Topic: Vitamin D (low) and Fibrinogen (high) test results-Questions
gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
Today I got the results of my 25-hydroxy vitamin D and Fibrinogen test.
Fibrinogen results 499 (High). Normal range is 232-456.
Vitamin D results 22 (Low). Normal range is 30-100
My PT, INR and APTT (whatever that is) is in the normal range.
Any comments, feedback and suggestions would be appreciated regarding my test results. Do you think this is likely related to Lyme or should I be tested further for something else?
Would also very much appreciate some feedback and suggestions regarding what specific vitamin D I should consider taking. Links would be appreciated.
nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
My LLMD, Dr. C, has said that of his thousands of patients, the majority have hypercoagulation. High fibrinogen is part of that. Some Lyme patients do not have this issue, for whatever reason, but it is far more common than not.
It's a complicated issue to try to explain in summary, but basically, in the case of Lyme, it causes buildup of fibrinogen (fibrin is part of this glycoprotein) in the bloodstream, which causes hyper-coagulation, or thickening of the blood.
Also, many of us have low Vitamin D - for a variety of factors most likely. I know I don't get enough sun, haven't for many years since I became housebound/bedridden. Most of the US population supposedly has far too low Vit D levels.
Personally, my issues with hypercoagulation were so bad it was recommended I begin Heparin. I asked if I could see how my Lyme treatment would effect the issue before I started another medication, and he agreed. So far so good - the nurses that do my lab draws have noticed a big difference in my blood thickness, etc.
As for Vitamin D, it has improved greatly from the natural Vitamin D3 in the Cod Liver Oil supplements I take. Before I ever started going outside to get sun for 20 minutes midday anytime I was able, my D levels rose all the way from 17 to I think 77 (can't recall, but it was past the high level on the lab report).
One thing to be cautious of, if you decide to take hefty synthetic Vit D pills (like 10 or 50,000 IU per week) they can have a side effect of mild to severe bone pain - this happened to me, and I switched to the natural Vit D in Cod Liver Oil.
The best brand I have found for this is Carlson's - they make it in gel caps so you don't have to taste it, but it is high quality so it won't taste like a normal fish oil pill.
Oh, I have also added Boluoke to my regimen, which is a systemic enzyme that breaks down fibrin and thins the blood (clinically-proven). It also is said to break up biofilms, which is an issue in Lyme as well. Enzymes might be something you would want to look into as well. I haven't taken it long enough to give an opinion on it yet (only one pill).
That's just my personal path with these symptoms. Your mileage may vary. I wanted to limit my variables, and my prescriptions/synthetics, and it has worked out great for me so far, thankfully. I'd love to rerun my coagulation/fibrinogen panels when I have the money, should be interesting.
posted
I spent all summer out in the sun in my garden and my vitamin D levels were still low, so don't necessarily blame your low D levels on the amount of sun you get. Something else is at work here with regards to everyone's low D levels.
Perhaps 'something' is preventing the body from producing its own in response to the sunlight, and this is why we all have low D levels unless we devour large amounts daily in our diets?
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-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
hypercoagulation-
try nattonkinase, lumbrokinase, or Boluoke
vit d-
supplement as needed.
-d
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
I take nattokinase every day because of elevated fibrin. I read that it helps dissolve biofilms.
Posts: 425 | From NY, United States | Registered: Mar 2005
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
quote:Originally posted by amkdiaries: I take nattokinase every day because of elevated fibrin. I read that it helps dissolve biofilms.
amkdiaries, would you mind telling me what brand you take? How long have you been taking it? Have you noticed any difference in how it makes you feel since taking it?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
GWB-
they are all different forms of agents that would help w/ your fibrin issue.
I would start with nattokinase since it is the milder of the 3, then go to lumbro, etc.
vitacost has natto and lumbro, both of which are expensive.
good luck
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
Lymies need a 1,25D test as well as the standard low-cost 25D. Often 1,25D (the biologically important type) is high because due to the infection excess 25D is converted to 1,25D. If 1,25 is high, D supplementation is not needed and may even be harmful.
Posts: 727 | From USA | Registered: Mar 2006
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