posted
I've been in treatment for a little less than a year now. was on mepron/zith/omnicel/artimin. for several months for lyme and babs.
then was put on rifampin for bart for a little less than 3 months.
one month off all abx.
2 weeks on zith/mepron while waiting on insurance about iv.
had iv put in one week ago. am doing 5 days on, 2 days off once a day of rocephin (2 gr).
the first five days i felt the same. today is my first day of the second week. i did the dose about two hours ago and am feeling slightly nauceus and like i'm tipping the the left.
i think this is dizziness. it's hard to explain. while i sit and type i feel like i am being pulled to the left. when i stand i feel like i need to hold on to something or i will tip over.
am i just dizzy. anyone notice this when on iv rocephin? in nearly one year the only improvement i see is no more night sweats. other than that i feel worse than before starting all this.
i've been sick for a very long time though. i really fear i will not get better.
thanks for any input!
-------------------- Misdiagnosed and untreated from 1993-2008. - iGenex positive western blot for LD: 9/08 - Clinical diagnosis for Babesia: 2/09 - Positive blood smear for Bartonella: 3/09
Started treatment: 1/09 Posts: 91 | From New Hampshire | Registered: Jan 2009
| IP: Logged |
posted
Laura, If you've been sick for a long time, it probably will also take a long time to get better.
The symptom you are descirbing could very well be the start of a herx. I know I had a very similar sensation when I started Rocephin, but it was more severe--I felt like I was on a ship on high seas, and was tipping every which way. I walked like a drunken sailor for a while!
You say you fear you will not get better. I can understand your frustration. Please hang in there, sometimes you have to feel worse before you feel better, but you are not a lost cause! Tell yourself you are WORTH the trouble of fighting this disease and getting past it. It can be done.
Think baby steps.
A few years ago, it was a good day if I could make it out of bed long enough to shower. Now I'm a full-time nursing student. A lot happened in between.
Baby steps.
Posts: 962 | From Charleston | Registered: Jan 2002
| IP: Logged |
bettyg
Unregistered
posted
no experience here, but up for the west coast folks coming on and any medical members we have as well. good luck hugs
IP: Logged |
posted
I have been on IV Rocephin for 3 weeks today. For the first week, I would get nausea especially if I was hungry. This subsided though. I never had the dizziness.
Good luck, I have been sick for a very long time too, and sometimes want to give up. I'm going to still hang in there and keep the hope.
Posts: 847 | From upstateNY | Registered: Dec 2007
| IP: Logged |
posted
thanks for the input. it seems to be a bit more under control now, so i am not sure if it was a herx. we'll see what happens as the days go by.
-------------------- Misdiagnosed and untreated from 1993-2008. - iGenex positive western blot for LD: 9/08 - Clinical diagnosis for Babesia: 2/09 - Positive blood smear for Bartonella: 3/09
Started treatment: 1/09 Posts: 91 | From New Hampshire | Registered: Jan 2009
| IP: Logged |
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I felt terrible for the first four weeks of Rocephin ( MWF - 2 gms). I began to feel better in the 5th week.
Hang in there.
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
posted
thanks Haley, i always love to hear positive feedback! Glad to hear you have seen improvements. Laura
-------------------- Misdiagnosed and untreated from 1993-2008. - iGenex positive western blot for LD: 9/08 - Clinical diagnosis for Babesia: 2/09 - Positive blood smear for Bartonella: 3/09
Started treatment: 1/09 Posts: 91 | From New Hampshire | Registered: Jan 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
hugs
Printer-friendly view of this topic