Topic: Cody has ANOTHER Line infection, far more serious, plus Swine Flu too
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Blake and Cody spent all day yesterday at CT Children's Medical Center, Cody was finally diagnosed with the Swine Flu. Cody kept saying, "What if I have a line infection?" concerned about his 104 temp, and I said, "you don't, because you are coughing, runny nose, you have the flu."
Blake also has the flu. And of course I've been herxing for 3 weeks or so since starting IV Claforan and feeling unable to move.
Today I woke up at 7 am feeling better! I think the IV Claforan might be my saving grace...but boy that herx is nothing I'll forget anytime soon. Not sure it's completely over, but definitely on its way out. Perfect bed day for a sick family. Cool and rainy. Everyone is sleeping and I'm going back to sleep. Fast forward a couple hours......
The peaceful picture was broken by the phone ringing off the hook, eventually awakening us. It was CT Children's Hospital calling to tell us Cody has a very bad line infection. The bacteria grew in less than 12 hours, not the usual 48. We needed to rush him right back there for line to be pulled, be evaluated for sepsis, be put on additional IV abx, and possible admission.
I was groggy because I had taken a sleep med to catch up on rest so out the door Blake went with Cody. I will go there if he needs admission. I am scared.
Poor Cody just sobbed and said "I am NOT doing this anymore. I am NOT getting another PICC line. I am all done with this." For those who don't know, this is his second line infection, but MUCH worse than his first. His first did not need to be treated with anything.
He overheard Blake and I discussing how much worse this one was, how he may have had it for days without us knowing because he had the flu too, how concerned the doctor was (we were called by the same doc who pulled his first line)....I tried to reassure him and told him maybe this time Dr Jones will order a chest port, he said NO WAY I AM DONE.
I said Cody, not getting treatment is NOT an option for you. But we will talk about that later, right now you need to go.
Scary when the doctor calls and basically tells you to get your kid there as fast as you can. Please God don't let this damned swine flu or this bad line infection (gram negative if that means anything) be too bad.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Oh my gosh Tracy. I am thinking of all of you, especially Cody. Please keep us posted.
In my thoughts, feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
My heart goes out to you.
Ask your doctor about trying IV Augmentin AND
an antihistamine.
May God watch over and help Cody to fight these infections!
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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posted
you and your family will be on my mind and in our prayers
i am so sorry this is happening
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Prayers something good comes from this.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Randi, that is so sweet, I am sure they would love that.
Does anyone know anything about "Gram Negative?" That is all I know so far and when I looked it up online it clearly is worse than "Gram Positive" and is what leads to sepsis and all the bad and scary things.
Poor Cody; how scared he must be...yet he has to push forward somehow. I'm thinking Dr. J might go for a port next.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Randi, Our address is:
***
Again, that is very sweet of you. Money has been non existent, what a thoughtful idea.
***Webmaster Note: Full name and address have been removed.***
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Tracy9,
I'm sorry to hear about this bad news. I hope all works out in the end. How scary!
Just a FYI, I seriously would take your mailing address off ASAP. That's a very, very unsafe thing to do online.
Best wishes.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I treated my line infection applying DMSO mixed with colloidal silver and antibiotics. Waited for at least 6 hours then applied DMSO mixed with MMS (clo2). Wait at least another 6 hours before redoing. Careful, as the MMS will go systemic, and just a little goes a long way. You can soak a bandage and apply it if needed. The MMS/DMSO also worked very well on a recent spider bite. best of luck
Posts: 731 | From Humble,TX | Registered: Feb 2005
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WildCondor
Unregistered
posted
Wow!
Tracy get to that hospital and don't wait. Have them pull that line! Get him treated for sepsis!
I would not do any more PICC lines. It's too risky and too much for a kid to handle. You tried. There are oral combinations that will work, and hopefully he can use Bicillin, because it can be just as effective as IV therapy.
Most importantly, make sure they culture that IV line tip and find out exactly which organism it is and then do a sensitivity to determine which antibiotic will work against the germ found.
Focus on the current infections and dont worry about Lyme until after he has recovered!!
He has the swine flu plus a picc line infection, he needs meds and should probably be admitted indeed.
Keep us posted but get your rest too!!!! Stay strong!
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
jennifer, or anyone, if tracy is caught up in all this, can you please edit her post asap?
she's probably really busy and all and may not be checking for while.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Tracy,
I'm so sorry to hear about your child. Please keep us posted on what happens.
I just returned from my doctor's office when he implied that maybe I should have had a PICC line instead of the port I just had put in (oops). I thought what in the heck am I doing.
Your email has made me think that maybe the port will be better as far as infection is concerned.
I'll be praying for you.
Posts: 2232 | From USA | Registered: Aug 2009
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bettyg
Unregistered
posted
i REPORTED tracy's post asking jenifer to remove....she comes on daily checking the REPORT POSTS; unknown time but daily.
tracy and family,
putting you all in my thoughts and prayers that this will turn around for the BETTER SOON
i went to NIH's medical library typing in the phrase you used above and got this link with lots of info ... too much!
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I would be RUNNING from those PICC lines, not walking Tracy as I've said over and over again in your threads. Just too much risk given your family's situation. It appears you are all very sick so you're putting yourself and your family in jeopardy if the other is so ill they can't drive, function, etc. PLEASE think about this.
I'm shocked the treating LLMD doesn't see this angle.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Tracey - so sorry to hear this. I will be thinking of you all and praying he gets better ASAP.
Keep us posted when you have time.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Tracey- Sorry to hear this. Will keep you all in my prayers. Hope it all turns out well.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Praying for Cody!!!!!!!!!!!
Praying for all of you!
I am so sorry this is happening.
Praying for the very best outcome.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Tracy,
Oh no! So sorry to hear.
It sounds like a port will be the way to go. He might actually like the fact that it can be "de-accessed" for things like swimming. (unless I'm mistaken, but I am pretty sure).
I'm sure the hospital will know the best drug to put him on for his infection. I would trust them.
Prayers to Cody and the whole fam!
Posts: 4590 | From Midwest | Registered: Jun 2008
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