posted
Why is your LLMD not concerned? Is he not going to treat you? Can you PM me his name or initials or location or something? I am curious if it's who I think it is? If you don't want to I understand, but if you don't mind divulging this info, please PM me.
-------------------- ---Beautiful Disaster--- IgeneX WB: IgM: 18+, 31+, 41+, 58+, IgG: 31++, 39 IND, 41++, 31kda Epitope Test: Positive Labcorp: IgM: 23+, 41+ No LLMD due to money since Sept 2008. Was on Doxy, I.V. Rocephin (30 days), Flagyl. Also dx with Bartonella. Posts: 139 | From United States, East Coast-ish | Registered: Aug 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Well if he is treating you with Mino or Doxy that should take care of the Mycoplasma. I think it takes a year or more to get rid of it.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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quote:Originally posted by sutherngrl: Well if he is treating you with Mino or Doxy that should take care of the Mycoplasma. I think it takes a year or more to get rid of it.
Does it really? I've heard mixed stories on
doxycycline treating M. pneumonia, though I am on
doxy now for chronic lyme.
The mycoplasma was the only co-infection that
showed up, but compared to some people I've read
on here, my 1.57 seems just barely above the
range so I wasn't too concerned, either. My
immune system has been seriously messed up for
many years and after getting Lyme that only got
worse; it seems like if the Mycoplasma were going
to be serious it would have gained more leeway by
now, doesn' it? The IgM wasn't responsive, so it
cant be anything recent, it's strange that it
would have been around a while and yet not done
anything to me.....of course I'm correlating the
level of IgG titer to the severity of infection,
and in all truth I'm not sure if that's how it
works, but higher numbers mean worse infection,
don't they? Ah I'm rambling, hope this makes
sense...
Posts: 161 | From Southern United States | Registered: Sep 2009
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i've had two llmds not be concerned about low titre viruses-they say get the lyme and then the body will get the viruses
but i think some oon here have said lyme tx didn't work til they got rid of virus-then it did
chicken or the egg????
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I think some LLMDs are just afraid of treating viruses and the meds honestly.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I had a high IGG Mycoplasma titer too and my doctor didn't seem concerned either. Is this actually a co-infection or just one of the many viruses we get with a surpressed immune system? Has anyone ever treated this virus?
-------------------- The advice I give, should not be considered medical advice. My opinion comes from years of research and experience. Posts: 233 | From Somewhere | Registered: Sep 2009
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words, LOL
Posts: 161 | From Southern United States | Registered: Sep 2009
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I once spoke with a mycoplasma expert. They used a different referent range....1:64, not 1.16.
In that reference range, the IgG was considered positive if the result was >=1:64 (which mine was). Upon talking with the specialist, they MAYBE start to be concerned if the titer is >1:200. I was a long way from that, so they did not think mycoplasma to be a problem in me.
Your result is not that much above the reference range. Using the same logic, I would not be concerned with a result such as yours.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Ah! Thank you, timaca Posts: 161 | From Southern United States | Registered: Sep 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I'm sure you've seen this, but in case you have not - or for anyone new to mycoplasma. This is the web site for the hard working mycoplasma researcher/author Garth Nicolson (whom I'd like to thank for all his work):
A nonprofit institute dedicated to discovering new diagnostic and therapeutic solutions for chronic mycoplasma infections. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thank you, Keebler Posts: 161 | From Southern United States | Registered: Sep 2009
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
My M. Pneumoniae is always >5. Seriously high and I have rheum arthritis which can come from lyme and Mycoplasma. My doctors take it real serious.
I was on low dose minocycline and later doxycycline for 3 yrs. The titers finally came down enough to be on the charts. 398 was the lowest it ever got.
March 09 I started Mepron for babesia and had to quit the doxy as they contraindicate each other. My mycoplasma shot right back up to >5.
My LLMD/rheumatologist said 2 things. #1-The antibiotic only suppresses the bacteria/virus (it is both) #2-IGG still means current infection to LLMDs.
My RA is really good but I still continue much treatment.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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