[ 10-21-2009, 09:01 PM: Message edited by: Robin123 ]
Posts: 13116 | From San Francisco | Registered: May 2006
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Hoosiers51
Frequent Contributor (1K+ posts)
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posted
Hmmm...that is pretty bizarre!
Posts: 4590 | From Midwest | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Interesting for sure, but the man is not getting treated for lyme other than the initial course. That just disappeared from the radar.
The fact that this happens when red meat, or even fish, is eaten could be a connection to excess porphyrins adding to the toxic load if lyme is still a player. High protein, especially RED MEAT is known to trigger porphyria attacks (in those with this condition) and that can affect nearly any of the neurological functions.
There are many with undiagnosed porphyria - or it may be quiet until the body is stressed. As well, patients with liver stress and an active chronic lyme infection are more prone to porphyria. This may or may not be connected but it seems something is missing.
And - No one is looking to the chronic manifestation of lyme. Lyme changes everything about the body. -
[ 10-21-2009, 12:26 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Hes still infected.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Robin,
That sure is interesting!
Thanks for posting it.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
He got abx right after the bite so he would not have antibodies to borrelia. Even my State documents this issue.
Sounds like a different strain so who knows if even IgeneX testing would reveal antibodies to this strain. In his case it wouldn't regardless of strain due to his use of abx.
I agree with tree, he is still infected. Interesting Keebler, I didn't know that about red meat. The guy really needs to be evaluated for infections by an LLMD.
I'm amazed they ever connected it to a tick bite.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
My husband reads the paper and he told me this story yesterday.
I would bet money on the fact that this guy probably has lyme and co-infections.
It's kind of sad that they happily tested for THIS but did not even think to test for Lyme.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
I'm amazed that it was figured out so quickly! That never seems to happen with things that are so unusual.
Posts: 177 | From God's Grace | Registered: Apr 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Actually, I think the allergy doctors are to be commended for keeping track of anaphylactic shock in other meat eaters who had a history tick bites.
However, they have not done all their homework by any stretch of the imagination. I hope they will continue to learn with this and explore what UNtreated lyme has done to these "allergy" patients.
Active lyme needs to be addressed for all those patients they mentioned - and the possibility of high porphyrins, too, either as a result of liver changes from lyme or a genetic type of porphyria that was not awakened until the lyme challenge.
It is somewhere in the materials for the American Porphyria Foundation but a diet low in (or even absent of) animal proteins is a must for those with porphyria. For some, red meats are all off limits. Red meat is the number two food item to trigger porphyria emergencies, just after alcohol.
(Certain medicines and chemicals that use the C P-450 pathway are in a separate category and those should also be studied for these "allergy" patients.)
The reason that the "allergy" attack came hours after eating meat rather than immediately (as in an typical food allergy) could have a lot to do with dangerous levels of porphyrins that took a while to build up during the metabolism process.
Unlike an offending medicine or chemical it may not be the meat that causes the "allergy" but the porphyrins from the breakdown of the meat in someone whose liver does not have the capacity to do this correctly.
As well, if enough vegetables were not consumed with the meat, that would escalate the emergency. Vegetables help to keep the porphyrins down.
AND they are missing the fact that lyme changes everything about the body, the immune system has a whole new/different operating system, so to speak - the likes of which most doctors have never seen.
. . . Glucose can diminish excess excretion of heme precursors, which, in turn, can prevent an attack or can hasten recovery from an attack of the acute porphyrias.
. . .
When the Atkins Diet, which was a high protein/low carbohydrate diet, became popular a number of years ago, many Porphyria patients who adhered to this diet became ill.
It soon became apparent that their severely reduced daily carbohydrate count exacerbated their Porphyria. In fact, complying with the Atkins plan precipitated attacks in some previously undiagnosed and non-symptomatic individuals.
. . . . -
[ 10-21-2009, 03:09 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- SixGoofyKids posted this today at another thread. Pyroluria is just one kind of porphyria:
"Dr. K has found 82% of Lyme patients have pyroluria, and nearly all of them have it if they've been sick more than five years."
- details are in the Porphyria Links thread above. -
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