posted
I have few symptoms, compared to so many who post here. Mostly I'm concerned about an increase in neuropathy, with pins and needles suddenly not just being in my feet anymore, but all over my body, mostly left side, including head and face. My memory and balance has been better, even as this has gotten worse. Have never had a positive blood test for anything! My doctor was treating me for Babs., though I've never had headaches or fevers. (Have had night sweats in the past and do get a hot flash when I wake up frequently.) Have had constant eye dryness and frequent blurred vision. Any ideas about what's going on? I'm on Doxy again now and Flaggl and I take Artemisin, 2 weeks on and 2 weeks off. Thanks!
Posts: 40 | From Cincinnati, Ohio | Registered: Sep 2006
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
No idea. Dry eye could be immune problem. Arte can flare lupus first. Probably toxins. Detox to meds??
Posts: 1834 | From US | Registered: Oct 2008
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posted
it sounds like you have Lyme disease to me. Lyme causes the pins and needle pain in the feet that you describe. You can't rely on blood tests to determine if you have Lyme.
It's good that you're back on Doxy and Flagyl,
Posts: 975 | From California | Registered: Apr 2007
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posted
Hi Pam, Your symptoms sound very similar to mine, Constant tingling / pins & needles in both hands & feet for about 8 months now. Also dry eyes & blurred vision & a tingling on my head. I also have numbness on my back & left foot & extreme fatigue.
I also have had no positive tests & do not get night sweats or head aches.
I do think I was bitten by a tick last Dec.
Although these symptoms do sound like lyme, there are other things that can cause similar symptoms. I have had so many tests now & am waiting for nerve conduction studies.
My doctor thinks im over obsessed with lyme & that it is probably something else. Im trying to stay open minded about it.
Take Care Panda
Posts: 69 | From UK | Registered: Jun 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
This can be a side effect of Flagyl. I would tell your doctor about it. Flagyl can effect the nerve endings.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
I have been on Flagyl for two months now and feet and hands started tingling. I am glad I found your post, because it is something that I suspected. Thank you for the info, Posts: 123 | From Los Angeles | Registered: Oct 2006
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posted
I have been on Flagyl for two months now and feet and hands started tingling. I am glad I found your post, because it is something that I suspected. Thank you for the info, Posts: 123 | From Los Angeles | Registered: Oct 2006
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posted
I have been on Flagyl for two months now and feet and hands started tingling. I am glad I found your post, because it is something that I suspected. Thank you for the info, Posts: 123 | From Los Angeles | Registered: Oct 2006
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I second Haley's comment. Please contact your lyme doc.
Posts: 1856 | From Maine | Registered: Jun 2004
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Everyone, PLEASE look into treating for parasites. Parasites/worms are now being considered the number one co-infection of Lyme. Look at the symptom list at Humaworm and also check the current PARASITE WARRIORS SUPPORT THREAD.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I know many symptoms overlap but what about bart? I had increased tingling and dry, itchy eyes a few days after starting bart meds. Just my experience but may be worth discussing with your doctor. Never had a positive bloodtest. Good luck
Posts: 238 | From new england | Registered: Feb 2013
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posted
I was thinking bart, too. Since you have been treating babs, maybe the bart is coming out. Babs helps suppress bart. This happened with my son. His bart streaks go so much worse after treating babs.
Posts: 418 | From NJ | Registered: Sep 2007
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posted
That was my experience as well-after treating babs my bart symptoms came on with a vengeance. Good luck
Posts: 238 | From new england | Registered: Feb 2013
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
I have had the same experience with tingling and pins and needles starting in the feet and then moving to my whole body. I am 95% sure it is from parasites since it happened after drinking contaminated well water and getting very ill from that. I did take several courses of flagyl and tindamax and I think that aggravated the symptoms and my nervous system but couldn't get rid of the parasites. It would help temporarily.
I do not have lyme any longer, but did last year. I'm not saying you don't have it - you may very well have it since normally these other things like EBV and parasites don't bother people to the extent that they affect people with lyme.
What has helped me is salt/C and herbal parasite cleanses since the parasite drugs would help for a short time but couldn't cure me. I am slowly getting rid of the tingling. I do have an increase right after I take the salt/C so I know it is doing something.
EBV can also cause peripheral neuropathy, as my kids have had that when their EBV was bad. But this normally happens when your immune system is down from lyme and coinfections.
The good thing about salt/C is that it hits a lot of things so if you don't know exactly what you have, that is OK.
I would recommend getting some energetic testing done so you can find out which infections you have. EDS testing or good muscle testing (ART) would be great.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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