Topic: skin burning pain back. what helps? Who else has it?
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Im so tired of these pesky symptoms creeping up again. Now its skin burning pain. It is EVERYWHERE...whole body. What causes it in Lyme patients, anyone know?
What helps relieve it-besides treatment of course.
Who else is dealing with this symptom?
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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posted
I get this. Feels like an intense vicks vaporub is under the skin causing burning/warmth. Mine migrates and my tongue always burns to. Epsom salt bath helps. Not the tongue though I have to just put up with that.
Posts: 383 | From Ar | Registered: May 2007
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
It's your nerves. Google, "Neuropathy".
I had EXCRUCIATING burning pain.
If yours is excruciating, you're looking at symptom management medications.
Lyrica was the first thing that helped me.
Batherapy, which is a bath salt mixture, provides some relief.
Would be worth a chat with your natural / alternative practitioners as well.
Best wishes
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Skin is a common site for finding borrelia. Especially on autopsy of animals and humans. You can do a search of medical literature of: borrelia found in the skin on autopsy.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I have this. Klonopin was the only thing to help me. It's the worst most hellish thing in the world. I have it in my face and in my left eye, all over my neck, and sometimes on my arms and torso. I have it on the tops of my feet at times, mostly at night.
-------------------- ---Beautiful Disaster--- IgeneX WB: IgM: 18+, 31+, 41+, 58+, IgG: 31++, 39 IND, 41++, 31kda Epitope Test: Positive Labcorp: IgM: 23+, 41+ No LLMD due to money since Sept 2008. Was on Doxy, I.V. Rocephin (30 days), Flagyl. Also dx with Bartonella. Posts: 139 | From United States, East Coast-ish | Registered: Aug 2009
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
I see a naturalpath now who is trying to get it under control. He just treated me for a bunch of stuff a couple weeks ago and I really think thats where this flare up is coming from.
Ill try the bath salts again. I tried Lyrica but it made me nuts. Are there any essential oils that may help? This symptom litteraly drives me insane-it hurts so bad.
I was hoping others were dealing with it too. Not that I want any of you in pain but i think you all know what I mean. Thanks
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
today i feel like my face is gonna just burn right off, its that bad.
Id take lyrica again but the side effects scare the heck out of me. Are there any vitamins and such that help??
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
ABX. Once you get it under control it goes away. However, I have flares when I overdo.
Good luck.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
Try Neurontin, instead of Lyrica. It is also used for nerve pain, but (shouldn't) make you as loopy.
Posts: 374 | From United States | Registered: Nov 2008
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posted
I know exactly what everyone's talking about - I have this terribly. If it wasn't for this, I I'd feel normal again.
Just like the Nancy, I have on my upper back, shoulders and down the outer sides of both arms along with palms. Lower body, soles and outer calves and if I sit too long my rear-end.
I take 1800 MG total daily of Gabapentin, helps a little, but not enough.
I find it interesting that those with Lyme get this often in the feet and hand like other causes of neuropathy, but also face, back etc.
Does this really get better with ABX? This was the sx that sent me to the doctor in late 2006. Did Lyme tx during summer of 2008 and stopped, the neuropathy has gotten worse since then.
Should I be back on abx? I wouldn't hesitate if not for my equivocal dx.
Any suggestions, experiences etc? So many here mention this sx, it's very frustrating.
Thanks, MBB3
Posts: 247 | From The Country | Registered: Oct 2007
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posted
I get this too. IMO it reflects immune system activity. High dose benicar helps some.
Posts: 727 | From USA | Registered: Mar 2006
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
where do you get benicar? is that a prescription? im dying again!!! it went away for a couple days and then poof-up in flames once more!!!!!! tried epsom salt. cant tolerate lyrica. are there ANY other drugs that help??
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
this was what i felt like years ago when the symptoms started. horrible, horrible burning pain in my arms and feet.
course i went to a pain management doc who gave me neurotin, which made me crazy. for some reason that drug really disagreed with me.
i didn't know at the time it was lyme and not rsd!! it eventually stopped and that's when all the other stuff started. now i just have very very mild episodes of burning pain, sort of like a light sunburn.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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julielynne4
Unregistered
posted
I get this too, my entire back, neck and shoulders burns so badly and nothing even takes the edge off.
Finally I called my LLMD this week and she gave me a script for Neurontin. I only took it one time, and it worked very well.
I will definately take it again, however it did make me a bit loopy and sleepy so I only will take it at night.
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
well im not sure what else to do. ill ask aboutthe klonopin. im burning to death and think stress makes it sooo much worse. why do we get this stupid symptom!!!!!!!??????
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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posted
I had this in the very beginning and then again when my LLMD switched my abx. Do you have neck and shoulder pain attached to it? I had both the muscle/joint with the intense burning. Never on my face though
The only thing that helped me was acupuncture. I still had it but it took the edge off so it was bearable.
It comes and goes for me. I am sorry that yours is everywhere.
Posts: 134 | From NY | Registered: Aug 2009
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