LymeNet Flash: headache cycle every other week

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»	LymeNet Flash » Questions and Discussion » Medical Questions » headache cycle every other week

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Topic: headache cycle every other week

turtle 1653
Member
Member # 10309

posted

My friend was diagnosed with Lyme by a LLMD last April.

Unfortunately the primary physician adamently stated that there was no Lyme, intimidating my friend into stopping abx.

Since then the 24/7 headaches have gotten worse.

Now the headaches seem to be in a cycle of increasing in severity every other week.

Accompanied by slurred speech and unsteady gait for 4 to 7 days.

I am desperately trying to get my friend to see the Lyme doctor again.

Does anyone know what could be the reason for this cycle?

Turtle

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Turtle 1653

Posts: 57 | From East Brunswick | Registered: Oct 2006 | IP: Logged |

bettyg
Unregistered

posted

turtle, sorry i don't but stopped to read this, and up we go to top again. hugs to your friend from me...

IP: Logged |

Lymegirl82
Member
Member # 21864

posted

Hello Turtle

Has your friend had a cat scans or anything done?

I really never had headaches of any kind until I was infected with Lyme. Mine were pretty much the same pattern as your friends.

I was on doxy and a migraine med that I have to take twice a day to help control the symptoms.

My other symptoms came back and now I am on ceftin with the migraine meds.

I still get the bad headaches but they are alot less frequent.

Also if your friend is a female I read that you can get flare up with hormonal changes.

Posts: 22 | From Bordentown, NJ | Registered: Aug 2009 | IP: Logged |

TF
Frequent Contributor (5K+ posts)
Member # 14183

posted

Well, lyme disease itself gives a person lots of headaches, and they can be 24/7. Then, if you also have babesiosis, you can really have the headache from hell.

My lyme doc told me babs has a 7-day cycle and a 14-day cycle. I experienced them both. What happened was every 7 days I had a 2 day period of symptom flares. Eventually, with treatment, it retreated to a 14-day pattern where I had a symptom flare every 14 days.

So, this is what I think is going on with your friend--lyme and babs for sure. A 14-day cycle with a 7 day flare.

When the headache is so severe (migraine-like) I have no problem believing it leads to slurred speech and unsteady gait. Babs also makes a person feel dizzy and tipsy, so that leads to an unsteady gait for sure when symptoms are flaring.

Look at the post at the top if Medical called "Lyme Disease and Coinfection symptom list" and you will see her symptoms under babesiosis (but not the slurred speech).

So, that is what comes to mind when I hear a 14 day cycle of symptom flares.

Posts: 9931 | From Maryland | Registered: Dec 2007 | IP: Logged |

turtle 1653
Member
Member # 10309

posted

Thank you for sharing your experiences. I agree that the headaches are from Babesia. That was part of the diagnosis.

If I could convince my friend of that.

Denial is not just a river in Egypt

Turtle

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Turtle 1653

Posts: 57 | From East Brunswick | Registered: Oct 2006 | IP: Logged |

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