posted
I am going back on Rocephin and I have heard so many stories that it doesn't work. Does anyone out there have a glimmer of hope on Rocephin. I am suppose to start today.
Thanks
Posts: 86 | From California | Registered: Oct 2009
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posted
I saw that no one posted -- that's why I am now. I've heard from many people treated with this drug, but no one (from my small # of talks or observations) got better. I hope this is not the case and people are getting better...
This is also a drug that can cause a build-up of biliary sludge, so one might consider a liver cleanse or Actigall (or both!) after taking this med.
Just my 2 cents.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I think it's a waste of time. It was one of the first IV ABX used early on when LLMD's were first learning about his illness.
There are now much better IV ABX out there, which are not known for wrecking your gallbladder.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Good validation, ABX...unfortunately! So if this is the case, why are "top" docs still using this drug? I really don't know, that's why I am asking.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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posted
I started on it again today because this is the only IV my current doc will give. I'm so nervous that I'll get gall stones or relapse. Do you know what the preferred IV abx is these days for Lyme. I'm still hoping to see a post of a success story. I know one person that it "cured" he also did a plethora of Flagyl.
Posts: 86 | From California | Registered: Oct 2009
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How long were you on Rocephin and do you feel that you made any progress?
I also would love to see list of IV abx that worked best for those IV users out there.
Posts: 86 | From California | Registered: Oct 2009
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Took 28 days IV Rocephin and felt great on it...but 2 days after last dose, symptoms worsened, and that lasted for several more days. Don't know if there was any positive effect long term that can be attributed to the drug...
Posts: 283 | From where the ticks are! | Registered: Oct 2009
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posted
I was on Rocephin for 28 days and it definitely helped me with some of my symptoms (i.e. internal vibrations, anxiety). Unfortunately my liver enzymes climbed to 900 while on it so needless to say, 28 days was it for me.
It took another year of a variety of orals and bicillin injections to really help me turn the corner though
Posts: 561 | From mass | Registered: Jul 2007
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posted
I started IV rocephin after I had been on various orals for over 1 1/2 years. The improvement was dramatic! It wasn't real fast, it was month by month, but it was far better than anything else I had been on.
Posts: 69 | From So Cal | Registered: Jun 2007
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I'm on doxy + rocephoin + plaquenil right now.
it's working wonders for me.
I'm hoping that it's not because the bugs have all turned into cyst form.
But oh well... Flagyl starts tomorrow Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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quote:Originally posted by canefan17: I'm on doxy + rocephoin + plaquenil right now.
I'm hoping that it's not because the bugs have all turned into cyst form.
It most likely is. Though cyst form is the metabolically inactive form. -this is the way it avoids abx actions (cause they disrupt bacteria metabolism)- I hate this damn bacteria, and our inefficient and unreliable immune system which fails to kill it.
Posts: 856 | From MA | Registered: Jul 2009
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-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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posted
Hopeful, my daughter was on IV rocephin for 5+ months (actigall is necessary while on this med).
Improvement came about 3.5 months in...wonderful. But once rocephin was stopped, she went downhill.
In retrospect we found that there is a lot more to recovery than IV abx. Yeast especially needed to be addressed. And her immune system needed to be built back up.
The best thing for her thus far has been the schardt protocol----alternating between penicillin and diflucan. She is also on many supplements to help rebuild her immune system.
That said, some have had sustained improvement just from the rocephin.
If I personally had to do it over again knowing what I know now, I'd skip the rocephin in favor of orals for Lyme. I'd investigate the possibility of coinfections and pursue aggressive treatment of those. I'd also begin a regimen of supplements to treat Lyme/cos as well as support the immune system.
FWIW, we never had a problem with the picc line. A good interventional radiologist is the key.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
I've been on ceftriaxone for 5 months now. It has helped alot but I still have coinfection symptoms: ringing ears, numbness in face hands and feet, crawling sensations under skin, muscle atrophy and arm weakness, fatigue.
It doesn't sound like I'm doing better, but I really am. I was also dxd with ALS and the muscle wasting has stopped and is slowly reversing.
My llmd is afraid to add other meds with the ALS possibility so he is staying with the ceftriaxone (generic rocephin) as long as I continue to do well.
-------------------- Dxd ALS 3/2010 Dxd cllinical Lyme 4/2010 Positive for Protomyxzoa but absolutely nothing else in Igenex Posts: 417 | From central ct | Registered: Apr 2010
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Yeah! I am so happy you are doing well. Muscle wasting stopping and reversing is the best sign.
I know Dr Martz treated for babs too. Perhaps you can address the coinfections at a later time once things are even more improved. You made me smile just knowing you are improving...thanks so much for sharing. I am so happy.
Posts: 747 | From Utah | Registered: Apr 2010
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