her "over the hump" so to speak.
Her herx were heavy, finding the money to pay for the abx was a challenge and the constant maintenance of the line, etc was not all that easy, however, I'm convinced that if you asked her she would do it all again.
United Health Care of California picked up the initial 90 days of treatment, after that it was all out-of-pocket.
You need to keep us all informed of your progress because there are many here who will help in ways you can't imagine, if you have to keep the line and bear the cost.
God Bless You
Lymedad
Posts: 681 | From California | Registered: Oct 2005
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posted
Ok the line is in and I have had 2 doses so far waiting on my dose for the day. Dr. put the line in my right hand so have to have help giving myself the iv because I am clumsy with left hand. I appreciate all the help and I can tell by all the post that this will be a diificult task anyway. I am finacailly strapped already been out of work for over a year now trying for diabilty been turned down and have sent in an appeal.
Now this I have bills due and mostly trying to pay for my private ins which so far has paid for thing I need. I have Ra also and have been on Biologics for several years now and have not had to pay a dime of that. I would hate to loose my ins but it has been close at times. I am grateful for the insurance though. Well got to run get hooked up. I hope for good day for everyone.Laura
-------------------- Laura Barrett Posts: 11 | From Millers Creek, North Carolina | Registered: Aug 2009
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