posted
I need to talk to you. I am going to order abx online due to my financial situation and no insurance, and barely no money. I was referred to you two.
I already have a list on the site of 4x,com (www.4x.com) or something like that. I tried to post the link but apparently it didn't work in my other post.
If you go to my other post you will see a link that says "website" and click it and it *should* take you there. It lists at least 30 abx and I HAVE NO CLUE WHAT TO ORDER.
I almost ordered a bunch but I thought that I would consult with ppl who know what goes with what, to pulse or not to pulse, when to take each one, etc.
Can someone PM me and tell me what to purchase. I don't care if my bills are late. I'm in so much pain, I can't function.
And anyone else besides you two that actually knows what goes with what abx wise, PLEASE msg me. I want to get this done today. I've had enough.
Thanks to anyone that can help.
-------------------- ---Beautiful Disaster--- IgeneX WB: IgM: 18+, 31+, 41+, 58+, IgG: 31++, 39 IND, 41++, 31kda Epitope Test: Positive Labcorp: IgM: 23+, 41+ No LLMD due to money since Sept 2008. Was on Doxy, I.V. Rocephin (30 days), Flagyl. Also dx with Bartonella. Posts: 139 | From United States, East Coast-ish | Registered: Aug 2009
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posted
Why don't you PM them directly?
Posts: 872 | From New York City | Registered: Jun 2008
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WildCondor
Unregistered
posted
We are not your doctor and cannot give that kind of medical advice. If you are going to risk self-treatment, then you need to do it on your own. You can research what goes with what in the Lyme Guidelines, etc. and by asking those kind of questions. I can tell you what doses and what meds worked for me and what I took, but we can't tell you what will work for you. This whole thing is explore at your own risk.
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i'd say look into like cowden or buhner.
if you're interested in those, i'd be willing to help you out if you can't afford them.
anti's on line are outrageously expensive. man, i can't afford those. you'd have to sell your first-born to get them!!!
shame you can't get a doc to prescribe something.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
randibear that is a very beautiful gesture
I hope she takes you up on it.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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WildCondor
Unregistered
posted
I agree with randibear, exploring herbals sounds like a good idea.
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
If not.. take it slow and easy and I PMd you.
Arteminsinin (which is an herbal anti protozoan) would be good to keep in mind to add in with any anti bacterial you might end up choosing.
Herbal or otherwise.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
You posted about this awhile back, and I answered you. I told you you should take Amoxicillin. It is cheap and works well. It is very hard to overdose on Amoxicillin, and it is not really a hard drug to take. In high doses it crosses the Blood Brain Barrier.
I also told you to use the Interactions Checker on www.drugs.com.
Do you remember that post from months ago?
Posts: 4590 | From Midwest | Registered: Jun 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
hmm, correct me here guys, but didn't buhner or somebody say not to take art when you have chronic lyme -- that andro is a better choice?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
randibear
If this is true I would be interested in hearing more. Anyone have any information on this? I have not heard of that before??
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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quote:Originally posted by randibear: i'd say look into like cowden or buhner.
anti's on line are outrageously expensive. man, i can't afford those. you'd have to sell your first-born to get them!!!
Its completely opposite. You can buy 1 month supply of high dose combo abx cycle for half what full cowden cost.
Posts: 856 | From MA | Registered: Jul 2009
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
I have nothing against self-treating with abx. However, you should not just plunge into self-treating with "no clue."
If you do some reading first and have a sense of what you're getting yourself into as far as side effects, dosing, and duration, then have at it.
Otherwise, it may be advisable to hold off until you do have a sense of what needs to be done. Starting out with common herbal aids may not be such a bad idea.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
i understand what it feels like to be desperate and need a plan. just take a deep breath. i would try what worked for me which is the salt c protocol. it is not popular here. google lymestrategies and read about it. you can buy all the ingredients at the grocery store.
you will get through this. just relax. there is no urgency. you can start treatment today with the salt c and be killing bugs by this evening. goof luck.
Posts: 82 | From philadelphia | Registered: Aug 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
sorry, i have insurance so i was comparing my situation to that.
when i pay minimal or get free meds, it's "expensive" from my vantage point.
i just think if you don't have money to do antibiotics, then maybe herbal or salt/c or something would be cheaper.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I would read Buhner's book, Healing Lyme and self-treat based on his recommendations. I LOVED his core Lyme protocol.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Any one who got well PM me your symptoms and what treatments you were on. I have a hard time reading books. For a few reasons. If someone who is so confident that they had the right treatment, please, PM me and let me know. I'm jumping out of a plane, so to speak, I could have a parachute and it could be a wonderful experience (getting well, self treating) or my parachute line could get twisted and I would plummet to my death (doing something wrong with self treating).
But, I'm not living like this anymore. I'd told my mom, I'd rather die TRYING to live my life (I am only 28) and to end my life purposely.
Thanks to ever that messaged me with kind words. Please, if you can, keep emailing me with what you think I should use for Bart and Lyme? Do you treat them at the same time? A few months of Bart tx then do the same with Lyme?
Does anyone have a list of abx that will not work with each other?
Does Buhner's book get you well?
-------------------- ---Beautiful Disaster--- IgeneX WB: IgM: 18+, 31+, 41+, 58+, IgG: 31++, 39 IND, 41++, 31kda Epitope Test: Positive Labcorp: IgM: 23+, 41+ No LLMD due to money since Sept 2008. Was on Doxy, I.V. Rocephin (30 days), Flagyl. Also dx with Bartonella. Posts: 139 | From United States, East Coast-ish | Registered: Aug 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
Then type in the blank each drug you would like to take, and push the button after you type each drug name (or a drop-down list appears once you start typing and you can click the name). It will make a list for you of the drugs you seleect, right there on that page.
Then click, "Check Interactions" down below the list you made, and it will tell you what on that list interacts.
WE CANNOT MAKE IT ANY EASIER THAN THAT.
Seriously, it is the easiest way. If you aren't willing to do that, you definitely should not be self-treating.
You can't depend on people online to randomly PM you interactions. Check the website. It is easy and foolproof.
I think Amoxicillin would be a good start. You could add in Bactrim DS to see if it hits Bartonella. Or you could add Zithromax to the Amoxicillin.
Rifampin is probably not safe to self-treat with, if you aren't getting liver tests very frequently. You even need liver tests with your first week on Rifampin, so I would not take that one unless you have access to bloodwork.
A lot of people are treating Bartonella with herbs, and are successful. You can try Levaquin if you want, **but check drugs.com for the interactions**, and stop at any signs of tendon damage. Also, load up on Magnesium for a week or two before.
I think those drugs are good to start with. You could also add Zithromax.
If you want to know what drugs work: There are "Success Stories" in General Discussion....or, you could type the name of a drug into the Search feature on this site, and then read what people are saying about each drug in the results.
If you change the search to "Subject only" you will get better results. You could also type in the name of a drug and the word "success" and see what comes up.
I'm going on the assumption that if you are well enough to read PM's and responses to this thread, you are well enough to read what would come up on a search, if you go slowly.
So all in all, I think these suggestions will be more helpful to you than just having people PM you, if you follow them.
Posts: 4590 | From Midwest | Registered: Jun 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
get buhner's book, please. the core protocol is cat's claw, andrographis and resveratrol.
start at one pill each day, first week. second week, two of each for a week, then so on.
can't get any simpler than that....
don't know how much money you have but you can get those herbs at a reasonable price at iherb.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I agree with sammy1 about using the salt/c. It saved my life. Also adding antiparasitic herbs can be very helpful.
I think I suggested this to you on another thread. I know it's scary and I was in the same plave 3 yrs ago and am nuch better.
I buy the sea salt (Redmonds) and the powder ester C with bioflavinoids at vitacost.
This is probably the cheapest way to go and the bugs hate it,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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WildCondor
Unregistered
posted
If you want, there is some newer info on the Nutramedix/ Cowden herbs here in video.
posted
I always rely on Burrascanos guidelines to compare standard treatment with what my LLMD is prescribing. So I would recommend that. Here is a link to the guidelines
I printed out the whole thing and read it all the time. Very reassuring and informative. I think everybody should have a copy of this. This one is the most recently updated version -- 2008. It is 37 pages, but I printed it double sided. Good luck.
-------------------- Judy G. Posts: 122 | From Minnesota | Registered: Dec 2008
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posted
I go to that drug interaction site all of the time. However, I don't know what drug hits what. I know that Levaquin and Rifampin kick Bart but else? I don't really have anything to type into the checker.
I was trying to see what others have successfully used for their Lyme. Which abx, which strengths, how many times a day, etc. THEN, I will punch that info into the interaction checker.
When I said I wanted to try Salt/C for a while everyone here scared me off. The dangers etc. But I know that taking abx is dangerous also.
I just feel that there is urgency a little bit, because I need to make SOME headway before alimony runs out March 31st 2010.
I found a site that sells a TON of abx and there's one I want to bring up that I've been hearing good things about. I think some are taking it here. I'll make that my next post.
Thanks for listening.
-------------------- ---Beautiful Disaster--- IgeneX WB: IgM: 18+, 31+, 41+, 58+, IgG: 31++, 39 IND, 41++, 31kda Epitope Test: Positive Labcorp: IgM: 23+, 41+ No LLMD due to money since Sept 2008. Was on Doxy, I.V. Rocephin (30 days), Flagyl. Also dx with Bartonella. Posts: 139 | From United States, East Coast-ish | Registered: Aug 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I'm not qualified to give medical advice, but here it is anyways....
I think that for Lyme, you should start with some combo of either Amoxicillin or Ceftin......with either Biaxin or Zithromax.
So Amox and Zith, Amox and Biaxin, Ceftin and Zith, or Ceftin and Biaxin.
The amox/ceftin will hit one form of Lyme, and the biaxin or zith will hit the intracellular form.
Bart:
I believe Bactrim DS can be easily combined with any of those above combos, and that treats Bart in some people. If it's treating your Bart, you'll know, because you'll have a major herx within a few days of starting it.
Be aware of the Stevens Johnsons syndrome symptoms, and if that happens, go to the ER. It is very rare, but it happens.
I would not recommend Rifampin without access to very frequent blood testing. Especially if you take anything for pain, Rifampin might be totally out. Too many interactions.
Levaquin is usually combined with things like Zithromax or minocycline or doxycycline.
I am not sure if Levaquin could be combined with Amoxicillin or Ceftin, so you would need to ask that here or look it up.
Keep in mind that I am not qualified to give medical advice, and also I have no idea what else you are taking, so continue to use the drugs.com Interactions Checker.
If Bart is your biggest problem, you may want to start with Levaquin/Zithromax or Levaquin/Minocycline instead of the combos I first laid out for Lyme. But be aware of the risks associated with Levaquin, namely the tendon damage. Stop if your tendons start hurting.
The more I think about it, Biaxin may be dangerous if you are taking sleep meds or pain meds. Zithromax interacts with far less drugs. Biaxin doesn't always combine well with other drugs.
Check out the book, "The Lyme Disease Solution"...that will give you info on drugs, and I think it has dosages in there too.
If you want dosages, look at Doctor Burrascano's guidelines.
If you want to know what drugs have helped me the most.....Amoxicillin in high doses (much more than 4,000 mg daily) and Bactrim DS for my Bart.
Posts: 4590 | From Midwest | Registered: Jun 2008
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