posted
I am not sure what is going on I am off all meds and have been for awhile as I was unable to work while on them and am able to work when off them.
Was doing ok until about a week ago. I have been feeling shaky, dizzy, feel like I am gonna pass out at times, headaches, all over achiness and severe brain fog. I feel disconnected from myself.
I have started juicing as someone suggested I need to get my PH in balance but I dont know if that is the way to go because of all the fruit and I have had yeast problems all along.
I took a half biaxin tonight because I am so desperate to get rid of this scary feeling. I am not seeing a doctor right now but have a script through Dr. D. I have no insurance and am struggling by as it is.
Not sure what to do but cannot live this way. I have been thinking about suicide and have had these crying spells. I dont think I would actually do it, I have 2 kids but it is scaring me how I feel and how much I am thinking about it.
Any advice on what may be going on and how to possibly relieve this?
posted
In light of what you said, I would stay away from fruit and other sugars right now. Yeast can cause depression, as can Lyme of course.
Biaxin MIGHT make things worse. It causes depression in some people.
Are you on an anti-depressant??
Do you have anyone you can talk to? Please see your GP soon!!!!!
I will be praying that you get some help!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Could it be hypoglycemia? Perhaps you are not eating protein often enough. Do you eat 6 small meals a day?
Try keeping nuts or cheese handy and having a small handful as a snack about 3 hours after breakfast & again after lunch. Make sure you have some good quality protein with your meals & don't overdo carbs.
Avoid sugar, I believe small amounts of honey are OK. Cinnamon also helps keep blood sugar stable. They sell it in capsules or you can add some to oatmeal in the morning.
Are you taking probiotics? You may not be absorbing the nutrients you need from your food. If that's the case digestive enzymes may be helpful.
Is this a constant feeling or does it come & go throughout the day?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Did you recently stop taking any meds? Some can have withdrawal symptoms including depression.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Hi, Thanks for the quit responses. I think I will switch to low carb and see if that helps. I know it sounds like depression but I am not depressed. I just physically and mentally feel out of sorts not myself, the back lower portion of my head feels odd like my brain literally feels different. I feel spacey, anxious...disconnected.
The suicide part is just that I can't stand this feeling and the thought of feeling this way forever seems unbearable. My brain almost has a sort of burning feeling and I have been having headaches as well.
Yesterday my body was so achy that I was literally in tears. I have been praying to god to help me as I am not sure what is going on and it is frightening. I dont know if I should just do a water fast and try cleanse my body out if I am toxic or what the heck is going on??
Thanks, Ann
-------------------- If you keep doing nothing...nothing changes!
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Have you looked into treating for parasites and worms? They can play a HUGE role in Lyme disease. Type in parasites and lyme into search bar here. Also check out
Please don't ignore this possibility and also check parasite symptoms at humaworm.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I know that feeling and it subsides with treatment thankfully. No sugar no alcohol, get the right treatment plan going and nuke those bugs...it took 3 months of 1,000mg Biaxin and other goodies daily until this finally broke for me. GL
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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bettyg
Unregistered
posted
ann, so sorry to read this
you mentioned you feel suicidal feelings but wouldn't act on it, please see the national suicide hotline above.
rest above had great answers for you as what may be causing these feelings.
please know you are in our thoughts and prayers; ann, we love you, and someone is always here 23/7 ... so if you need to talk post here or call the 1-800 no. above ok. hugs/kisses
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Big hugs! I know a LOT of us have felt the way you are feeling right now. For me, it comes and goes. No, I don't think I would ever do it.. and I have three kids that need me. But I would be lying if I said the thought doesn't cross my mind now and then when things are tough. Hang in there hon! Also... juicing does not necessarily mean fruit. I went on a juice fast and used barely any fruit...I juiced mostly vegetables like carrots, Beets, Kale etc. Watermelon is good for juicing also and doesn't have all the natural sugar. Use the rind as well. *hugs*
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
Oh my gosh, you need to take your suicidal feelings very seriously. Call up a suicide hotline if you feel really bad.
Also, find the closest Lyme support group in your area, there should be some in NH. You need some local Lyme buddies for some support.
The symptoms you describe might indicate that the lyme is in your brain (the headaches and burning feeling, and the suicidal thoughts). Please don't try to convince yourself that a unhealthy diet and detox are the cause. Maybe its yeast, but Lyme is infamous for causing these kinds of symptoms and suicidal feelings when its in your brain. You need to see an LLMD as soon as you can and discuss these symptoms. You CAN get Lyme under control, but you really need to stay on top of it.
Biaxin is notorious for causing or worsening yeast. Bicillin shots, oral Ceftin and a few other abx will cause this to a lesser degree , talk to the doc about that.
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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posted
I agree with Amanda: since you say you've been off all meds for awhile, it's possible that the symptoms you're experiencing is the Lyme. Maybe you need to treat again with some abx or whatever treatment you choose.
Also, as IckyT pointed out, you can juice with veggies.
If you're dealing with candida, what about being on a noncandida diet for awhile?
Yes, I believe it's best to be in contact with others when you're feeling down. It's not you - it's the disease or the candida or...and you have to outsmart it by finding treatment that will help.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
I had those exact symptoms over 20 years ago. Needless to say, didn't know it was Lyme then. I've also had many great years since then, so don't give up!!! Life will be good again.
I was so sick at that time and too tired to eat, but realized that my body needed nutrition to get better. Took about a month to feel well again,but this is what I did.
Absolutely no sugar, no alcohol, no artificial sweeteners or any artificial foods.
Breakfast. Fresh made oatmeal w/ nuts and milk (only cause I like milk on mine) 1/2 grapefruit
Morning snack if you can eat some veggies.
Lunch: Either broccoli or spinach and whole grain bread with butter. Although I don't microwave, I was so sick I would just take a package of Frozen spinach or broccoli and microwave it. Now I saute my fresh spinach in a little oil till wilted.
Make sure the breads you eat are made with Whole Wheat Flour. The listing of "wheat flour" is not whole grain so don't be fooled by this.
Dinner: A regular meal with my family.
If you're hungry betwen meals eat something packed with natural nutrition.
Now I add a vitamin/mineral supplement and a good probiotic, I take multidophilus12 as it has 20billion live cells and 12 strains.
I believe juicing is a good way to get packed nutrients from veggies, but there are many nutrients in the parts you are throwing away so don't rely too heavily on juicing. use it to supplement.
Lots of whole fresh foods, whole grains, lean meats, a good multivitamin/multimineral, and probiotics. A healthy diet helps your body do it's work better.
This is my experience of what worked for me.
Keeping you in prayer. Get immediate help for the suicidal thoughts, and believe me when I say this is not forever. You can get better!
-------------------- Wishing You Showers Of Blessings! Lyme since Fall 1983 = Diagnosed Summer 2008 IV Rocephin 7 weeks Stopped due to drug fever Now doxycycline "For I know the plans I have for you...plans to give you hope and a future." Jeremiah 29:11 Posts: 430 | From Sunny South | Registered: Jul 2008
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posted
Thanks guys. I am going to do my best to try and get down to at least see Dr. D I just get frustrated with his one size fits all approach. I am going to stick to half a biaxin at night to see what happens. I was thinking of adding the plaqneul back but I am nervous about the eye problems as my eyes have been weird lately anyway. I was trying to get my regular Dr. to watch UOS and maybe help me with treatment up here as I nly have to pay $15 to see them through this low income card. I will call her today and talk to her about what is going on.
Thanks, Ann
-------------------- If you keep doing nothing...nothing changes!
posted
Wanted to add that the most annoying part is that the base of my skull feel so strange leading to my neck and even feels weird to the touch. These symptoms are so strange!
-------------------- If you keep doing nothing...nothing changes!
posted
Ann, Just wanted to let you know that I will pray for you. You will get through this.
Posts: 207 | From NH | Registered: Jul 2009
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posted
Would not suggest a fast. Fasting might make you feel even sicker.
melodymaker has given you some good ideas on diet.
Juicing is a lot of work. For now, maybe buy some V-8 juice. Hubby drinks lots of this.
I honestly think the Lyme is coming back or never went away and that is what is causing most of your symptoms. Hubby has had all those strange head and neck and brain symptoms you describe.
Yes, follow-up with your local PCP and your LLMD ASAP. And we are always here if you need support.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Hello, Lakes. I really feel for you because your symptoms sound similar to mine so I can relate.
When you say "burning" in the brain area with weird feelings in the back of your head/neck plus anxiety - well, it sounds like what I was suffering with just two weeks ago.
For me, I concluded it was bartonella causing these particular symptoms and took rifampin. I did have quite a herx and afterward that terrible burning/headache/weird feeling got quite a bit better.
I hope my experience helps.
Sincerely, Lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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quote: I know it sounds like depression but I am not depressed. I just physically and mentally feel out of sorts not myself, the back lower portion of my head feels odd like my brain literally feels different. I feel spacey, anxious...disconnected.
The suicide part is just that I can't stand this feeling and the thought of feeling this way forever seems unbearableAnn [/QB]
Sounds like it to me.... but I'm no expert! How are you doing today?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Agree with Melodymaker! I also try staying away from bread for awhile. Use corn tortillas instead. And take the acidophollus faithfully!
I was in Mexican hospital for 10 days on the anti yeast diet with veg juices and just a little fresh squeezed orange juice. I got IV's of vit C and dioxychlor. Wow! What a difference!
They even came in and sang to me every day. Music is medicine!
Now when I feel so down I listen to my Ipod's classical music, do my relaxation exercises, and look at photos of my family. I also admit to watching or listening to MASH reruns. I feel that I, too, am in a war so I relate to them.
When I was in hospital for 6 weeks, my kids made posters for me of photos and places for people to write inspiring comments. I still have them!
Get a plan together for the worst times. And keep the suicide hotline number handy. I think we all have feelings like that....I often think that without my family I wouldn't be here today.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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posted
Sorry for no update was hospitalized and just got out. Went through the noraml neuro duck nonsense but my cat scan was normal so I must be all set was sent home with anxiety script you know the routine.
Here is a note I sent to the NH group to try and get some advice:
Hi, I was just hospitalized and am having severe neuro propblems have already been to neurologist who suspected MS but but MRI came up fine so he sent me on my way with a script for anxiety pills and said he thought I would " Feel better once summer came." Well summer has come and gone and I am just getting worse.
Blurry vision, fine tremors, crooked or unable to walk straight at times, shakiness, dizziness and all over brain fog, trouble concentrating, mispelling simple words or leaving words out, muscle spasms,burning headaches, severve fatigue, arthritis and twitching. I know it is the Lyme I was seeing Dr. D but he is never able to be reached in emergencies and has a one size fits all protocol that makes me very ill and unable to work, just bedridden. I want to go a differerent route and was wondering if anyone on here has worked with Dr. H, N.D. in Portsmouth?
I was just wondering if anyone knows anything about him or has heard if anyone has had any luck using him for their Lyme treatment? Or has any advice. I have no insurance and am getting pretty desperate. The vison thing is scaring me the most as I have heard of people going blind. Thanks so much.
Sincerely, Ann
Do any of you know about this guy at all? Couldn't hurt I swear I think I stirred up heavy metals while trying to get rid of yeast, Just a guess as I keep tasting a metal taste in my mouth and my tounge feels swollen even though I have had all my alagrams removed but never did a detox. This natropath does heavy metal testing that and I broke open a mercury thermoeter when I was a child. I wrote to him and am hoping to get an appointment.
Well one good not they have me on so much ativan that I am not suicidal too relaxed to even care!
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Hope you are doing better. Sorry, I'm too tired to offer all the kind things I would like to say.
As for that doctor, normally - even with a ND, it's best not to post their name unless they have already put themselves into the public eye with a book or website. And this doctor does have a web-site.
Have you seen his page, it says a lot. And, if you could talk with those in the local support group, you might get more detail.
In reading his page (not easy as it's all squished together), the content is good and accurate. He does not mention co-infections but seems to grasp the complexity of lyme and uses a multi-approach. I am impressed with what I see and I've been to many, many NDs, most of whom are not LL.
You might call about his knowledge with co-infections and if he is an ILADS member. Many LL ND are.
I will say this about naturopathic medicine. I was suicidal before I knew I was dealing with lyme and other TBD. Even a tiny dose of many different Rx antidepressants - many tries - made me much worse.
When I started working with a ND, using supplements, my mood was improved greatly. MAGNESIUM and FISH OIL are the top two things that saved my life - really.
Adrenal support also stopped all those mood crashes from glucose drop: Ashwaghanda and Siberian Ginseng really helped.
Of course treating the infection is key, and this doctor appears to understand that as well, incorporating what ever is needed. The difficulty in coping with the enormous stress of lyme - even if not true depression - well, supporting the adrenals helps with being able to cope with all this. And magnesium will help in so many ways until you can get in to see this doctor - or find the path that fits best for you.
Chronic Lyme Disease and Co-infections: Clinical Overview
Rebecca Snow, MS, RH (AHG), CNS, LDN -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Glancing back to see if I missed much (I always do) . . .
Bea says this: " . . .Would not suggest a fast. Fasting might make you feel even sicker. . . ." --
Agreed. If the liver is overwhelmed, as it always is with lyme, you likely have something called excess porphyrins from a chronic porphyria - again, the liver just can't detox fast enough and creates porphryins in excess - and that can create cell death, neuro damage.
Fasting makes porphyria much, much worse. And that can trigger suicidal impulses as well as other painful symptoms.
Eating regularly, enough carbs to carry you through so as not to have sharp drops in glucose. I'm not saying sugary sweets, but complex carbs from healthful foods, mixed with protein at every snack and meal, and good fats.
Nuts, carrot sticks, etc. Even a very little bit of very dark chocolate (85% or higher) - after a meal or with nuts. One ounce will really be enough as being that dark you won't want much but it can help your mood and your heart. Or add cocoa to whatever kind of milk you drink and add stevia.
Be sure to get your B-vitamins and lots of greens, too.
posted
Thanks for the info! I have written to that ND and the good thing is I get low cost blood testing through a program for low income, So even if I see an ND any bloodwork he orders will be covered. I have had so much blood drawn lately!
I am going to go the ND route Dr. D just isn't cutting it and I need someone who is going to be available to me in emergencies. My goal is not a cure I know it doesn't exist but just to prevent further damage if able and to be able to get back to work again.
Thanks, Ann
-------------------- If you keep doing nothing...nothing changes!
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- NDs are not normally available on emergency basis. However, you can ask about details or who else might handle emergency calls. Most NDs are also not on staff at hospitals, however, few are (especially if they are also licensed acupuncturists managing pain relief and the hospital is forward enough to include that).
All that said, an ND can teach you what to do for yourself so that ER visits can be minimized when possible.
Some insurance policies cover acupuncture to treat pain. Some NDs are on some policies. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Yes, I guess I should have wrote available to me. You could be in the hospital dying and Dr. D will not intervene. I was hospitalized at Brigham and womens for 5 days several years ago and he never showed up or even called in to check on me. He is just to busy and set on one size fits all care. He is a good guy don't get me wrong I need more right now and I need someone that is willing to do natural treatments as well as I feel I have heavy metals and yeast issues going on and most regular MD's wont touch that stuff.
Ann
-------------------- If you keep doing nothing...nothing changes!
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's a good point. Not all doctors are on staff at all hospitals. And many hospital doctors (who usually don't understand the complexity that lyme patients face) are not open to consulting with the LLMDs. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I'm glad you are doing a little better. Still think an anti-depressant would solve the anxiety part and take care of your depression symptoms as well.
posted
Sorry you're having such a hard time. I want to address just one little part of what you posted, the part about blurry vision.
I don't have any Lyme eye symptoms anymore, due to drinking mangosteen juice. Lots of brands - I drink the Ultra one with 70 minerals added.
If you try the juice, go slow and drink a lot of water with it as it can be powerful.
Posts: 13171 | From San Francisco | Registered: May 2006
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Have you considered lithium?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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bettyg
Unregistered
posted
she has another post; in hospital now.
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