posted
Troutscout is alarmed by his current condition. He is gagging and has a terrible mucous problem in his sinuses and throat. He knows its systemic as well.
He needs a dr who is the best with treating Lyme with herbs ( so he can get off abx ) and then someone to treat the candida. Maybe there's one dr who can do both??
PS .. He also has bart.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Where does he live? Wouldn't it be best to post this in "Seeking a doctor"? -
Mucinex (guaifenesin) can help break up that sticky mucous. Allicin, too, would be good helper for that. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
It's really bad, keeb. I need to reach people. Will post in Seeking, but won't get many responses since no one goes there!
He will have to travel. I don't think there's ANYONE in his state.
PS.. I have the LLMD list. I have no idea who is the best herbalist. Very few herbalists are even listed there.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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ping
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Member # 6974
posted
What an awful position to be in! Not that all TBD infected people aren't in an awful position; but you know what I mean.
I don't know anyone who would fit this bill at all. If it were just the Lyme without the Bart co-infect, no abx might be survivable, but the Bart really worries me. At the same time, if he's being eaten alive with yeast... Oh God!
Lymetoo, if he must have an "Herbalist", then the only ones that might be worth looking into are Chinese herbalists out of San Francisco, but I don't know any personally.
What does Trout think about stopping the abx for Lyme and keeping the Bart abx, with additional tx with Diflucan or Nystatin?
I'm sorry, I just don't have any answers here but will keep my radar working for him. Please let him know that we're trying.
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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Keebler
Honored Contributor (25K+ posts)
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posted
- By "herbalist" do you mean an ND (naturopathic physician)? There are several LL NDs., most are ILADS-members, too.
I'll send you a list with several.
Flying with mucous in sinuses can really do a number on the ears. If he flies, he might first ask the doctor for suggestions on how to make that easier: Ginger; Mucinex? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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seekhelp
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posted
Wow, that is scary. I hope it works out. I thought he was cured/in remission from our LLMD Lymetoo?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
This is the herbalist hubby has been too. She also has a degree in nutrition. She used to be with his LLMD but now works with Tai Sophia Institute. She has studied some with both Buhner and Zhang. She just had a baby and not sure if she is back in the office yet or not.
The herbalist charges very reasonable rates. After your first in person appointment she will do phone consults. Herbs are available through her or you can buy whatever she suggests elsewhere.
Was very helpful in healing hubby's G.I. in the past. Have not consulted her in a few months as money has been tight and of course insurance won't pay for herbalists or even nutritionists.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Yeah, the serrapeptase could be a great adjunct to yeast treatment. Thanks. I'm sure he'll come online tonight.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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AliG
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Member # 9734
posted
Dr.Zhang's Allicin (I'd swear by this stuff) 2 pills 3x/day
If he can't take the stink, take chlorophyll along with it.
I would also take 2 Mucinex 2x/day for the mucus.
This has worked very quickly for me, when I've had overgrowth.
If he's concerned about binding toxins he can get some Questran (cholestyramine) or Welcholl pills but be sure to take very far away from any other meds/supplements.
Poor Trout
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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bettyg
Unregistered
posted
trout is from iowa; i'm UNAWARE of any good herbalists here in our state! sorry.
bea, what state is your herbalist in? i just added that link you posted to my llmd list .... thx
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Keebler
Honored Contributor (25K+ posts)
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posted
- I sent five names, none of whom are in the midwest, though.
I'm with AliG . . . Hepapro's Allicin is the best in the galaxy (and I've used them all). It's amazing. The link is in the PM I sent. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I'm so sorry to hear my favorite fish man is having a challenge. I wish I had suggestions for an herbalist or naturopath for him, but I don't. I did see a really good one a long time ago who was involved with the Samento study. She was very knowledgeable and understood LD and co-infections too. She is the ND named on the orginal Samento study with Dr. C.
In the meantime, what worked well for me whenever I get whatever creepy crud is going around that leads to my own mucous attacks is Mucinex 12 Hour Expectorant. It's available over the counter so I usually keep a box on the shelf for cold and flu season.
I had forgotten about it this year, but we caught whatever was going around in the midst of renovations. My immune system couldn't seem to beat the cold thanks to poor air quality and fumes. The mucous was awful and it felt like bacteria were attempting to use it as an excuse to be plentiful and multiply. I was just about to break down and go to the doctor convinced I had bronchitis when my Mom reminded me about guafenesin, which is the active ingredient in Mucinex.
I took one twice daily for about a week and drank lots of water. It worked so well to clear the mucous quickly that I never did have to call my doctor. Once the mucous was gone, my immune system took over and I was able to heal quickly despite all the fumes.
If his doctor thinks it's OK, something like that might keep him comfortable until he can schedule an appointment with someone to treat the underlying cause.
Posts: 487 | From USA | Registered: Feb 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A NETI POT may also help clear the sinus mucous, along with Mucinex and / or serraptase as others mention.
=======
Carol in PA told me about this salt pipe to help open the lungs. It might also help the nasal passages.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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WildCondor
Unregistered
posted
I thought Troutscout posted that he was cured? Under Dr. C, which would be the first person I have ever heard of, I guess the info was wrong? I don't understand?
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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WildCondor
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posted
A good LLMD would have treated he yeast and used proper preventative measures. You are not cured if you are still undergoing treatment. Cured means cured.
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Never said I was cured...just livin as hard as I could...lol
WOW!!!
Thanks for the info guys...gotta make a move quickly here, mucous from one end of the gastro tract to another.
How does one get a practitioner that knows the herb thing? (Buhner)
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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bettyg
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posted
kent,
i just sent you 3 people's names who know about buhner protocol; good luck!! betty, iowa
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seekhelp
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posted
Have you ever tried a tincture called Can-Sol Troutscout? It's supposed to be quite strong and hit stubborn yeast infections.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Hi Trout - this is only a shot in the dark from me, but I'll make the following comments -
When I started drinking the mangosteen juice, my sinuses emptied for two days, and I'm not usually even aware of sinus congestion.
I watched a wholistic health expert tape small magnets, maybe like 10 gauss or so, above his eyes, over forehead sinus cavities, and his sinus congestion cleared up during that hour.
Re the candida situation, it requires going on a nonyeast diet - ie, not feeding the yeast. Vegies, protein, rice crackers, nuts, seeds, that type of thing. And being ready with the right kind of food snacks for when we get hungry.
Also. just saw your Q about the Buhner protocol. I think people can ask him Qs at his Planet Thrive site.
Posts: 13171 | From San Francisco | Registered: May 2006
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troutscout
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Member # 3121
posted
Ive got multiple food allergies that must be addressed here...its a big portion of whats happening.
The problem flared up when I was on IV for over a year....which did WONDERS for me on the infection.
However, I could feel the systemic yeast grow after each infusion.
Now...the good Doctor has worked with me to get rid of the infection....in fact, we've tried everything posted above.... I have been working with a Dermatologist (D.O.) that is Lyme friendly and he has put me on two even more intense medical treatments.
Dr C has done nothing but good for me on this one guys...nuthin but good for me on this.
I just have to get off of the ABX for a while....and then let the Lyme come out and hammer it...hard!
tROUT
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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posted
My doctor has me on Cumanda for yeast but it also is good for the lyme. I could only start out with one drop per week because it can be pretty potent and was for me.
So it sounds like you have already tried garlic and Pau d'Arco since those were mentioned above. They are both supposed to be really good for candida. Both of those are also good for helping to fight lyme.
They do have Pau d'Arco pills if you have only tried tea. Maybe the pills would be more potent if you haven't tried that already.
Also wild oil of oregano (P73) is supposed to be great for candida as well. There is also olive leaf extract which is good as well.
I am sure you are already on a really good probiotic. I also take Saccharomyces Boulardii twice a day too.
Basically everything I mentioned above are good for candida but also good for fighting against lyme and other infections too.
Maybe you could try a combo of several of those things to fight the candida problem.
Not sure if you have tried all those yet or not but there are some more suggestions in case you haven't. I know there are more that I can't think of right now.
Hope you get this fixed soon!
Take Care, Pam :-)
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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posted
I sent you a PM of some doctors on the east coast that treat naturally. Don't know if that is too far for you to travel or not.
Take Care!
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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WildCondor
Unregistered
posted
Oh, ok, sorry to hear that! Have you already done Diflucan and Nystatin? I would try the Cumanda. Also, Pau d' Arco tea helps candida.
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troutscout
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Member # 3121
posted
Done Diflucan and Nystatin...am beyond both now.
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
Try Tillotson Institute of Natural Health Crysalis Natural Medicine Clinic Wilm, DE
Specialize in Integrative Herbal Medicine: Chinese Herbs and Ayurvedic remedies.
oneearthherbs.squarespace.com
Posts: 1009 | From NJ | Registered: Aug 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
What about VFend that MB mentioned TroutScout? I'm not sure if Dr. C would Rx though as it's toxic, right?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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WildCondor
Unregistered
posted
Did you ever do the Dakin's solution in your mouth? How about Sporanox? I would give Cumanda a try. Depending on how bad it is there are IV anti-fungals too. Add garlic to the diet too...kills yeast. Were you not on anti-fungals during Lyme treatment? Usually they are taken as prophylaxis. FYI Meta Metrix does food allergy testing and will give you a rotation diet too which is really nice.
troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Guys,
I am on Sporonox...have tried V-Fend.
Dr C PROPERLY PRESCRIBED my anti-yeast Meds. (OK-Please drop the "proper treatment for yeast during Lyme treatment" annectdote's) I properly followed them also.
Yeast and fungus become resistant to certain things over time also. (I'm getting there...end of the line.)
Everything else....sounds good...a couple I haven't tried yet.
VERY good info!
Kent
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
Trout -- Take out your insides and soak them in hot salt water followed by a rinse in dilute chlorine, then fresh water. Scrub down your interior cavities with H202, followed by a salt-water wash and rinse with fresh water. Hang everything out to dry for a day in the direct sun. Reassemble.
SO sorry you're dealing with this. Zhang's anti-yeast protocol was extremely helpful for us -- expensive but very effective after our IV. We did it for over 6 months and you could smell me from 20 feet, literally. Very embarassing. But I never had a recurrance that I wasn't able to catch and deal with quickly after that.
Warm salt water gargle and nose wash helped break up the mucous for me -- not a cure, but a big help while I was searching for effective tx and also when I felt like I might be headed towards a recurrance.
I think the anti-biofilm protocols are key -- the ones that act as physical scrubs and toxin absorbers, as well as the ones that chemically break down the biofilm. Hubby has found that a combination of apple pectin, charcoal, and chlorella helps keep the yeasty coating at bay, along with Cryptolepsis and Blt (herbal tinctures -- can't remember who makes them, but they're very, very good against all sorts of bacteria/fungus, including babesia and bart. I can find and post the info if you need it).
He does the pectin etc. every other day normally, and 2x a day if he feels like he's being re-yeasted. Along with all the usual de-yeast suspects...
Best of luck. Keep us posted.
PS I'm not declaring victory but I'm back at work PT and doing pretty well. Bart was the last coinfection to go -- think I got it whupped, but it's a bugger; for several years it kept coming back after months of being sx-free. Still treating for Bb, but it seems to be latent for now. Fingers crossed....
PPS: I did more abx after the IV and the Zhang treatment, but the yeast never came back as a problem. Same for hubby.
minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
I edited my post, then I realized I should have just done a new post in case you already read the old one. So here's my new post with no new material to tell you to re-read my original post if you've already read it before I edited it.
If you haven't -- never mind!
-------------------- ********************* RECIDITE, PLEBES! Gero rem imperialem! (Stand aside plebians! I am on imperial business.)
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
quote:Originally posted by AliG: Dr.Zhang's Allicin (I'd swear by this stuff) 2 pills 3x/day
If he can't take the stink, take chlorophyll along with it.
I would also take 2 Mucinex 2x/day for the mucus.
This has worked very quickly for me, when I've had overgrowth.
If he's concerned about binding toxins he can get some Questran (cholestyramine) or Welcholl pills but be sure to take very far away from any other meds/supplements.
Poor Trout
I think proteolytic enzymes (ie:Wobenzyme) might also help digest the excess mucus.
The "Proteolytic enzymes" are enteric coated & become active in the intestinal tract. "Digestive enzymes" are active in the stomach.
It might be helpful to take a low dose of the enzymes along with the Allicin initially to help penetrate the biofilm. ???
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Neti pot asap for sinus congestion. Really works (sis with lyme uses one). U tube has a video on how to use it.
If at all possible...(cost) get on OmegaBrite...3 capsules per day...in the morning. Runs about $24 for a 20 day supply.
Call 1-800-383-2030.
ONLY, I REPEAT, ONLY THAT Omega3 supplement works! LOTS of EPA, a tad of DHA and a tad of Vitamin E. EPA functions differently than DHA does (re: PKC), but it does/can convert to DHA.
At night near bedtime, 400mg of Mg citrate and sub B6 (P5P). Source Naturals makes P5P. Those are not expensive. It helps control Na levels.
For P5P (dissolves under your tongue and doesn't taste bad) you can order: 1-888-635-0474
Also not expensive...VCO = virgin coconut oil. Get a big brown jar of it at a health food store.
One of the nutrients in VCO inhibits virulence factor and interrupts transcription factor:
"Glycerol monolaurate inhibits the production of beta-lactamase, toxic shock toxin-1, and other staphylococcal exoproteins by interfering with signal transduction."
(That's HDAC III)
And
"Glycerol Monolaurate Inhibits Virulence Factor Production in Bacillus anthracis"
VCO was discovered by a DOCTOR (whose husband had AD) who figured out VCO REVERSES ALZHEIMERS DISEASE.
Yes...it has to do with ketones.
It works! While one nutrient in it looks to be very effective, I think ALL the saturated fatty acids in it are working TOGETHER. Esp. Caprylic acid. H16.
Give it 3 months...to really notice the difference.
Usual dose is 3 Tablespoons of VCO per day...divided. Not expensive. Yucky to take, but can sorta mix it with peanut butter to get it down or can drink coconut milk.
If Troutscout wants to continue to go the abx. route:
"Cases of Lyme borreliosis resistant to conventional treatment: improved symptoms with cephalosporin
plus specific ***beta-lactamase inhibition***.
We present four cases of verified late Lyme borreliosis with persistent symptoms and positive serology
despite repeated courses of high-dose intravenous penicillin G and/or cephalosporins (including cefoperazone).
The patients were now treated with cefoperazone 2 g plus sulbactam 1 g bid iv for 14 days. At the end of treatment, patients were symptom free and have remained so for the following 12 months.
By then, IgG against Borrelia burgdorferi had decreased. It is concluded that the addition of beta-lactamase inhibitors
to intravenous treatment
could be beneficial in Lyme disease refractory to conventional treatment." PMID: 9158807
What the beta lactam abx do is help a bond... "ligate"...guess what bond is involved...yup, good old Mg...which then can lock onto ATP as Mg-ATP to transfer phosphate groups (Bb is inhibiting phosphate transfers via its PKC inhibitor. PKCB2?)
Here's how the beta lactams work:
"In this model, the 7-hydroxy group of the β-lactam ring
ligates the Mg2+
with its α-side facing the methyl group of SAM
at a distance that would allow methylation of the hydroxyl-group."
Undermethylated?
But if a bacteria has beta lactamase, it metabolizes (breaks it down) beta lactam before it gets a chance to work...= abx ineffective. Hence the need for the beta lactam AND the beta lactamase inhibitor to keep beta lactam UP....way up.
In addition...a good antihistamine (ya know which "anti-histamine" I wish you were given!)
In a discussion here about H1N1, I linked legit website that said a 9 year old girl with 104 temp from H1N1 was given Augmentin (beta lactam + beta lactamase inhibitor) PLUS an antihistamine and she recovered.
Odd...we've been told abx. don't work for viruses...
The Romanian docs were right...restore deficient Mg levels (P5P too) AND give IV abx.
Mg is an anti-inflammatory, anti-histamine, is needed to make healthy antibodies to Bb's OspB (mAB CB2...yea, that is a cannaboid receptor!)and it inhibits HMG CoA reductase.
We gotta keep Bb from rebuilding his cell wall and THEN use osmotic pressure changes/ultrasound to finish it off (CWD form)...HBO/Rife if need be.
IMO...Pulsing the abx. is likely far better...don't want Bb to "curl up" and become a cyst form in "hostile" conditions.
Hit it...get out...hit it...get out.
VCO contains nutrients that are antibacterial, antiviral and antifungal...
Look at each nutrient in VCO...molecular formula, structure and function.
That doctor was really really onto something...besides a cure for AD!
VCO is GREAT for yeast infections too.
OOPS...almost forgot (shame on me)...take LOADING DOSES of Essential Formulas Probiotics 2x/day with a full glass of water one hour before a meal for ONE WEEK. These are the absolute best, IMO. Loading doses = 5 capsules.
In one week, you will use up the entire box.
Runs about $45...but worth every cent.
Healing starts in the gut. Gotta get the gut healthy FIRST.
[ 10-24-2009, 04:35 PM: Message edited by: Marnie ]
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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RDaywillcome
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Member # 21454
posted
Found this on the web, but I don't know how well some of these remedies help, but it would be worth a try. Good luck.
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