posted
After being on Mepron, primaquine, doxy, and roxithromycin for over a year with some improvement, I just switched to Malarone on Monday. I could feel improvememt after the first day. Now, just a week later, my head is clear for the first time in 5 years. I still have other issues, but it's so nice to be able to think without that foggy, dull ache.
I'm still on roxithromycin, but the Mepron, primaquine and doxycycline have been discontinued. I also started Diflucan the same day, and then added chloroquine the next day, but I'm sure that the Malarone is mostly responsible for my improvement.
This regimen has made me feel better than I have in 5 years.
I'm still doing the vit c infusions, and they've definitely helped, but this new drug regimen has just put me over the top.
posted
one tablet twice a day.
Posts: 975 | From California | Registered: Apr 2007
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Is it very expensive?
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I'm guessing it's about $350-$400 a month for 60 tablets.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Funny,I just switched to Malarone from Mepron too, after a couple years, and am shocked to see how much better it is working for me.
For the first time in years, sometimes I have NO FEVER!!! Night sweats some nights are non existent; and I am a little less fatigued.
I am only on one pill a day; I'd like to increase.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Great to hear some good reports.
psano2, I wonder if you might consider adding "Babesia" to your subject line for those searching in the future to find this thread right off the bat? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Malarone is the only drug that I've tried in 9 months that's decreased any of my symptoms. It significantly decreased night sweats and shortness of breath. Unfortunately neither of these symptoms was hindering me in my daily life. It's EVERYTHING else that isn't getting better that happens to be hindering me.
Nothing seems to work on the other symptoms except Tetracycline but that won't get me past 40-45% function, I keep hitting this brick wall and just can't seem to pass it and say past it.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Atovaquone-proguanil (malarone): an effective treatment for uncomplicated Plasmodium falciparum malaria in travelers from Denmark.Thybo S, Gjorup I, Ronn AM, Meyrowitsch D, Bygberg IC. Department of Infectious Diseases, Rigshospitalet, Copenhagen, Denmark.
BACKGROUND: Previous experience with unacceptable adverse effects with mefloquine as treatment for uncomplicated Plasmodium falciparum malaria prompted an evaluation of the effectiveness and side effects of atovaquone-proguanil (Malarone) in a hospital setting.
METHODS: Atovaquone-proguanil was given as standard treatment (1,000/400 mgq.d. for 3 days) to 50 adults who had traveled in Africa and returned with uncomplicated Plasmodium falciparum malaria. Half of the treated patients were African and had lived outside Africa for varying periods of time; the other half were Danish-born persons without any previous immunity towards malaria.
RESULTS: All patients treated with Malarone were cured without complications. The mean fever clearance times differed among the groups and according to various degrees of prior exposure to malaria and ranged from 1.3 to 2.2 days. Adverse effects during treatment were mild, and were likely to be due to the malaria itself. Fourteen people who had acquired falciparum malaria in spite of taking proguanil-chloroquine prophylaxis were also cured uneventfully without recrudescence.
CONCLUSIONS: Malarone appears to be an effective, safe and acceptable oral treatment for uncomplicated malaria.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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posted
Is it possible that the "BLO" responds to anti-malarial treatments? This seems to be true for an appreciable number of patients?
P, let's catch up some time...it's been a while!
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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posted
IckyTicky, a months worth cost me about $170 w/insurance.
Haley, I originally was treated symptomatically, but a couple of months ago, I retested positive.
Lymetutu, you have a good point, but I'm assuming so because the Diflucan is only once a day, and I take Malarone twice a day. After the 2nd dose of Malarone, I herxed again. (my morning herx had worn off by then).
Tracy, isn't it nice to not have to take that yellow liquid anymore?
Posts: 975 | From California | Registered: Apr 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Hooray!
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I took Malarone for 2 months and felt better during those 2 months. Yet my doc thinks my problems are from Lyme. I wonder about the mystery bug on this one.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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