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» LymeNet Flash » Questions and Discussion » Medical Questions » Neurosurgeon and Lyme - Maybe there is hope..

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Author Topic: Neurosurgeon and Lyme - Maybe there is hope..
trigal2
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I was wondering if maybe there is hope that the medical community will, in time, begin to see lyme as the serious disease it is...

Yesterday I had a consult with a Johns Hopkins Neurosurgeon for a unrelated condition. He was the first Neurosurgeon/Neurologist to even consider that lyme might be causing my neuro. symtoms - not this other neuro. condition that I have.

I have been to many NS and NL's over the past few years and even had spinal surgery. While this other condition shares many of the same symptoms of lyme, not a single Neurologist or Neurosurgeon even considered lyme as a differential.

Yes, I now know I have lyme, but to hear a NS recognize it and bring it to the forefront felt like a little bit of progress on the lyme front.

Just wanted to share that there are some non LLMD's out there that do have their lyme radar out!

Posts: 376 | From New Jersey | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
dmc
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[Smile]
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Keebler
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Thanks for posting this. I've been avoiding ear canal surgery (through the skull) at JH, partially due to the lack of lyme knowledge I saw on their website. Steroids are required with this surgery and with their hospital stance on lyme, I could be in trouble. I also have no LLMD in my corner, on my own with this.

Glad to hear about a neurosurgeon who has not stopped learning and also has the courage to break out of the JH bible about lyme.
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trigal2
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Your welcome...

I don't know exactly how much he knows about lyme but at least he knows enough to recongnize the red flags of Neuro-Lyme.

The fact that he was at least was willing to address the issue of lyme was such a relief.

Makes sense to continue abx before brain surgery no? Yes!

Posts: 376 | From New Jersey | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
   

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