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» LymeNet Flash » Questions and Discussion » Medical Questions » Thyroid issues with Lyme?

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Author Topic: Thyroid issues with Lyme?
SeekingAdvice
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Has anyone had their thyroid function change with

Lyme disease? I'm only 4 months into it and am

suddenly hypothyroid. I know, based on Dr. B's

protocol, that I should get treated for it or

the lyme may not go away either but I feel like

between the antibiotics (currently on 3) and the

supplements (not even taking all the recommended)

there are so many pills and so many changes that

I am afraid it will be hard to figure out which

medicines/supplements are helping/hurting. Have

others had these concerns?

Two more questions regarding joint concerns-

#1 My main symptoms are joint pains- anyone had very

achy ankles (not like the pain in other joints)?

#2 Does/did anyone have joint pain without

swelling? I keep reading that I should have

swelling with my joint pains, but I don't seem to.

THANKS!!

Posts: 14 | From Connecticut | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
cactus
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I became hypothyroid also, and developed Hashimoto's Thyroiditis.

LLMD sees the connection often.

Treating the hypothyroid has helped a lot with symptoms, though, and made it easier to see where we are regarding Lyme treatment.

Yes - I've had the achy ankles, too! Although they are not as bad as the wrists.

And - no, I never had any joint swelling either.

Hope that helps a bit.

--------------------
�Did you ever stop to think, and forget to start again?� - A.A. Milne

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lymers
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I have so far always had normal thyroid tests, but I have Hashimoto's Thyroditis (this was discovered when a doc was investigating why my thyroid felt "fluffy".

I'm told eventually (like in many years) I'll have thyroid function problems, but not yet.

Lymers

Posts: 287 | From Humboldt County, CA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
Cass A
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Drop in thyroid function was one of the first symptoms I got from Lyme--but not enough data to help me find it.

I tried treating the thyroid problem with Wilson's Temperature Syndrome protocol--getting T-3 and T-4 from a compounding pharmacy. For two years, I tried to get my body temperature to stabilize around normal, but it wouldn't stay fixed.

Ugh.

From what I've seen at the Marshall Protocol site, the thyroid is one of the first areas to need less intervention.

For myself, a long treatment with Mepron/Zith got my temperature up into the normal area. However, it's sunk into the sub-normal range again at this time.

Best,

Cass A

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BHealthyNow
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My TSH is all over the place. One day it's hypo, another hyper, so I'm not on synthetic. It's one of the meds I really don't mind taking.

I have stiff ankles when I wake up. I also don't seem to have swollen joints, though I do have pain.

--------------------
Lyme, Bart, possible Babs
Currently on IV Doxy, Bactrim, Zithromax, Nystatin, Mepron
Been on nearly every antibiotic since 10/09

About 60% improvement. Dizziness, air hunger remain.
http://lemonandlyme.blogspot.com

Posts: 333 | From Boise | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
sutherngrl
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My joints hurt so bad, but no swelling.
Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
disturbedme
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SeekingAdvice - you don't have to have swelling with your joints to have lyme disease. Many people have lyme disease and don't have the swelling. Some people do, some people don't. Lyme effects everyone so differently.

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
nomoremuscles
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I am in the same boat as far as thyroid and for some unknown reason am reluctant to take the meds.

My doc suggested taking tyrosine and iodine for 6-8 weeks and then retest. If at that point there are no improvements, he said to give the meds a shot.

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SeekingAdvice
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Thanks to all for the feedback! It's nice to know you are not alone.

I am relieved to hear a lot of people don't have swelling with their joint pain.

My doctor is evaluating other thyroid numbers and then I guess we'll decide what to do.

If it helps get rid of the lyme- I guess it's a good idea to take care of!

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22dreams
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I had clinical sx of Hypothyroid.
(swollen/edema behind the ankle, fatigue etc, weight gain for no reason, weird lower abdominal bloat disproportionate to upper abdomen, body temperature degrees below normal)

went thru a period where I was hyper (lost 10 lbs really fast, menstrual frequency increased).

TSH normal.

when I was finally dx'd with lyme, I told the Md I knew I had thyroid problems.

TSH- normals, T3 & T4s(frees), not bad.

BUT: thyroid antibodies are there.
Hence all the symptoms.
Took Armour, now Nature-throid. Liked armour better.

Supplemented w/Iodine first since I am deficient in that --

and before I was dx'd with lyme, all-of-sudden deficient in many vitamins and minerals.

2-3yrs prior, all were checked and were "excellent". According to tests, I was way above average in health despite Insomnia and other unexplained and random symptoms.

anyway, my TSH is still "within normal limits" according to doctors of insurance.

and yes, this is very common with lyme px. My sister has similar problem.

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